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Joyful Journeys

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About Joyful Journeys

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    Hive Mind Level 4 Worker: Builder Bee

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  1. Bingo. He does have decent joint attention and such. He definitely doesn't fit the classic idea of a child with autism. But she can't make judgments about that really having only accessed his speech for 45 minutes and neither can the school psych that took none of his behavior at home into account.
  2. Yes! She actually went so far as to say everyone that goes to teacch gets an autism dx so take it with a grain of salt. I kind of was comforted by that, thinking that with progress -and intervention he might not meet the criteria. They sent home tons of forms, CARS-2, Adaptive behavior scales, and open ended questions to describe him more in my own words. Then, they met him for an hour and THEN they said ok, he can come for the full eval. I'm sure all of that weeds out the folks that just have other things going on so that yes, they are likely only spending their limited time doing an all day appt with kids that truly need it and most of the kids that go there come out with a dx. Apparently one of the authors of the ADOS works there so I'm figuring they know what they are doing!
  3. I guess I would say to anyone, don't listen to any professionals until the testing has been done. Whatever glimpses they get of your child cannot replace what you observe at home and what an in depth eval like the ADOS can display. No less than 3 professionals, one a pysch, and two speech therapists said there was no way he was autistic. But it was the most cut and tried conversation where he clearly met the criteria when that was looked at specifically. It doesn't matter if he points and will occasionally have good eye contact. The deficits across the board are glaring and the repetitive behaviors and restricted interests and ever increasing rigidity, seal the deal. Off we go to now get his IEP updated and figure out next steps.
  4. Just wanted to update... My son at 3 yrs 5 months was diagnosed with autism spectrum disorder at TEACCH today. Thank you all for your help and pushing me to get the testing done sooner than later. :grouphug:
  5. Yes, OT said Moro! I just realized I didn't put that in my post. So yea, reading all the symptoms it was a big a-ha moment, she goes from just fine to complete breakdown in 5 minutes. Socially I'm very concerned, I mean it could be her just being an introvert, but if almost any kid talks to her she physically retreats. She told me yesterday she hates going to stores because there are so many people and people just scare her. :ohmy: I'm just so floored with the more and more she tells me she feels and I think sending her to PS in this state would be akin to torture. Ah, so the evals aren't standard either, ugh! I think I definitely want a structured progression. Better get her set up to start next month. OT recommended a "wiggle seat" too as just sitting in a chair is apparently super hard beyond just not wanting to eat dinner. She frequently will be at dinner with one foot in the chair and one of the floor!
  6. It really does appear to be a CA thing. I'm not going to worry about it. We've only been a psychologist, not an NP, and now I kind of wish I had, though I believe she ran all the possible tests that would be needed. On the reflex point, I think you're right. I can't do that at home myself with DD6, so I'll have to figure it out. We went to visit DS's prek today and again she freaked out. She goes into fight or flight mode so easily, stressed by noises, crowds, other children in general in addition to her inattention. She's just very socially immature and anxious. The ATNR presents with her awkward handwriting grip which I have no idea how to correct.
  7. My 8 yr old doesn't have ADHD as far as we can tell. She had a computer eval through the ped (same place that said dd6 DEF does) and she passed with flying colors. She can attend really well. Spelling then, must be vision. If she's so focused on having the letters the right way in her mind (during testing she hardly was able to say when they were reversed) then it stands to reason that spelling is super hard.
  8. How does being African American affect this? She is half AA, half Mexican American. It does make sense. The psych said on paper that the raw scores alone would qualify for SLD written expression. But that there is a clause in the DSM that if the child has not had exposure to some of the tasks in the testing, that should play a role. I find it kind of silly though since odds are even public school kids may not have been asked to do these sort of things before? For instance building a sentence out of two: The dog is brown. The dog likes to run. Combining them you would say, "the brown dog likes to run." She answered instead "the dog is brown and the dog likes to run." I asked her to write a sentence about her favorite thing about the summer as another poster suggested. She wrote "i like watr becus it is cool." I just don't know that there's anything wrong, but then again, I've not asked for more before.
  9. Yea sorry, I understand, I appreciate y'all taking the time to respond! I know you're busy. No language concerns ever! I've always thought she comprehends quite well. She has done narration with WWE (briefly) and ELTL (about a year off and on) and done well. All last year we read great chapter books aloud, she was picking up things in books like A Wrinkle in Time that I didn't even put together. She understood funky syntax like Alice in Wonderland, it's been great. But then for her to try to spell apple "alpl", I was just a little thrown, it's odd she'll occasionally throw extra sounds in or delete them. And reading out loud can be just painful to hear sometimes with the lack of fluency, but other times, she does fine. She picked up the Trumpet of the Swan, her favorite book, and got through a few pages reading to herself. She tells me she skips words she doesn't know, which is likely a lot, but I'm happy that the desire to read is starting to emerge. Still, I just want to spend the very limited time we have uninterrupted (we seriously can get next to nothing done with DS around) I want to make it effective. So Barton 1, Singapore (I've considered letting her try Beast academy too), maybe Bravewriter? I want something that gets us writing something every day that's not copy work. I wonder what OT issues there could be though? She doesn't jump lines when she reads but she's currently doing exercises that has her finding specific letters in random words, to help her hone in on the words I suppose.
  10. I've not googled causes no, now I'm curious. I mean to me, if she has average to high scores on her phonological awareness and memory, how would she be dyslexic? Is it not a phonological disorder? And that's why I thought maybe we didn't need Barton, since it's to remediate phonological issues yes? She read the nonsense words fine, which was surprising as just a few months ago it was difficult. Single words she does ok, but reading in paragraphs are hard, hence my leaning now to it being purely a vision issue. Yes, I think you're right. She might not cross over into a disorder, but just needs very systematic practice..over teaching..for things to stick as if she's not necessarily processing it right then, it will take a lot of exposure for it to stay. She's artsy, and likes to design clothes and is into math and building (minecraft!). She's good at problem solving type things.
  11. It's actually 3 of them. DS has an autism eval Wednesday. It's just all falling down over here lol. I don't suspect ASD with my girls, just with my 3 yr old son. I don't think OT will be covered at all for reflex issues. I was just thinking that since DS is in special ed prek, perhaps we can wait a bit for his therapy to start and do DD6 first for a couple months to get the exercises down and routine so that way we can continue on our own. That wouldn't be such a shock to the budget. Yes, she had a WISC and for the life of me I can't find the raw scores. She's mailing the full packet soon so I'll have another copy. If I recall, processing was on the lower end. You mention 2E..which I need to google as I'm not sure I understand. Does that mean gifted, yet with an LD? She scores super high in some visual/spatial things, doing some high school level patterns on the WJ and such. IDK what scores she would need to have to be labeled gifted though? The pysch honestly, wasn't that helpful. I likely will go elsewhere in a year for our achievement testing and look at some of this again with a different person.
  12. Preaching to the choir! My mom has ADD. She told me straight up my dd needs it..yesterday lol. That a whole world could open for her. But I won't do it without exhausting all possibilities first. If reflex work and some supplements and modifications can help, we'll do that until it's no longer enough. Then I can come back to DH and say LOOK at her, struggling still with these specific things. She's only 6 so, I also have the she's just young thing in my head. She had a speech delay as a child and since she has never had her hearing fully checked, I want to make sure all is well there. Her speech tests within normal limits now.
  13. Thank you! VT thinks about 6 months. We will see where she is at 3 though and reassess. I'm going to do the test again now that's it's been a while to see if there is any change. She wouldn't get the sounds wrong, just forget them kwim? Barton is so expensive too and dependent on me doing it well. I'm just so overwhelmed. But since I have it its worth a shot. I guess it'll be pretty evident early on if it's a waste of time. With OT, I will definitely get those books, simply because all 3 of them need therapy and copays add up crazy fast :( The OT was so nice too, I know DD would enjoy it, sigh.
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