Murmer
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Posts posted by Murmer
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Yep major problem...one of my worries for my ADHD dd if she goes to Kindergarten (which is all day). Sadly there is very little else to threaten children with at school to take away, so recess it is. Sad and not good for the kids.
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I have a dd who is hyposensitive (diagnosed). Same with getting sick...full on strep throat and I only knew because she woke up with a fever, and I knew she was exposed. She also has not fully potty trained. She goes out of her way to seek sensory input of high degrees...and scares me when she does it. She is in OT but that is new so I will have to see if it helps.
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Also there are soy yogurts that don't use diary derived pro-biotics. Odd tidbits of living dairy free...McD's french fries contain milk, BK nuggets contain milk but not the hamburgers, Culver's chicken strips are safe but not the hamburgers. So basically depending on what you are avoiding (we are whey and casein and anaphylactic) you might find something that is safe one place but not at another. But it is really easy I promise...looks hard but its not.
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Yep, I didn't have 1 of my adult teeth...because my mouth is small anyway they pulled the other 3 when they came in to make it even and used orthodontics to space everything correctly...it wasn't too big of a deal other than the dentist not doing enough novocaine but that was because he was a bad dentist.
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You won't get a response till sometime monday...even when they say 24 hours... :(
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Like someone else mentioned...Amelia Bedelia, Frog and Toad books, are all end of 1st grade average reader books. Magic Tree House is middlish of 2nd grade. If you scholastic Book Wizard look as Fountas and Pinnell Level of I/J for end of first and K for begining of 2nd grade.
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RTI is a newish federally/state set up pre-SPED screening program...basically RTI demands that they show the child does not improve with intervention thus proving they need SPED...now they can't do ANYTHING until that intervention has been tried for 6 weeks and sometimes longer than that...also the RTI time restarts every year. I would ask in writing for the evaluation but realize that the school may still have to prove RTI did not work before they can test...basically more paperwork to ensure the program does not help the people it needs to.
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I didn't know until very recently that the language traditionally used around adoption can feel hurtful or demeaning to birth mothers. I'm glad I know, and I'm glad there are alternatives. I can see, now that I'm aware of it, that "giving up" is probably not the best term to use, and there are better ways to talk about the adoption process and the people involved in it. It isn't a burden on me to make those changes, but I'm also not aware of anybody having taken offense at my use of language before I was aware of it. Having somebody point out that there are other, more preferred ways of referring to a person, or group of people, or certain actions, doesn't mean they are taking offense.
I always feel like I live in a different world that most people (on the internet, at least!) because I just don't run into all of these quick-to-take offense people. I've never met a black person who got upset if you called them black or if you called them African-American. (Yes, there are terms that would make them upset, but I would hope that we'd see refraining from using racial slurs as a matter of doing the right thing morally, not "politically correct.") I don't know if most people take having somebody suggest an alternate, preferred term to mean that person has taken offense, or just know way touchier people than I've ever run into, but I don't see people taking offense too quickly over language use as a particularly rampant problem.
That is what is sad is that all the terms I picked are both appropriate language...possibly even PC but that there are people that choose to be offended by one or the other of the terms. That's the problem with PC language how do you guarantee that the words you use are not offensive to the person that you are talking to, you can't unless you ask what they prefer. But if you don't use the PC language that has been select by someone possibly unrelated to the actual situation then you are automatically offensive because many of the nonPC things are more offensive than the arbitrary PC terms. Its a lose lose situation.
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I think it is also the world of PC language. Honestly there are so many things that can offend people that you never know it it will...IE birthmother/first mother or African American/black. Sometimes I think we are too PC.
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Odd...somehow my facebook page has not changed over yet...wonder if they are phasing it in or I am just lucky...hmmm
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Playon gives more options but that is mostly tv shows not movies...and it uses netflix and hulu
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I think this is the end of DVD's by mail at least...and very possibly the end of netflix unless they improve their streaming a lot and quickly including getting Starz back.
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Well just checked and found out a book I really want is advertised as 1 dollar...but when I add it to my cart it is full price...now I am super bummed...makes not want buy any of their books...and I had like 15 in my cart...grrr
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There is an ebook called Montessori at home that I have that has some really good ideas, it lists the "have to" buys and talks about ways to make other things. Its at montessoriathome.com It is 8 dollars to download. I have really enjoyed it and feel like it was a nice way to integrate montessori with my kids.
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DH is sterile...no chance of bio babies...most of the time I am content with adoption...but every now and then...mostly when the thought of waiting to adopt gets a hold of me I think how nice it would be to get pregnant and know more than likely 9 months from then I would have a baby as opposed to the nebulous maybe someday we will be selected by a birthmother and have another baby. So most of the time it is fine, its just that God's timing thing that makes it really hard.
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Thanks, I got some more official information in the mail today, it is epilepsy officially...we are scheduled for an MRI next Fri (they are squeezing us in because our insurance deductible restarts on Oct 1). From there we are getting weekly follow up phone calls from our primary doctor and an office follow up in 1 month, unless it comes back abnormal. They are not doing the blood test mainly I figure because they are not sure if she will cooperate with a blood draw. So I will keep on top of everyone to make sure that we can get in sooner...and hopefully this will have a very happy ending right.
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My daughter is on Keppra and it is HELPING her behavior as well as seizures.
I would make sure that you get a top notch pediatric neurologist--even if you have to travel a few hours to see one. Take another adult with you to the appointment so that they can examine dd and then have the other adult take her out of the room so that you can talk to the doctor with out interruptions---believe me, I know what a fit can look like in the doctor's office and then nothing gets discussed well.
Write down your questions, concerns, any birth family history--prenatal exposures, medical concerns, etc.
Given some other things going on, the doctor might also want to check for various genetic and mitochondrial issues (most done with blood test) to see if they can determine the reason behind the seizures--along with the MRI, etc
I believe she was adopted through foster care, right? If so, make sure that her adoption medical subsidy is brought up to speed and you might qualify for Children's special health care services which can provide respite, mileage pay for doctor's appointments, extra insurance, etc.
Thank you...sadly the first neurologist appt we can get is in Jan :( Thankfully the dr we are seeing for child development was savy enough to order the overnight EEG and insisted it get done quickly because of insurance stuff. So now we are waiting...but we are on the wait list for the neurologist and can be there within an hour if they have a cancellation. We have done a genetic screen and the neonatal panel and sadly have no birth history :( I am really hopefully that my daughter will have a positive response to the Keppra.
All my kids have had abnormal overnight unmedicated EEGs - SillyAutismMan the worst. His are in the language processing part of the brain, which would explain a lot :glare: He did not get a proper diagnosis until he was over five years old and by then a lot of damage was done. But it is 15 years now on Depakote and as long as we keep his levels high he has normal EEGs and can learn/speak.One of the girls had a similar EEG pattern but since we knew what to look for she got started on meds a lot younger than SAM, and is now a normal high school freshman. She was able to wean off meds after a year and be fine.
Yet another girl had a much milder (?) EEG and a short dose of meds was all she needed.
What part of the brain is showing the abnormal activity?
Thank you, I believe the Dr said that it was in the temporal lobe...which could honestly explain the odd behaviors that she has...so we shall see.
It is good to see that this is not an unusual thing to happen although unexpected. I am grateful that it appears with medication it can have a very good prognosis. Thanks to everyone who answered.
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What kind of seizures? What medication/s/? Some of them are worse then others. My 4.5 year old DD stared medication at 1 and just recently weaned off, I know there are other moms on here with experience in this, too.Are these epileptic seizures? My son has non-epileptic seizures, he has dysautonomia known as RAS here. I know at least one kid with dysautonomia who has seizures in their sleep and medication doesn't help. I know sources of good information about my sons sort of seizures but may not be any help to you as I get the sense you are talking about epilepsy, but let me know if it is any use and I will post them.
Honestly I am not really even sure what kind of seizures they are, dd was in the midst of a MAJOR meltdown...the word epilepsy was not used in describing it. Basically the Dr (not the one we went to see) walked in and said we need to put her on seizure med, that she had spikes on the EEG that indicated that she was having seizures mainly while asleep. Mind you they didn't even read the report (from 2 weeks ago) until this am so there may be more information forth coming but so far not a lot.
Right know they have put her Keppra? And we are suppose to set up an MRI to rule out other things causing the seizures. So I am just trying to learn what I can with the limited information we have right now.
Thanks
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My ds had absence seizures when he was young (from 3-5 maybe). Often they happened in his sleep. The meds stopped the seizures and he (asd) gradually stopped having regressions and his behavior improved. He was on meds for about 3 years. The only negative was that the meds made him more tired, but since he didn't sleep much as a kid, that wasn't all bad (helped him sleep a little more). When he came off the meds things took another big step forward.
For us, discovering and treating the seizures was a very positive experience. Understanding the cause of some of his issues and having those resolve - terrific, encouraging, and even worth the sleep deprived EEGs and medicine side effects ;)
Thank you so much! I am glad to know that it was a very positive thing and that it was not something he was on forever. I am still very surprised that she has seizures but hopefully the medication will be successful and that it will end up so positively!
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Does anyone here have experience with sleeping seizures?
I just found out that the EEG we did thinking we were ruling out 1 reason for dd's odd behavior just came back positive for seizures while she was sleeping. I wasn't able to get a lot more information from them because dd was throwing a fit...they said they will call later but I am curious about experience here.
We are starting her on anti-seizure meds but one of the side effects is bad behavior...so we will see what is going to happen.
Basically I am looking for more information and it will be ok stories.
TIA
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Rotorua, Aukland, many of the beaches are fun....as for 10 days I was there for 6 months and feel like there was so much that we could have done.
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If you are very careful you might find an agency that "rolls" funds...but they are usually more expensive...because they offer all the support/payments/counseling for any expectant mother considering adoption but the adoptive parent only pays money to the agency, possibly at match so yes before placement, but if the match fails then the agency "rolls" the money over to another match until there is a successful placement at which point the remainder of funds are paid in full. This takes care of the paying women to have a baby but only if they place thing. But to have an agency do this they cost more because the adoptive couples are paying for all the women who get help but don't place along with the support of their adopted child's birthfamily.
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Oh yikes! I have friends in the area--but I've had no phone, Internet or vehicle for the past couple days so I didn't know *any* of this. Maybe I should call the W. Leb library before heading down like I had planned this afternoon...
It appears that basically everything is open except for JcPenney's (and surrounding stores) that got inundated. Water has gone down thank goodness! Now it is just time to clean up...I really feel for the families that have lost their homes though.
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100% infertile...dh is sterile...we wanted children (plural) so the only option to parenthood was adoption. Now we have 2 AMAZING children but dd is amazingly special. Ideally we would like 4 because that is what we have always wanted before we learned of our infertility...but we don't know if that will happen because dd is a handful and dh isn't sure he could handle the pressure of another baby. That said I love the way Resolve (national infertility organization) says that adoption is NOT a cure for infertility only a cure for childlessness. We have been cured of childlessness but not infertility. Sometimes we still ache for the children that may not come into our home whether through birth or adoption and yet we pray for the opportunity to be parents again however that might happen. Oddly enough family planning is a very private matter that people seem to think they should be able to comment on no matter how appropriate it is.
SPD... hyposensitivity?
in The Learning Challenges Board
Posted
Not Oh Elizabeth but I have my hyposenstive 4 year old in OT and it is wonderful. Basically there is a lot of crashing and banging but they are also working on body control and awareness. They will also work on her fine motor which is really bad. So it has been an amazing thing to have her involved in.