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Kim in Appalachia

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Posts posted by Kim in Appalachia

  1. 2 hours ago, Night Elf said:

    Okay thank you everyone. I'm completely overwhelmed and my brain cannot process all of this. I emailed his psychiatrist about the testing needed to see what she says. I also told her I was worried he wouldn't qualify for an autism spectrum disorder diagnosis under today's guidelines. That, of course, would end all of this and he'll get no assistance. It's very upsetting.

     

     

    ((((HUGS))))) 

    I'm sure this is all overwhelming.

    I've know a couple of people who have gone through this for their adult children (so over 18) and getting the official diagnosis helped.  The one family, the child is very high functioning, but still qualified.  The child is currently enrolled in college, and receives support for that, including a person that helps the student with scheduling and study skills. 

      

     

     

  2. 1 hour ago, Night Elf said:

    Yeah he was a 4.0 student in both high school and in the 4 college classes he took. He just doesn't like doing the work. He says it's boring.

    When he was diagnosed with Aspergers at age 9, it was a simple questionnaire, front and back of one piece of  paper that I filled out. Then when he was about 12, I took him to a private psychologist for proper testing. The report I got back had his name throughout half the report and someone else's name in the other half. So I couldn't trust that report because I believed it to be a standard form they were filling out and not really personalizing it for him. He hasn't had any other testing. 

     

    You need the proper person for testing. You can ask your psychologist if he/she is able to do a full neurodevelopmental evaluation or if he can recommend someone. It needs to be done by someone qualified/licensed for it.  If you have disability services (for adults) in your area, they also may be able to help you connect with the right people. It does involve a questionnaire, usually a couple of them. It should also involve testing, maybe the BOT-2 or a Sensory Integration test. Different tests are age dependent, and I'm unsure which one should be done for your dc.    

    And just because Asperger's is no longer on the list, it does not mean your son would not be diagnosed with ASD.  It's now all under 1 Dx, it's just a spectrum. It's not any more difficult to "fit" within the diagnosis. 

    • Like 2
  3. 2 minutes ago, Night Elf said:

    Thank you. I'll have to contact his psychiatrist for the information about testing and IQ scores and stuff like that. He was tested, and not even as fully as some people I've seen on these boards, when he was 9 years old. I don't know if he would qualify under the current DSM IV guidelines. His psychiatrist will have to help me figure that out.

    Also, the application mentions needing to provide a medicaid or medicare card. He has neither. Does that matter? He lives with us and we provide more than 50% of his support and DH makes a high salary. Ds has money saved up from his last job that he uses but we support him mostly.

     

    You will need a full eval.  Once you have the eval, I believe you can then get medicaid, but I'm unsure and it depends on the state.  But you will need the eval for any services.

    • Like 3
  4. You have a child with a disability.  You are going to have to advocate for him.  That means dealing with a lot of bureaucracy.  He needs to get on SSI, he will need a case manager.  I don't know if you have his disability fully documented but you need that too.

    You need to work now to get things in place so that someday he could live either independently or semi-independently.  You can't always trust that he'll have family around.  I don't mean to sound harsh, and from reading the thread, I'm guessing you've heard some of this before but you've been unwilling/unable to act.  Push for services. There are people who specialize in helping those who are disabled find work, and that includes people on the Spectrum.  You are only going to frustrate you son, your dh and yourself.  He will keep quitting his jobs, because he is lacking the proper support.  Kroger is an excellent place for someone on a disability to work.  But you have to have him hired that way.  They need to know what protocols to follow.  There are ADA protocols for ASD employees.  But if the job doesn't realize it's an issue, they will not accommodate. 

    I really don't mean to sound harsh.  But I think you are only going to frustrate your son as well as create a bad work reputation for him unless you get the proper help.

    • Like 13
  5. Yes, get the running shoes.  I know you're not going to run, but running shoes have the best support.  Also, I second the Superfeet recommendation.  They help. I think you do want the green, but go to your running store and ask them.  I used superfeet for years (I now have custom orthodics) and they were helpful for keeping my heel from slipping in the shoe.  

    I'll add that I wear my running shoes for weights.  I'm unsure what you mean my mat work.  If you normally leave shoes on for it, then yes, the running shoes will work too.  

  6. 12 hours ago, wintermom said:

    Ladies, just a word to stay safe out there when you are running, walking and biking. Watch out for cars! There are more and more incidents of fatalities all the time. My 83 year old marathon running uncle was out biking this week and was hit by a car. He never regained consciousness and passed away yesterday. Very sad and shocking, but at least he was doing something he loved. He had successfully battled 5 different cancers over the last 20 years, and he remained the most positive, enthusiastic and God-loving man I've ever known. I will miss him deeply.

     

     

    I'm so sorry for your loss.  

    Cycling makes me nervous, more than running. I do not cycle, but my dh does.  People texting in cars is the biggest problem, also older drivers.  It's scary.  

    • Like 3
  7. I've ran a couple times this week and did some yoga.  My shoulder and elbow have hurt so I took a week off from lifting. I plan to hit the gym tomorrow.  I've also been having hip pain, probably from running more.  The last 2 nights have seen me rolling with a foam roller and a lacrosse size ball all over my body.  Getting old is annoying.  

    • Like 3
  8. I did run yesterday and it felt great.  It was 2.5 miles, nice and slow.  I also did some yoga in the afternoon before I started studying. I'm hoping to keep that up.  

    This morning I went to the gym and did weights.  It was the last day of Stage 5. ? Since I'm running on my other days, I switched to kettlebell swings at the end of my workout.  I forgot how much I love those. 

     

     

    • Like 3
  9. On 8/29/2018 at 8:19 PM, lmrich said:

    @HollyDay so sorry about your injury. That is a tricky one. Some say to ice; others to heat. Some trainers say to stretch; others to not stretch. It just takes time. 

    I had my food allergy testing done - dairy, wheat, rice, broccoli, peppers, cabbage, lobster... The rice and wheat make it tricky as most gluten free foods have rice flour. I will figure it out. And, seriously, broccoli! I hated brocoli as a kid, now it is (was) on my plate two times a week at least, and it is in my favorite vegan protein smoothie. 

    My foot has been rather bad so I am not walking every morning. I have been lifting weights three times a week. 

     

     

    That's too many things to be allergic to. ?  So sorry. 

    • Like 3
  10. School has me busy, and the all of the sudden, I'm having trouble sleeping again.  My dh was right, it's stress. ? 

    I did do yoga Tuesday morning and this afternoon.  I'm going to attempt more yoga for the stress.  If I sleep tonight,  I plan on getting up and running. Fingers crossed. 

    • Like 3
  11. I ran yesterday and this morning I did some yoga.

    It will cool off a little by mid October.  It's not normally humid here, which is good.  I don't think I could handle that. ?

    Soror, glad the girls are home.  Is you dh currently taking classes? Are you? financial stress is horrible.  

    • Like 2
  12.  

    While I agree that the ER doc had to take it seriously, I also think it was not right to tell her it could be MS.  Just refer her back to a regular doctor to start being evaluated for other issues.

    and ((((hugs)))))) I have a dd very much like that.  She does have fibromyalgia, and has a good doctor near her college. He has been terrific.  Someone who listens, is patient, and can redirect. 

    With my dd, I tell her sorry that she's hurting. I then recommend NSAIDs and ice or heat and a little extra sleep.  

    And I recommend a good massage therapist over a chiropractor.  Just my 2cents. 

    • Like 2
  13. Back to the gym today! The last 7 days have been crazy. We moved my ds18 into college, which was so emotionally exhausting. My dd20 went back to college too.  So we are down to just 2 kids at home. It feels so weird.  The house is quiet.  We barely need any food. (I have kid, but the quantity is  a lot less).   We are finally a normal american household. ? ? 

    My other 2 started school yesterday. I go back to school next Tuesday, so I have a few days off.  I cleaned that house like a crazy woman for 2 days, then carpet cleaners came and did all my carpets and my living room furniture.  I am now enjoying reading a book.  For pleasure.  Not for school. ? 

    Anyway, for my workouts, I PR with my dumbbell snatches.  I did 32.5# My shoulder and elbow have been hurting, so I need to take time to work on that.  Lots of rolling on a hard ball to work out the knots. 

    Hoping to run tomorrow, but darn, it's been so hot here.

    • Like 5
  14. On 8/21/2018 at 9:23 AM, OH_Homeschooler said:

    She's 14. She's not ugly. In fact, she's quite pretty. She has self-esteem issues (obviously). She has so many amazing qualities. She's on Prozac for depression and social anxiety but she is between psychiatrists right now. Her appointment with a new one is scheduled for December. She's been in counseling for the depression but that didn't help much.

    I'm at my wit's end. I don't know how to help her. She'll say several times a day "I'm ugly." That's just what she says out loud but I suspect she has a constant inner monologue saying that. I've tried arguing with her and reassuring her that she's not ugly. I've tried asking what she thinks makes her ugly. (She is focused on occasional acne, but that's basically something she's going to have to live with, unfortunately. I've offered to get her cover up, but that seems to offend her). I've tried reasoning with her. I've shared compliments I've heard from others.

    I don't know why she's so focused on this. Perhaps it's because a former friend of hers stated publicly that she's ugly and it cut her deeply, especially given her social anxiety.

    But what can I do to help her? This can't be totally uncommon. I'm leaning toward just no longer acknowledging it as that may be reinforcing it. Or does she need the constant reassurance and should I keep playing along? 

    Anyone BTDT? Any advice on how to approach this?

     

     

     

     

    You say, "I'm sorry you think that.  I don't agree, I think you're attractive."  Then change the topic.  Do not keep discussing it.  Do not get in an argument about it. In fact, you can even stop the sentence with, "I'm sorry you think that."  And leave it there.  

    You need to not keep feeding it.  Let her have a safe space to vent, just hold her or give her a hug when needed, but don't let her stay in that thought."

    And to add, I was like that as a kid.  It got worse certain times a month. There is no logic for a 14 year old, especially when it comes to appearance. 

    And I agree, you may want to try a new therapist.   

  15. I ran for 30 minutes on Sunday and this morning I went to the Y for some lifting.  I'm on the NRFL4W stage where the reps are low, so it's been fun to be able to increase the weight.  I did 82.5lb lat pull downs, which made me feel strong. ?  

    Studying all day today, finals tomorrow. 

    • Like 4
  16. no pictures but,

     

    I have blinds with black out curtains.  The blinds are Home Depot, the curtains are JCPenny. 

    It's ok.  I would prefer some sort of shade instead of the blinds.  I had some Roman shades, black out style, in my old house, and they worked great.  

    I'm not a curtain fan, but the room is neutral color and the dark blue curtains add some color, which is nice.

    Happy shopping!

  17. 16 hours ago, FairProspects said:

    Well, I'm now down 11 lbs. in a month, and the difference between my start picture and yesterday is noticeable by my nutritionist, my friends, and everyone. I'm so much more toned and athletic looking. I tried on my fall clothes and virtually everything is too big. If anyone wants several pairs of Zella workout leggings in a M, I'd be happy to send them on to another working out WTM'er for shipping. I also only had to do one minor weight modification in my exercise class this morning, but otherwise I did the ENTIRE class as coached. That's a first for me in the 6 weeks I've been working out there and is HUGE.

     

     Hooray! Way to go!

    I wanted the party emoji and I'm sad it's gone. 

    • Like 2
  18. It's been a rough week because I've struggled to get any sleep (stress? hormones?) 

    I made it to the gym once.  I'm on stage 5 of NRFL4W, which has very low reps, so I was able to increase my weight which was fun and encouraging. 

    I have my finals this next tuesday, so the next 4 and half days is lots of studying.  I hope to get to they gym saturday and maybe sunday. We'll see how it goes. 

    • Like 2
  19. I don't have a lot of ideas to offer, and I've never built a place specifically for aging in place, but I have a couple of thoughts.

    Chemical sensitivity and flooring: You may want to consider tile. Wheelchairs destroy every other type of floor (I just learned this in my class! and from someone who has extensive experience) OTOH not everyone ends up in a wheelchair and tile floors are tough on backs and when falling.  

    Make sure the doorways to the toilets are wider.  Often a builder will put wider door everywhere else in the house except to the toilet.  I have no idea why.  

    You want a walk in shower, but you probably already thought of that one. 

    Don't put a microwave in the wall.  It should be on the counter.  Wall ovens can be ok if they are not high.  You never want to be pulling hot things down.

    Think about clearance in the kitchen. If there is an island make sure it is larger than a wheelchair space away from the rest of the counters.

    That's all I got for now.

    • Like 1
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