lollie010
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Posts posted by lollie010
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So sorry to hear. :(
Not a cure, but has she tried EFT for pain management? Maybe even The Body Code or The Emotion Code. I think EFT is the only one that can be done on your own, though.
I will look into this for her. Thanks for the suggestion!
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I would see who diagnosed it. If that's the diagnosis the dr who said that's what it is should be treating it. And dr give treatments to try, if they don't work you should go back and get treatment 2, if that doesn't work go back for a third, forth option, whatever.
Eta if you've seen everyone in your medical community it's time to travel for treatment in other places. Many people travel hours to see specialists to get help for diseases, so if you can I'd travel.
Yes, we are willing to travel. I just have to figure out where to go. She saw a neurologist, who said "well, there is a thing called burning mouth syndrome" and gave her some pain medications that have not helped at all. He doesn't have any other ideas. Its been going on for about eight months and after talking to her today, I think she has lost hope. :(
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There are artificial spit solutions and pain mouth rinses. Can she see an ear nose throat person maybe, or a dental specialist? Does she have a diagnosis like sjogrens?
She doesn't have a specific diagnosis right now. At the same time this developed she developed neuropothy in her feet. So she has been seeing a neurologist and he is the only one who even knows what burning mouth syndrome is. He has run every diagnostic test known and has nothing definitive. He did refer her to an oncologist, but that was because of some protein that was elevated in her blood. Its a real mess.
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Sorry ladies. I was on my phone and couldn't really respond. But, now I am at my laptop and am reading through everyone's ideas. Thanks so much.
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Oh wow! My husband had some of that recently because of a bad oral thrush condition. I just checked and he used the whole prescription. We will call her doctor and ask for it. Thanks.
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She has been to every type of specialist that our medical community offers. No one has offered her any hope of relief and most doctors have just laughed it off. She's begging for help. She will try anything or go anywhere. If you have any ideas we are all ears. And on the slight chance you know of someone who has found relief with a particular medical professional, we will go to there, like tomorrow. :) And this is one reason why I love this board so much!
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Thanks so much for the info. I am excited now. I think we will make a trip to a few of the larger towns nearby. The kids might get tired or riding but, they will survive. I am going to sit down now and come up with a game plan.
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We were planning a quick summer trip to Gatlinburg and a sweet friend said we could use her resort timeshare. However, it is in Crossville, Tennesse. Honestly, I've never heard of it. But, we are up for an adventure or even some R&R if there is nothing to do. I think I have a feel for what we can do around the resort (looks like fishing or golf) but I am wondering what might be close by for a day trip. It looks like about 2 hours to Gatlinburg so we might try that, but if there is anything else within driving distance I would love to know. We will be keeping four kiddos entertained. :001_rolleyes: TIA!!
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There is no way I would subject *my* child to sporting conditions that *I* considered unsafe. Ever. For any reason.
What you are experiencing is called peer pressure.
You have the illusion that a coach has power over your choices regarding your son -- that's not real. The coach is a person. You are a person. You are the smarter person, and you are the parent of your child.
Just.
Say.
No.
(The coach is not the boss of you :001_tt2: )
Lol!!! The coach is my husband. I promise he thinks its as crazy as I do. We offered to forfeit, but everyone chose to play. They did agree to breaks every 12 minutes and they installed misters. Not ideal, but they made it. Last game was changed to around 7:00. So all the complaining helped a little. :)
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They made it through the 10:00am game. My DH and another coach insisted on quarter water breaks, so the kids got through. We will just walk off if we need to.
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We have had concussions, major neck strains, whiplash. This particular league has developed a very aggressive style of soccer. The players are not typically finess players. I have talked with the director about it. He seems uninterested in my thoughts. I am a stay at home mom, but I used to practice law and have a masters in public health. These issues are important to me and I could help if they would listen. :(Good for you in looking seriously at injury prevention. I worked in that field, and it doesn't get the attetion it needs to help people stay active in a safe and healthy way.
Just out of curiosity, what neck and head injuries have occurred in youth soccer?
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I bet after the first game, they will decide to at least shorten the games.
If we survive, I will report back. :lol:
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Thanks for all of the great advice. This league seems clueless about the health of the children. We have had neck injuries and serious concussions that no one was prepared to deal with. This will most likely be the last season my son plays there unless someone starts listening to me about health and safety issues. Just makes me feel sorry for the others who don't know that things can be done more safely. My son plays for another league and when they last played in April games where shortened to 30 minutes with a break, field size was reduced and they only played 4 players at a time. That seemed like wise planning. I trust people like that.
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I am such a weather wimp! I would not be able to be out in those temps and I know for sure that DS would wilt. I will send cooling thoughts your way. The high today where I am is 67F. Take lots of ice and some quart size baggies. You can pre-fill some baggies with ice so that when someone gets overheated, that person can put a bag of ice on his/her forehead and back of neck.
Good idea on the baggies. I guess "weather wimp" accurately describes me, too. LOL
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I'm a Midwesterner, so those temperatures would be pretty newsworthy. We would have dire warnings about staying in during the heat of the day and information about cooling centers for those without air conditioning. I think it's taking unnecessary risks to have kids out there for that long in those conditions.
Maybe I should consider a cross-country move. I would love to head your way!
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When my kids play in those conditions (we live in Georgia, so I understand the conditions) we have a water break halfway through each half. That has been true at the rec level and the select level. I have a friend whose son plays on the state team and national team, and they do the same at state level games. I haven't attended any of his national games, though, so I don't know. They usually do it about halfway through the half when there is a corner kick or goal kick. Kids go over to the sideline and don't leave the pitch, just drink some water. No subs at that time, either. Also, we definitely do Gatorade in these conditions. I have seen a number of kids hospitalized from loss of electrolytes. And we pre-hydrate.
And we also have a tent over the kids for shade.
We recently played one game, not a tournament, and I suggested this to the head of the league because kids were really struggling. He said "no." They didn't have time to schedule extra breaks so the kids would have to make due with the one break at halftime. I think that is part of why I am struggling with the idea. I find the guy who scheduled the thing to be unreasonable in having kids running for 30 minutes straight without even a sip.
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My child has played in those conditions. We bring shade structures for the kids, lots of water in coolers to keep cool. And a cooler with cool cloths too. Not ideal when you're short on subs, I would have been annoyed to play a tournament that way - it is bad enough when you have that handicap with a regular game.
Thanks for the idea of cool clothes. We will definitely do that! I will try not to envision children and spectators being hauled off to the local er with heat stroke. We can do this!! :thumbup1:
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Thanks, Mrs. Hound, for understanding. I am dreading the next 36 hours!!
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Have you ever been to South Alabama in the middle of summer? If not, let me fill you in for a minute. Today, we have a high of around 92 with humidity around 80-92% and a UV rating of 10. No cloud cover. Tomorrow is about the same except the projected high is closer to 94 and the "real feel" is 110 degrees. :huh:
Well, my son (11yo) plays soccer for a recreational league. These aren't big deal soccer players just some kids who play really HARD and do their best. There are some special needs players, also. This weekend, Father's Day weekend, is the end of the season tournament. My son has six full games in the next two days. The games are played in the middle of the day (10:00, 2:00, and 5:00). Even the 10:00 game will be in extreme heat and there is no shade anywhere. There will be no substitutions because a lot of kids have just moved on since this spring season went well into the summer break. They will be playing full fields, 1 hour games, breaks only at halftime, and reduced numbers of players.
My son happens to be fairly physically fit, but that is not the case for all of the players. Would you consider this reasonable for recreational soccer? Am I making a big deal out of nothing? I tend to be the type of person who sees risk everywhere, but I am really scratching my head on this one. I have only overhead one other parent saying that this is ridiculous. I am not trying to be all judgmental or anything, but some of the parent's idea of hydration is a can of coke or sprite. It just really seems risky to me.
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I've been trying to figure that out since my conversation with her earlier today. She said it was a stolen identity thing. I had just met the lady in a hospital waiting room so I don't have any more details. She was concerned about identity theft. :( in her situation they were able to tell her pretty quickly that it wasn't a mistake or error. Hopefully, yours will turn out to be a simple error.
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I just spoke to a lady today who had the same thing happen. Someone had fraudulently filed using her information. She had to send some additional paperwork to prove who she was and was assured it would be fine. I guess it's the newest refund scam.
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I'm still hitting the gym 3 days a week. It's a very motivational place to be! I'm going to add a yoga class with my mom and daughter starting next Saturday morning. Making progress!
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Love it!
We've happily skipped the whole "community helpers" topic because, you know, we just live in the community.
But this has left my 2nd grader unbiased and directionless. He's already told us he'll be living with us forever unless we help him buy a house because he doesn't know what to do, and he's terrible at keeping tabs on his money. (It's true. He loses his little ziplock baggie of coins all. the. time.)
I guess we've ruined these poor little ones. 😃 Maybe I better look for a remedial course to do over the summer!
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I've pretty much lost my mom to a pain condition called burning mouth syndrome
in The Chat Board
Posted
Jean--she was diabetic and on medication for about 7 years. She made some major life style changes and had her blood sugar under control. She lost weight, completely changed her diet, began an exercise program. So the doctor took her off of the metformin and told her she was no longer diabetic. About a month after going off of the metformin she developed neuropathy and this mouth condition. None of the doctors seem to think there is a connection. I am wondering if maybe the metformin was doing something else for her body and that even though she doesn't need it for blood sugar maybe she needs it for something else. I know it sounds like I am grasping at straws. :(