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Untwisting Perceptions: Autism, Parenting, and Victimhood by Shannon Des Roches Rosa


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#1 Canadian Mom of 2

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Posted 20 March 2017 - 10:15 PM

Untwisting Perceptions: Autism, Parenting, and Victimhood by Shannon Des Roches Rosa (Thinking Person's Guide to Autism)
http://www.thinkingautismguide.com

I found myself agreeing with pretty much everything she wrote and thought I would share it here.

Edited by Canadian Mom of 2, 20 March 2017 - 10:16 PM.

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#2 Pegs

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Posted 20 March 2017 - 10:24 PM

Thank you for sharing.
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#3 Canadian Mom of 2

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Posted 20 March 2017 - 10:49 PM

In it she also links to an older blog post that is equally thought provoking.

Autistic Lives: Not Less Valuable
http://www.thinkinga...s-valuable.html

Edited by Canadian Mom of 2, 20 March 2017 - 11:04 PM.


#4 Crimson Wife

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Posted 20 March 2017 - 11:02 PM

Caregivers who murder their disabled children/spouses/etc. show the failure of our society to provide adequate support services. Obviously it is NEVER ok to snap and harm another human, but if there weren't so many obstacles to getting respite hours and mental health counseling/therapy funding a LOT of these tragedies could be prevented.

 

The author of the linked blog seems to be lacking empathy for overwhelmed caregivers. :thumbdown:



#5 Canadian Mom of 2

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Posted 20 March 2017 - 11:10 PM

Caregivers who murder their disabled children/spouses/etc. show the failure of our society to provide adequate support services. Obviously it is NEVER ok to snap and harm another human, but if there weren't so many obstacles to getting respite hours and mental health counseling/therapy funding a LOT of these tragedies could be prevented.

The author of the linked blog seems to be lacking empathy for overwhelmed caregivers. :thumbdown:

No she isn't. She talks about the absence of supports and services also. And she gives credit to her supports as being her source of strength. She says that she is not strong without them. I think you may have missed some of the points she was trying to make!

Edited by Canadian Mom of 2, 20 March 2017 - 11:14 PM.

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#6 frogger

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Posted 20 March 2017 - 11:43 PM

She did give a lot of credit to her support.

The statement I quoted below has been something I have believed for a long time and has caused battles between me and other family members who want everyone to be normal. This has been frustrating even in their reactions to my NT children and I think it is something parents of NT children could remember too.

"And it took years, but I eventually realized that parenting is not about fixing. It's about supporting, accepting, finding best practices, and fighting for your kids' rights. It's about unconditional love. And it's about putting your kids first. About making other people see your kids -- and kids like them -- the way you do, the way every kid deserves. About accepting the changes kids bring to your life, even if they weren't what you expected."
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#7 Canadian Mom of 2

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Posted 20 March 2017 - 11:53 PM

She did give a lot of credit to her support.

The statement I quoted below has been something I have believed for a long time and has caused battles between me and other family members who want everyone to be normal. This has been frustrating even in their reactions to my NT children and I think it is something parents of NT children could remember too.

"And it took years, but I eventually realized that parenting is not about fixing. It's about supporting, accepting, finding best practices, and fighting for your kids' rights. It's about unconditional love. And it's about putting your kids first. About making other people see your kids -- and kids like them -- the way you do, the way every kid deserves. About accepting the changes kids bring to your life, even if they weren't what you expected."


Yes! That was my favorite part. The one that touched me as well. The one my own family back home could never get either. Sigh! It is these people in life, our extended family, that we hope will be by our side while we try to show the world the value of all children. All our children, non-NT or NT. It is about loving and accepting them for who they *are* not who we wanted them to be.
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#8 Canadian Mom of 2

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Posted 21 March 2017 - 01:08 AM

We are part of society. We are the ones that help shape perceptions, for better or for worse.

Past and Present Perceptions Towards Disability: A Historical Perspective
http://dsq-sds.org/a.../view/3197/3068