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Joyful Journeys

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Everything posted by Joyful Journeys

  1. Bingo. He does have decent joint attention and such. He definitely doesn't fit the classic idea of a child with autism. But she can't make judgments about that really having only accessed his speech for 45 minutes and neither can the school psych that took none of his behavior at home into account.
  2. Yes! She actually went so far as to say everyone that goes to teacch gets an autism dx so take it with a grain of salt. I kind of was comforted by that, thinking that with progress -and intervention he might not meet the criteria. They sent home tons of forms, CARS-2, Adaptive behavior scales, and open ended questions to describe him more in my own words. Then, they met him for an hour and THEN they said ok, he can come for the full eval. I'm sure all of that weeds out the folks that just have other things going on so that yes, they are likely only spending their limited time doing an all day appt with kids that truly need it and most of the kids that go there come out with a dx. Apparently one of the authors of the ADOS works there so I'm figuring they know what they are doing!
  3. I guess I would say to anyone, don't listen to any professionals until the testing has been done. Whatever glimpses they get of your child cannot replace what you observe at home and what an in depth eval like the ADOS can display. No less than 3 professionals, one a pysch, and two speech therapists said there was no way he was autistic. But it was the most cut and tried conversation where he clearly met the criteria when that was looked at specifically. It doesn't matter if he points and will occasionally have good eye contact. The deficits across the board are glaring and the repetitive behaviors and restricted interests and ever increasing rigidity, seal the deal. Off we go to now get his IEP updated and figure out next steps.
  4. Just wanted to update... My son at 3 yrs 5 months was diagnosed with autism spectrum disorder at TEACCH today. Thank you all for your help and pushing me to get the testing done sooner than later. :grouphug:
  5. Yes, OT said Moro! I just realized I didn't put that in my post. So yea, reading all the symptoms it was a big a-ha moment, she goes from just fine to complete breakdown in 5 minutes. Socially I'm very concerned, I mean it could be her just being an introvert, but if almost any kid talks to her she physically retreats. She told me yesterday she hates going to stores because there are so many people and people just scare her. :ohmy: I'm just so floored with the more and more she tells me she feels and I think sending her to PS in this state would be akin to torture. Ah, so the evals aren't standard either, ugh! I think I definitely want a structured progression. Better get her set up to start next month. OT recommended a "wiggle seat" too as just sitting in a chair is apparently super hard beyond just not wanting to eat dinner. She frequently will be at dinner with one foot in the chair and one of the floor!
  6. It really does appear to be a CA thing. I'm not going to worry about it. We've only been a psychologist, not an NP, and now I kind of wish I had, though I believe she ran all the possible tests that would be needed. On the reflex point, I think you're right. I can't do that at home myself with DD6, so I'll have to figure it out. We went to visit DS's prek today and again she freaked out. She goes into fight or flight mode so easily, stressed by noises, crowds, other children in general in addition to her inattention. She's just very socially immature and anxious. The ATNR presents with her awkward handwriting grip which I have no idea how to correct.
  7. My 8 yr old doesn't have ADHD as far as we can tell. She had a computer eval through the ped (same place that said dd6 DEF does) and she passed with flying colors. She can attend really well. Spelling then, must be vision. If she's so focused on having the letters the right way in her mind (during testing she hardly was able to say when they were reversed) then it stands to reason that spelling is super hard.
  8. How does being African American affect this? She is half AA, half Mexican American. It does make sense. The psych said on paper that the raw scores alone would qualify for SLD written expression. But that there is a clause in the DSM that if the child has not had exposure to some of the tasks in the testing, that should play a role. I find it kind of silly though since odds are even public school kids may not have been asked to do these sort of things before? For instance building a sentence out of two: The dog is brown. The dog likes to run. Combining them you would say, "the brown dog likes to run." She answered instead "the dog is brown and the dog likes to run." I asked her to write a sentence about her favorite thing about the summer as another poster suggested. She wrote "i like watr becus it is cool." I just don't know that there's anything wrong, but then again, I've not asked for more before.
  9. Yea sorry, I understand, I appreciate y'all taking the time to respond! I know you're busy. No language concerns ever! I've always thought she comprehends quite well. She has done narration with WWE (briefly) and ELTL (about a year off and on) and done well. All last year we read great chapter books aloud, she was picking up things in books like A Wrinkle in Time that I didn't even put together. She understood funky syntax like Alice in Wonderland, it's been great. But then for her to try to spell apple "alpl", I was just a little thrown, it's odd she'll occasionally throw extra sounds in or delete them. And reading out loud can be just painful to hear sometimes with the lack of fluency, but other times, she does fine. She picked up the Trumpet of the Swan, her favorite book, and got through a few pages reading to herself. She tells me she skips words she doesn't know, which is likely a lot, but I'm happy that the desire to read is starting to emerge. Still, I just want to spend the very limited time we have uninterrupted (we seriously can get next to nothing done with DS around) I want to make it effective. So Barton 1, Singapore (I've considered letting her try Beast academy too), maybe Bravewriter? I want something that gets us writing something every day that's not copy work. I wonder what OT issues there could be though? She doesn't jump lines when she reads but she's currently doing exercises that has her finding specific letters in random words, to help her hone in on the words I suppose.
  10. I've not googled causes no, now I'm curious. I mean to me, if she has average to high scores on her phonological awareness and memory, how would she be dyslexic? Is it not a phonological disorder? And that's why I thought maybe we didn't need Barton, since it's to remediate phonological issues yes? She read the nonsense words fine, which was surprising as just a few months ago it was difficult. Single words she does ok, but reading in paragraphs are hard, hence my leaning now to it being purely a vision issue. Yes, I think you're right. She might not cross over into a disorder, but just needs very systematic practice..over teaching..for things to stick as if she's not necessarily processing it right then, it will take a lot of exposure for it to stay. She's artsy, and likes to design clothes and is into math and building (minecraft!). She's good at problem solving type things.
  11. It's actually 3 of them. DS has an autism eval Wednesday. It's just all falling down over here lol. I don't suspect ASD with my girls, just with my 3 yr old son. I don't think OT will be covered at all for reflex issues. I was just thinking that since DS is in special ed prek, perhaps we can wait a bit for his therapy to start and do DD6 first for a couple months to get the exercises down and routine so that way we can continue on our own. That wouldn't be such a shock to the budget. Yes, she had a WISC and for the life of me I can't find the raw scores. She's mailing the full packet soon so I'll have another copy. If I recall, processing was on the lower end. You mention 2E..which I need to google as I'm not sure I understand. Does that mean gifted, yet with an LD? She scores super high in some visual/spatial things, doing some high school level patterns on the WJ and such. IDK what scores she would need to have to be labeled gifted though? The pysch honestly, wasn't that helpful. I likely will go elsewhere in a year for our achievement testing and look at some of this again with a different person.
  12. Preaching to the choir! My mom has ADD. She told me straight up my dd needs it..yesterday lol. That a whole world could open for her. But I won't do it without exhausting all possibilities first. If reflex work and some supplements and modifications can help, we'll do that until it's no longer enough. Then I can come back to DH and say LOOK at her, struggling still with these specific things. She's only 6 so, I also have the she's just young thing in my head. She had a speech delay as a child and since she has never had her hearing fully checked, I want to make sure all is well there. Her speech tests within normal limits now.
  13. Thank you! VT thinks about 6 months. We will see where she is at 3 though and reassess. I'm going to do the test again now that's it's been a while to see if there is any change. She wouldn't get the sounds wrong, just forget them kwim? Barton is so expensive too and dependent on me doing it well. I'm just so overwhelmed. But since I have it its worth a shot. I guess it'll be pretty evident early on if it's a waste of time. With OT, I will definitely get those books, simply because all 3 of them need therapy and copays add up crazy fast :( The OT was so nice too, I know DD would enjoy it, sigh.
  14. Resources are divided among the counties and then among each school and then to each child. If and only if there are resources left over for homeschoolers to tap into, they can. There is not enough even for the kids enrolled, so no, we do not have access to therapy. We were able to have her tested for free under federal law, IDEA, but there is no federal mandate for schools to then offer services to students not enrolled. In our state, we are considered under the same umbrella as private schools. I will ask her to write a sentence :) The switching of the math problems, intrigues me too. With Singapore we almost always write it laterally unless we are doing the standard algorithm on purpose for a lesson. She does well in math, so long as it isn't timed. Timed things yes, tear her apart and bring her to tears.
  15. As homeschoolers we have no acces to school therapists. We will stay home this year while she goes through VT. For dd6, Lord willing I can get her some OT too. DS3 goes to public special Ed prek right now which gives us a couple hours of quiet time a day to do schoolwork. I need that to be effective, planned and easy to execute with my now toddler running around. I think we can definitely attack WM at home. Thank goodness for that. Plus the metronome at the VT should help I think? In on exercise she had to look at a B, hold up her left hand in the shape of a b, then pick up a ball and throw it at the B on the wall. There was a D there too, as well as P and Q, so they went back and forth at random. I thought that was pretty genius. Dancing Bears looks promising, I'm going to do those placement tests for both of them tomorrow too.
  16. I've suspected working memory issues after the Barton pretest tripping her up. Manipulating the tiles while keeping the sound in her mind, it was painful to watch the first time. The VT ran a couple tests too and on one she did fine and the other she very poorly. Combined with the below avg working memory subtest score in the WIAT, it seems to follow that's her issue. The school Pysch (I used them since they were free first) did not run the working memory subtests from the Woodcock Johnson, despite the fact that I explicitly asked for that to be tested. Those scores showed a clear discrepancy between IQ and achievements, all reading/writing was low but again, she chalked it up to her not having exposure and wouldn't give her a SLD dx, she has no IEP. So I'd have to come back to them with my private results to start this process all over if we ever decide to enroll.
  17. Yes, so much of what she does is classic. Especially not being able to segment words well. Like take a chunk of a word off and move it to the end or, eliminate a sound and tell me what's left. Homeschool! I just know that since we move a lot, and right now DS3 is giving me a very hard time (autism eval next week), I may need to put them in PS. I'm beginning to reach the limit of what I can take and I don't have support from my husband to HS and with all these issues I sorely need it. That's the last box to check! I was hoping that all of these tests would be pretty clear so I could avoid it. DD6 definitely needs it done in the spring when she is 7, but now I wonder about DD8. I'll give them screening again in the morning. I appreciate the recommendation, my main question is what to in fact DO now. I can't just look at 3rd grade curric and throw it at her, and I don't know how to fill in the gaps when on the surface she would skate by totally fine.
  18. Aside from the reversals, I'd say her handwriting is quite nice. What you're saying makes sense though! I wonder how else I can tease this out at home.
  19. Well you have just totally blown my mind. :laugh: On the test, in the section for Rapid Symbolic Naming, those were to two subtests she scored below average on, classifying a "normative weakness". I've not had a chance to talk to the psych that did this one, she was out of town due to a death in the family at our follow up. So I just have the raw scores.
  20. My 6 year old DD was flagged for ADHD last month. They suggested meds. We declined thanks to my husband and some advice here. I wasn't opposed to trying it, as she clearly struggles and I feel she isn't living up to her full potential. We had an OT eval and turns out she has Moro and ATNR retained. The symptoms of both describe her to a T, I'm floored at how she ticks off every box almost in some way or another. I'm not sure we can swing OT for her, with everything else, so are their resources available for me to do this at home? Or is this something I really just have to outsource? I just started a business at home, and a big part of doing it is so I can afford everyone's therapy, but it will be some time before that is profitable. As far as school goes, her attention span is so short, I'm not sure where to start. She will happily do reading eggs and math seeds online and she seems to be retaining information. I feel like that combined with good read alouds (whether she pays attention or not) and working on her grip somehow with copywork ( I was going to try HWT) will be enough for 1st? I'm just not sure how to get her reading on her own, I would love the structure of a program, but the things I'm familiar with seem very teacher intensive, and I'm terrified of dropping the ball with something like AAR.
  21. Hi all, I'm back again with almost everyone's scores from the testing we've done. Overall I would say that I'm pleasantly surprised at the results. For both my girls, they seem to average to above average intelligence and a good foundation to work with. I'm going to make 2 posts in one thread, so that you all (and I lol) can keep it straight. First up is DD8, she'll be 9 in Oct and is starting 3rd grade. She just started VT a couple of weeks ago. She has some visual processing issues, convergence insufficiency and more. They will be doing some metronome work and right now she's working on tracking. They seem to always employ some multi sensory work with each visit. She failed the Barton pre test (later squeaked by) last year and I've suspected more than just vision so I took her through the schools, and then privately when I wasn't happy with their testing. So in the last 4 months she's had the WJ, WIAT, CTOPP and Test of Written Spelling and some other shorter assessments. Her scores are a bit of conundrum. It seems that her basic phonological skills are in tact, she scored very well on the CTOPP in awareness and memory, however the Rapid Symbolic Naming portion was in the 16th percentile both with numbers and digits. Grade equivalent being 1.7 It would seem then, that the reason she scored poorly on Barton was her working memory issues? Part C was really hard. Granted that was over 6 months ago so maturity I'm sure plays a part and being more comfortable with testing. I am thinking that for her now, it's been a combination of poor working memory and her vision issues that have barred her from obtaining reading fluency. It's a choppy mess where she skips words, inverts beginning and end etc. Her CTOPP tells me it's not dyslexia. What's surprising, though perhaps not, is that her scores indicate dysgraphia, which I honestly never considered. She writes well imo, not quickly, but I guess Ive nothing to compare it to. The psych thought that perhaps since all we've done is copywork, and I've never asked her to free write during school, that this would be why she scored poorly. She also has issues with reversals such that she has to think really hard to make them properly and that slows her down. I didn't realize that letter writing isn't totally automatic. Her spelling is very poor, even pretty typical sight words she can read. The psych was hesitant to label her with SLD writing. Thinking that perhaps with focused practice, she would be fine by year's end. I'm only concerned about a label so much that we always need to have public school on the table, and if she needs accommodations down the road like more time and such, I want her to have that. I guess my question now is what do I do? One SLP suggest an OG tutoring, which we can't afford with VT too. Would that be sufficient to help her with spelling? Will VT likely be all she needs to catch up? What spelling program should we do? What writing program? Does this mean we don't need Barton? I have level 1 here. I have a child reading in a mid second grade/late first grade level, should I still be doing a reading program? I went into this wanting to know whether she has dyslexia or not and man now that it seems she doesn't, I'm even more unsure of what to do!
  22. It's really hard to accept that, you know, well trained mind and all that jazz, but you're right. I never would have guessed I'd still be teaching reading to a 9 yr old 3rd grader. With our last move and all these evals it seems all forward motion has stopped and I can't see the forest for the trees.
  23. Down the rabbit hole I go! I just am trying to handle all of this. I don't want to put them in school, but seriously don't know if I can handle all of this on my own. So that makes 3 kids that each have two therapies to attend every week, when will we actually do school?!
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