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mom22kids

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Everything posted by mom22kids

  1. I reread my posts just now looking for the aggressive/defensive tone that you mentioned and really did fail to see it? But holy I like "!!!!"'s LOL! Anyway - sorry my "tone" doesn't read well when I type. My "to each his own" was just literally that. I don't find that to be offensive wording but I guess some might. I see it as what it is - this worked for me but you do what works for you. With peace and love. No biggie on my end. Do I hope/want this protocol to help all the kids? Absolutely!! Am I offended that it has some people's backs up? Not at all! I really am a WYSIWYG person. I will tell you when I am offended. I am happy that some are curious and nonplussed by those who aren't. I really can't stress that enough. I have been on this earth long enough to know the reaction people will have to "I cured my daughter with inulin and omega 3" - none of this surprises me or offends me.
  2. I appreciate that you will do your due dillegence for the planet and stop the protocol if the ozone suffers - regardless of your health ;) I am not a "purist" either in the sense that I give my daughter melatonin and Magnesium citrate if/when constipation occurs but we did in fact drop all B12 etc and are just seeing gains. There are a mix of us on the FB group. Some are doing it with ACC and other things and some are "pure" lol! Would love to give you updates!! Thanks :)
  3. This is absolutely incorrect (in more than one way in fact!). You absolutely misunderstand the dosing. He says (direct quote!): You can escalate the dose of omega-3 fatty acids from 600 mg per day for the younger, smaller children up to a total of 3,000 mg (total of EPA and DHA) depending on weight with the top end of 4,500 mg per day for an adult.
  4. I appreciate your concern but this is the healthiest she has been in years. I was tempted to come on here and explain away some of your concerns but I can see that many have their minds made up. And I have no dog in this fight so I am completely fine with that. As my post titles states I have that craziest update that may help SOME of you. For those of you still curious about the protocol - there is a very educated lady that used to be a research assistant at UCLA Dept of Medicine who posted some great articles about Inulin. Said she was outraged when she first heard about this so she did what she does and spent countless hours combing over 100 research papers to decide what is what about Inulin. And was rather convinced that this was all horse shit. Well, 100 papers later she concluded that she was wrong about Inulin and now is in line with DR. Nemechek's POV. Her quote: "I was almost outraged when I first read this article. I couldn't believe that anyone would buy into it. Now I just feel stupid for not realizing this earlier. I minored in nutrition in college and it's a huge personal interest of mine and I was SO wrong. Oh well you live and learn." She posted the links to some of the easier to read papers and has promised to answer any questions. Feel free to ask her anything if you are interested. She further replied when I asked about a direct link to something: " there's no direct study unfortunately :( that's why I've had to read so long. It's basically reading 5 studies to draw conclusions (which is why I assume nemechek isn't posting studies to back up his findings)."
  5. To be clear...I came here and said I cured my daughter by going GF/DF but in reality it was the same protocol then that has recovered her this time also. I mistakenly attributed it to going GF DF until we lost the success and I was able to tease out what really brought about the change. I wish you all the best of luck!
  6. I can't speak about those people on your board but the sheer number of people who REFUSE to stop with the ACC, the digestive enzymes etc while doing it is definitely a factor. And I don't judge them for NOT. I think if you have something good going on and you are NOT willing to abandon it all on a lark - good on you. But to then have them come online and say "It didn't work for us" "It made things worse" etc when in fact they weren't truly following it is erroneous in my opinion. And that is what seems common to me in those who gave up when the expected (short lived) regressions appeared. But this is a NEW science and protocol and there is so many ?????? right now about it. Honestly time will be the best barometer of this success. In months from now it will either fizzle out and die or the success stories will be so compelling even the doubters are willing to consider it. At this point in time - who knows?
  7. I'm aware of what the link says - that is why I posted it. He says: what if we approach it like a traumatic brain injury. I mean we are talking semantics here but that is NOT saying menopause is a traumatic brain injury. He discusses that there is no peer review studies because there is no money to be made from this.
  8. I also want to assure you all - that I didn't stumble upon this man and proclaim him to be the word of god. I actually "fixed" my daughter and then found out that I did so by implementing this protocol. I just had no idea I was doing so.
  9. Well you have the jist of what he is saying but I think you misunderstodd some of it. He says things like Menopause are normal but that symptoms of menopause can be alleviated. He does not refer to it as Traumatic Brain injury but says perhaps it can be "treated" using the same concepts. He uses the phrase "cumulative Brain Injury". He refers to this CBI as resulting from everyday stressors like illness and stress. He uses HRV to assess people: https://www.nemechekconsultativemedicine.com/blog/what-is-your-hrv-heart-rate-variability/ Here is his view of menopause: https://www.nemechekconsultativemedicine.com/blog/menopause-is-permanent-pms/
  10. Thanks! No stims from my daughter just mentioning it for those with kids on the spectrum.
  11. Just adding that if anyone here decides to try this - please come back and update or send me a message. Keep in mind the beginnning can get rocky - increases in stimming, anxiety etc (maybe some digestive upset) but if you can just get through it and not panic that your child is regressing you will be amazed. Those are all signs that it is working so just dig deep and stay the course :)
  12. What I love about him (though I cannot speak for Feingold etc) is that he is not trying to sell ANYTHING! There is not really any money to be made from this. He is literally giving of his knowledge and his time (answering hundreds of questions via his blog and emails) for FREE! He just wants to empower people about their health. There is mixed info on line about EVERYTHING. I believe in this mainly because of the gains we are seeing.
  13. Thanks!! I totally get it. I have had my heart broken a million times when promising things just didn't amount to much for us. That is why I love that ANYONE can afford to try this. Like we all know - it may not be YOUR solution but there aren't many blockade to giving it a whirl like so many other "treatments" out there! I hope some people on here benefit from this protocol like we are! And thanks for coming back to leave your comments :)
  14. Yes you were and it was appreciated then and now. I will never forget or lose appreciation for the way that you stood up for me. Thank you again for that.
  15. I actually agree with both of you. I personally don't think this a magic cure for everyone. For my daughter - yes so far... I certainly did not come here with the intention of spouting off that I found a magic cure or sounding like an info-mercial. But like you said - there is the real possibility that the GUT can cure these issues for some and this man MAY have found the magical combination (of Inulin and Omega) that expedites this healing. Like all of you I came here looking for ways to HELP my daughter. There are literally ONE MILLION options. Thousands of testimonies that XYZ worked so well etc. And you know what? They are hard to wade through. Many are expensive and time consuming, daunting etc. And many times I had to walk away from a "good thing" because it was too expensive - Vision therapy was $6000 for my daughter. Didn't happen. Occupation Therapy cost us a fortune. There have been things I could just not afford to "try" regardless of the successful testimonies. This worked for me. This is working for MANY. It is all natural, take 2 minutes a day and at worst you will be out $30. There hasn't been one therapy yet that I have come across for this money that has produced these results. But....like I said to each their own. Some of you have your minds made up and I respect that. I find it funny that there was a healthy dose of people on this board that tried to BULLY me into getting an MRI but that the suggestion of Inulin and Omega 3 is considered controversial and damaging?? :confused1: But I appreciate that you listened and that you are happy for us. Thanks!
  16. Well the beauty of this is that it is not a LONG period of time to see results. Most people see them pretty quickly. If there is no progress he has some recomendations but most people see signs of improvement (subtle as they are) fairly early. Of course there can also be some constipation and digestive issues - which is to be expected when you consider you are drastically altering the guts biodiversity. But most feel any negatives have been overshadowed by the gains in speech etc. Anyway - i shared my story. We are thrilled. Some of you might want to look into it! :)
  17. It is super interesting that you notice that about the fish oil. And yes Dr. N would agree with you that some struggle with the Omega. In that case he says start only with the Inulin. Let that do its work for a while and in most cases the fish oil is now tolerable. Many are doing exactly that - using the Inulin to lay the groundwork for the Fish oil to be tolerated.
  18. Well then we actually agree. As does Dr. N. He would say that SIBO is a case where one "neccesary, vital - serves its purpose" bacteria has overgrown its location (the colon) and that the "neccesary, vital - serves its purpose" bacteria that is meant to live there and do its job is being impacted negatively by this overgrowth. Further he would say that a Probiotic (in this case) would feed them both (thereby keeping the ratios the same and in favor of the colon bacteria) and antibiotics would deplete them equally (also unaffecting the ratios and therfore mainting a depletion of bacteria that is still in favor of the colon bacteria). But that Inulin FEEDS the sm intensine bacteria. the prescence of Inulin does not benefit the colon bacteria and therby you are only nurturing and nourishing the bacteria that is meant to live there. As they increase in number and push back the colon bacteria you restore the gut to its "natural" flora which does include the presence of many strains. They all benefit from the reduction in the colonic bacteria. They all find food sources again and the gut is much healthier as a result. But aside from this - he is by FAR not the only person making these claims. You do realize that or no? Even my naturopath advised against her taking probiotics. Of all the things he has claimed - avoiding probiotics is by far not the most controversial.
  19. I am genuinely SHOCKED that you came to that conclusion. Specifically what? I am really curious how you think having Inulin and Omega 3 is damaging? And worth noting that the success stories just keep pouring in.
  20. Oh! And here is another CRAZY thing! When I was on here last Summer it was out of sheer desperation as my daughter had started having some mobility issues. Those of you who were around will remember. We were seeinga Neurologist and there was some MRI discussion on here that became heated. In regards to her mobility - she was losing the ability to manipulate stairs easily, she stopped wearing her mermaid tail as she could not get her legs to move the same etc. We also uncovered the fact that she could NOT cross her midline. She was literally unable to move her tongue from left to right. (I have video of this). It was very difficult. We started B12 (as a result of some blood work) and that REALLY helped with the mobility -she seemed to gain it all back. But the midline stuff was still awful. We did therapy EVERY day all Summer and just worked on crossing the midline. It was long arduos work and I won't lie didn't REALLY make a difference. She found it frustrating and difficult and I found it painful to watch and frustrating as we never seemed to build on it. Every session was the same success. I filmed everyone of these sessions and I am happy to show you an example. Anyway the therapist said - lets give it a rest. She said your daughter is getting depressed and all this is doing is emphasizing what she CAN'T do. Lets switch up therapy for a while and start making sure she is being successful again and we can revist this later. So we dropped it. So back in April when she was flippin "cured" from GF/DF (or so I thought) I was shocked when one day she was outside RUNNING around like a monkey and she said to some neighborhood 6-7 year olds. How do you do a cartwheel? I looked at my husband like "dear lord!!". The little ones tried to "teach" her but they gave confusing instructions. I suggested she just watch and see where there feet land etc. So she did and then NERVOUSLY got into position and VOILA a damn CARTWHEEL happened. And over and over again!! She could calculate how to organize her body somehow!! So I whip out my phone and remember those tongue/midline exercises say (while taping) I want to you swipe your tongue etc etc. And she could do it!!! It was crazy!! At the time I was like HOW IS GLUTEN SO DAMAGING??? But now I know it is the inulin keeping the SIBO under control! I can post these videos.
  21. Then YOU sound like the perfect person to benefit from this!!
  22. Thank you! And to each his own - but you will be waiting a LOOONNNGGGG time for official studies to come out as no one can make any real money off this. No big Pharma company is going to investigae this - these are all items that can readily be found at your local walmart. But - I don't have a "dog in the fight" as they say. I don't benefit from anyone trying this. Only your kids do. It is 2 simple all natural ingredients that you can add to their day. The olive oil is not the most critical part. But I respect your position.
  23. Yes - low and slow. Go way below the recommended amt and slowly increase. The alternative is an Antibiotic that is called Rifaximin. It would also be used in a case like this. I can give you more info on that if you want :)
  24. Awesome! Honestly that is the reason I came here! We are all spending $$$$$ on Vision therapy, therapetic listening, hours of OT, PT blah blah blah. This is cheap, easy and takes 2 minutes! What do you have to lose? just do NOT take a probiotic!
  25. I'm telling you! I came back here specifically to tell YOU about this protocol - super interesting!
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