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Posts posted by sangtarah
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One of my kids has been hospitalized for a week with no eta of when we can leave.
What do you do to keep your spirits up through a hospital stay with a child?
Mostly I’m staying in the room, dh may switch off for a night if he can work it out with work.
So far, I’ve not eaten much, scrolled far too much, and tried to keep on holding things together.
PS. I’m very sorry my Christmas cards to the hive didn’t get out - we have being dealing with this child’s illnesses non-stop the past several months and I feel like Gumby - constantly stretched out in every direction.
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12 hours ago, TechWife said:
May I present…
Lying Flat Duck Lamp Night Light Lie in Peace Duck Sleep Lamp … for breastfeeding.
That is all.
I bought this in August, when I was in hospital with a broken pelvis. It is awesome, and I love it. 😂
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31 minutes ago, Resilient said:
…and adding that there are some jobs and employers who seek ADHD candidates. Turns out that in some situations it’s a feature, not a bug.
Wow, I would love to let her know about those types of jobs. She’s pretty lost on what she wants to do.
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My oldest dd (17.5yo) is self-diagnosed autistic. We had her ADHD formally diagnosed, and we are weighing the benefits of a formal diagnosis of autism. She says "but then i can never move to Cananda" and, No, she doesn't want to or plan to move to Canada, LOL. She has been majorly struggling in the last few years with schoolwork and social interactions. None of the ADHD medicine has been good for her (we've tried 4 now). She's at least 2 years behind in having enough credits for a diploma. My second oldest dd has had so many health problems for so long, unfortunately many of the signs for oldest dd that we recognize in hindsight were obscured.
So are there benefits of pursuing a diagnosis?
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Tell me all about power wheelchairs. DD14's health demands one. I need to know all the ins and outs, please. Thank you.
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32 minutes ago, dirty ethel rackham said:
I'm glad to hear you have PT helping you out. When my mom broke her pelvis, I became her cheerleader to help her walk out that front door of rehab. I'm rooting for you!
As far as school goes, is there anyone in your community that can help you out? with some short term planning? perhaps adding your kids to their homeschool for a couple weeks? When I had a family crisis, I had a couple moms step up and take my kids, supervising their work that they could do independently and then rolling them into their day. They also relied on a few good documentaries and videos. I've been able to return the favor.
I wish I did. We haven’t made any friends nearby yet (only lived here a 1.5 yrs). My mom could pinch hit for me, but she is keeping up with our bouse, meals, animals, keeping kids in line, and still taking care of my 94 yr old grandma. Plus I was mid-planning when I went to the hospital, so everything is scattered.
I’m hoping by next week I’ll be more myself so we won’t have to lose too much time.- 4
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Hey everyone, I’ve been home 3 days now, and every day is a little better. Today was a lot of pain, but more slow movement around the house. PT said to stay out of bed, ice frequently, walk every hour, and move as much as I can. All of which I am trying to do in between naps, lol! I am also trying to plan homeschooling, which is pretty hard when I’m loopy on the drugs, lol. We were supposed to start next week, which remains to be seen.
Thanks for all the thoughts and support!- 31
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1 hour ago, Harriet Vane said:
Fabulous progress! That's wonderful!
And a word of warning as well. As someone who was told by multiple doctors that I didn't need rehab after a hospitalization, please let me urge you to demand a prescription for physical therapy. An injury and time in bed means you need physical therapy. In the hospital, they will simply try to get you generally up and running, not really up to strength and balance. They may even tell you that you'll gain strength as you resume normal activities, but that's not really an accurate reflection of how life works after a blow like this. The type of injury you sustained could really affect your balance as well as other things--head it off at the pass with a solid commitment to physical therapy. Don't deal with a hospital for this--get a physical therapist who is used to working with athletes and tell this person you want to work hard.
Thank you for this advice! They are sending home health to me, but I don’t k ow the details of that yet. But I want to be athletic again - I need to get back on my horses! So an athletic PT program would be amazing.
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I was able to get out of bed mostly myself today! And I walked about 40ish feet - out of the room and back to a chair. PT and OT feel like I can go home and skip the rehab!! That’s wonderful news because I’m ready to see my babies!
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4 hours ago, mom31257 said:
@sangtarah, praying you continue to improve quickly! How’s your daughter?
She is physically healing up fine. She’s still sore. Emotionally, she’s a wreck. Terrified of riding in vehicles now. My parents brought all the kids to see me yesterday, and she was crying and hiding under a blanket. Breaks my heart. She struggles with anxiety and OCD. This is going to be rough for her.
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They gave me more painkillers and I was able to get up and walk about 20 feet today! It was really slow and tiring, but good progress.
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Thank you all for your opinions and experiences. This dd has very painful periods that sometimes come quite frequent, and many other health concerns right now. We tried birth control pills one time a few months ago, but they made her terribly nauseous. We will work on getting the hospital report to see exactly what they said.
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Dd14 was in the accident with me last week (see other thread). They did a CT scan on us both. Hers was clear but they did find two ovarian cysts. I don’t know how big they were; I wasn’t there when they told her about it.
What do they do for those? Which dr should we visit first? Her primary or a gyn? -
Thank you everyone! Physical therapy was just here and it took two of them to get me up, and I couldn’t walk very far without my pain shooting up. So they want me to stay for several days.
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3 hours ago, Melissa in Australia said:
Sending positive thoughts for fast healing
I’m thinking and praying for you too! I hope you regain strength soon. 💜
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Thank you everyone for your thoughts and prayers! And adorable photos!! They made me smile!! 😁
I’m on a lot of pain meds, so I’m sleeping a lot. Physical therapists have me doing some exercises in bed for now.
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Dr just came in. She saw 4 breaks, said no surgery needed. No brace either. Best thing is to get up and moving. 😵💫 I said as long as I have good pain meds!!
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My dd14 and I were in a bad car accident yesterday. I have 5 fractures in my pelvis! Dr will be in soon to let me know if I need surgery. My daughter is banged up, but okay.
So…. I need uplifting things to help me cope, please!! Prayers, funny stories, adorable photos, jokes!
We have so much going on lately. Dd14 has chronic illnesses that we are sorting through, meaning lots of drs visits. I’m fairly certain I won’t be driving anytime soon, so I don’t know how we will work that out!
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11th grade panic here, too! I’m just now ready to think about what the next school year could look like. This year was a wild ride, the kids started at a hybrid school, but they were constantly sick, dd1 diagnosed with ADD, pulled all of them out of hybrid in Dec, scrambled to put together a spring semester, my dd2 now has a long term illness, we have doctor visits multiple times a week.
So… I know some of dd1 will be doing…. Gov’t & Econ. -WTMAcademy, & Algebra 2 -Math U See, & ASL -online
But I still need to figure out English and Science. 😔 She really wants to do some Brave Writer classes. And dd2 is going to do a middle school physics course via Science Mom, which would be fun to study altogether, but I don’t know how to level up physics.
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Dd 13 got a diagnosis of dysautonomia today. They told us to increase fluid intake and salt. She had Covid last November, so this could be normal teenage onset or illness induced.
Anyway, what do I need to know, research, advocate for? -
Complicated holidays
in The Chat Board
Posted
Yeah, it’s a bummer day for me, here. Been home from the hospital for a week, but dd isn’t really able to do or enjoy much. So we didn’t do the normal things we usually do. And there’s just an atmosphere of sadness around dh and I. I feel bad for our younger two, although they seem happy enough.