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Sara in AZ

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Posts posted by Sara in AZ

  1. What a pain for your daughter!

     

    I would investigate the effects on being on one of those drugs long term. Here are a couple of links regarding damage that could be done to kidneys and arteries.

     

    http://www.drugdangers.com/proton-pump-inhibitors/lawsuit

     

    https://www.google.com/amp/s/www.drugwatch.com/2016/06/03/prilosec-nexium-may-damage-arteries/amp/?client=safari

     

    My father recently had a triple bypass done. 😢 Prior to the symptoms he had of shortness of breath, etc, that lead him to check on his heart, he hadn't had any obvious issues with his heart. His cholesterol levels were always good. He didn't smoke. He regularly exercised and tried to take good care of himself. But he was on Nexium for about 15 years before this happened.

     

    My mother is convinced there is a link there for my dad. Who knows. But my daughter was just prescribed a proton pump inhibitor to help with her pain from celiac. It's not going to be long term for her. But if it was I'd sure be nervous. I'm going to research it a little more before I start her on it, anyway.

    • Like 1
  2. Totally. I cannot do Excell. I recently spent at least 45 minutes trying to make a simple table in Word. I can never remember the short cuts for copy/paste. Resizing images I want to use gets me every time. I'm a mess. Hope you find something to help you learn. Share if you do!

  3. I have not seen the documentary you mentioned. In my little family we have two older children who are fully vaxxed (minus HPV), though most were done on a delayed schedule. We also have two younger children who are completely unvaxxed.

     

    My oldest vaxxed child, DD14, had tons of ear infections as an infant, developed asthma at age 18 months, and was diagnosed with type 1 diabetes at age 6. DS 11, also fully vaxxed has been generally healthy aside from minor colds/flu.

     

    For a while I felt like the diabetes diagnosis might have been related to a vaccine based on some research I did that suggested the Hib vaccine could trigger diabetes. And Hib was the one I started DD on first at 4 mo. That and my general, unscientifically substantiated mistrust of assaulting infants' immune systems kept me from vaccinating DD8 (who was born a month after DD14's Type 1 diagnosis.)

     

    DD8, unvaxxed, has been frequently ill from birth (kept in the NICCU for 10 days for an unidentified infection). She has always had frequent (as in every other month for the first two years) high and unexplained fevers. I've always thought she must have a weaker immune system or something. And this year, at age 7, she was finally diagnosed with Celiac disease after two years of vague stomach pain. So I wonder if her immune system really has been working overtime all this time. Who knows. DD5, unvaxxed mainly out of neglect, is healthy as a horse.

     

    So there's my useless little family anecdote. The one time we had whooping cough, though, it was my fully vaxxed son who brought it home and passed it on to me (need a booster) and DD8. The CDC told me that vaccine is less effective due to the new and safer formulation.

     

    I do intend at some point to get the younger two vaxxed.

    • Like 1
  4. Yes, we did all get the flu one year and the kids got strep at the same time.

     

    It probably ended up costing us at least $1000 in Dr visits and medication and we have good insurance. I was sick for several months.

     

    Since my nephew has CF we would be getting if even if we hadn't recently had a horrific flu experience.

    This happened to us last February. Flu and strep for all 4 kids, which led to a hospital stay for my oldest DD with type 1 diabetes. She spiraled into ketoacidosis. So all those dr bills and medicines, not to mention time off school (my older two are in brick and mortar). Plus, we had unavoidable house guests that week who took the flu home with them. It was the pits.

     

    The only person who didn't get sick was DH who had the shot at work. Previously I have always been in the "don't bother because it probably won't help anyway camp". I''m still in the "it probably won't help" camp, but I will bother this year just in case. I'd like to do whatever I can to avoid that scenario playing out again.

     

    Two younger kids had the shot. Need to get the older two in.

    • Like 1
  5. My dd got the 6 whatever it is that is the same size as the 5, and it's the bomb! Great big power, itty bitty living space! (said in Robin Williams voice, lol) I don't know when the next of that shrinky dink size is coming out. I should see if there are any rumors. I definitely need more power, and I *think* I want more size. Mainly I want a better camera, a much better camera.

     

    Sounds like I need to go to a store again.

    I think it's the 5SE that's like the 6 only smaller. My daughter just got one for her birthday. You may not have to wait forever for a 7. I ordered mine through Verizon last Thursday and it came in yesterday. I'm probably just going to order another Otterbox for it. They have served me well I'm the past. I'm trading in my 6, and getting the 7 for about half off. They've got a pretty good promotion going on right now.

    • Like 1
  6. Bob's Red Mill has a good GF pie crust mix. If you want shortbread or butter cookies, use all butter for the fat, and add some confectioner's sugar to the mix (maybe some egg if you plan to do sugar cookies). I like to use the crust mix for shortbread, and press it into a pan.

     

    Fudge, chocolate covered nuts, peanut brittle, etc. are options that are usually GF. Cream cheese mints are yummy. You can freeze them and put dip them in chocolate too. https://www.southernplate.com/2014/12/cream-cheese-mints.html

     

    Flourless chocolate cookies: http://www.epicurious.com/recipes/food/reviews/flourless-chocolate-walnut-cookies-350890

     

    I buy boxed mixes for most goodies as the thought of figuring out the non-traditional flours makes the whole things sound less than fun.

     

    Fruit crisp--I use a regular recipe for that, but with GF oats, and GF oat flour for the flour in the recipe. I want to try oatmeal scones that way as well, but I keep forgetting--if you do any oat recipe that involves liquid, let the whole mixture sit for a while to soften the oats. It usually turns out more moist and nice texture.

    Bob's Redmill 1:1 flour is fantastic, as is the above mentioned pie crust. I actually used it to make a pie last week (which my whole family loved), and just before I fell asleep that night I had a mini freak out in my head wondering if I had actually used a gluten free mix and worrying my daughter might get sick. I almost got out of bed to check the trash! It was that good. And she was fine. 😊

     

    If you have to do a birthday, I just made this for DD's cake and it was amazing, moist and not gritty at all:

     

    http://www.shelikesfood.com/1/post/2015/08/gluten-free-three-layer-chocolate-cake.html

  7. I have the same problem.  Kegels never seemed to work.  I just have to wear pads whenever I exercise.  (And I stay off the trampoline!) I bought a friend of mine these period panties for Christmas and they work great.

     

    https://www.shethinx.com/

     

    They are a sister to the iconundies linked above.  I've been curious about those icons.  If you try them out, let us know how they work!

     

     

  8. IME, no pain reliever helps with the pain. Sometimes the pain has been so bad that I've gone to the ER. Even morphine didn't touch it. :( I like to be left alone when I'm in that much pain. I shut myself in my room and read, watch movies, (and post here). :) I don't cook and I don't go to meals with the family. I don't even like looking at food.

     

    I prefer to eat as little as possible. Hunger pain is preferable to the intestinal pain. I do try to get several hundred calories a day, only through liquids. After a few days of that I will eat something really mild, like rice, to see how my body tolerates it. If so, I will eat light foods for a day or two. After all of that I am usually starving. Having a favorite gluten-free food/meal to look forward to helps a lot with the emotion of what I've just gone through.

    😢 Wow! This sounds so miserable! 😢 And it gives me a better picture of what my daughter is feeling and how to empathize and help her.

  9. One thing that helps me when I feel like this (accidental cross-contamination causes severe discomfort/pain): a liquid diet for 3-4 days. I drink chicken or beef broth, drink juice, tea. I also drink jello that has not set -- right out of the microwave -- to get extra calories. (And it tastes good.)

     

    I hope that they find out what is causing her problems and I hope she feels better.

    This is helpful information for me! DD just had her first experience getting "glutened" since her diagnosis, and it was so sad watching her be in pain and unable/willing to eat or drink anything. Is there anything else you do/take when this happens? The GI was completely unhelpful on this subject.

     

    OP, I'm glad you're getting her in to the doctor. Hope you get to the bottom of it!

  10. Those of you with kids who have celiac and such, did the symptoms just suddenly appear? She's eaten dairy and gluten her whole life.

    Bodies are so weird. My DD started having vague stomach pain around age 4, was finally diagnosed with Celiac at age 7. My sister was just diagnosed last summer at age 36, although she had been having some GI issues for years. (Not her whole life, though)

     

    My DS 11 who has been having strange stomach issues for the last two years just got diagnosed with a deficiency in the enzymes that digest sucrose and maltose. What the heck?! I really hope you can figure out what is going on with your daughter quickly. 😢

  11. I have a daughter like this. I actually wrote a post similar to this once! For my DD, I think she likes the idea of friends more than the work to maintain friendships, if that makes sense. Because truth be told, 95% of the time she prefers her own company to that of others. She is definitely not on any spectrum, it's just her personality. I have occasionally let other people get me into a tizzy about it, but finally figured out, it's just her. What has worked well are her friendships with other super extroverted people. They have so many friends buzzing about they don't get their feelings hurt when DD checks out for a bit. When she gets lonely she texts them and they hang out like they just saw each other a day ago.

     

    At the point you and DS are at, I wouldn't worry at all. I think it might just be his personality. Unless he WANTS to hang out with kids and can't figure out how to make that happen, I wouldn't worry right now.

    I think this describes my DD who is almost 14 fairly well. She has always been very shy and spends a lot of time alone. This has always really bothered me because my personality is very different.

     

    I know she enjoys being with her friends and is happy when invitations are extended to her, but I have to really pester her to ever plan anything with them. Her friends are kind of the same way. 😊 They get along great if they ever manage to make a plan!

     

    At one point, when DD was 11 ish we did take her to counseling for a year or so because I was really worried about her social development and knew that anxiety runs in the family. I don't think it was really helpful at all. I think she would have developed the same regardless. Each year she comes out of her shell just a little more in ways that are noticeable (my friends, teachers, people at church comment to me about it.)

     

    In the past we have wondered if she might be slightly on the spectrum (MIL has asperger's), but careful observation (and the counselor) have shown us she is not for various reasons.

     

    She is currently enrolled at a classical charter school because by 7th grade I was tired of her dragging through her work at home so slowly and spending so much time in her room alone. Her two best friends go there,and it has been a really positive experience for her. Being in the classroom and responsible for contributing to the class discussions has been wonderful for her and helped her to develop in ways I couldn't replicate at home.

  12. It was the 80's and the store was called units. Loved them.

     

    As I said earlier in this thread, I don't shop with companies that don't refund my money if I am not satisfied. Add in the salesperson doesn't know what they are getting ahead of time and it sends me running faster from the room. Now the salesperson is stuck with a stock of ugly clothes they can't unload. Thanks, but no thanks.

    We wore Units in the 80's! Homemade ones at that. A long, straight skirt with some kind of long tunic top, and a fabric band that went around the waist in a complimentary fabric. They were soft knit and very comfortable. I remember feeling very grownup in my faux Units outfits! 😀

    • Like 3
  13. Remember when Friday nights were for fun and going out?

    That was a looooong time ago!

     

    I have one kid (age 7) who is extra sensitive. Every time I am extra grouchy or upset she brings me this sweet little mother's day gift she made me with her handprints for flowers stuck in a pot. Every time I have to try and smile and give her a hug when I feel like throwing it at the wall. 😜

    • Like 1
  14. This was me! It turned out to be celiac.

    This was my daughter, too. Just vague abdominal pain that went on for at least two years before I finallly took her in to the pediatrician. No vomiting, no bathroom issues. Just this vague pain that she couldn't really describe (she was about 5 when we started noticing), but didn't seem bad enough to interfere with her daily life. The blood test is really non invasive, just to rule it out.

  15. Is there any chance that he isn't wiping inadequately but is actually having small episodes of soiling? It may be that he has an intolerance or something. Which could also be feeding the whining too as kids that are feeling off do tend to be a bit whiny.

    This is an excellent point about the underwear. We dealt with encopresis in my oldest (severe constipation that leads to lots of "leaks" in the underwear). This went on until she was probably 10, and she still struggles with constipation.

     

    Anyway, at that age she often went through multiple pairs of underwear in a day. Sometimes I would wash them with the diapers if I had a kid in diapers. Sometimes I would just throw it out. If she would be staying overnight with someone else, though, that would definitely have been on the list of things to cover beforehand!

     

    My current five year old struggles with wiping and needs my help...or I can tell when she hasn't asked for help.

     

    I remember the same problem when I was five and my well intentioned mother threatening to hang my dirty underwear in the window for all my friends to see. 😳

    • Like 2
  16. We have not pushed chores either. Our extra curricular pursuits have meant that we are out the door a lot. The kids helped around the house cheerfully when asked and time allowed. It meant that along the way they picked up the necessary life skills like how to do laundry without issues just not on a predictable schedule.

     

    Our house is never company ready. The kitchen and bathroom are regularly disinfected, bedding washed, etc. the floors swept once a week, and dusting is ever a challenge. Projects abound. I am okay with that, so is dh. My mothet judges me quite harshly for not keeping a "nice home". Whatever.

     

    No regrets and to each his own.

    This sounds just like my situation only I don't think my mother judges me harshly. If anything, I judge myself harshly for not being able to keep everything organized and clean all the time. Finally, a thread that helps me feel better about having my kids involved in a lot of things and not having "company ready" home. Thanks, ladies!

  17. It drives me batty even when the good singers in my house sing to loudly or repetitively.

     

    There is a grown up Person in my house who has a weird habit of humming to himself in weird, tuneless, monotone when he is engrossed in something. (Think Glen Gould but without the amazing keyboard skills to go with it.) I love him so much BUT IT IS SO WEIRD AND ANNOYING!! He knows it's annoying, but it's almost subconsciously that he does it. Sometimes the kids will beg him to stop, but I think after 15 years it's time to track down some earplugs.

     

    No help. Just commiseration. Good luck!

    • Like 1
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