happyWImom
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Posts posted by happyWImom
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This is so reassuring. I was hoping it was the age but unsure that maybe I was doing it totally wrong. I try to stay out of parenting esp. As her mom and dad are both involved and present. Thanks. I will continue to try to reach out and be myself but not lose sleep over her attitude. She has always been a good kid. Thanks.
I became a step-mom to a 14yr old girl when I was in my late 20's, and had no children of my own. Then, I thought I had all the answers. :blush: Now, I look back and wish I had done things so much differently. I was mainly focused on the attitude, as well as a lot of negative behavior. Looking at it from the perspective of a mother, I wish I would have given her lots more compassion, understanding, and love. 13-14 is such a raw, confusing, tumultuous time where kids just want to be understood.
Good luck to you! :grouphug:
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You could enroll in a free self-paced course at Virtual Homeschool Group and have audio lectures.
That sounds perfect!
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I think so; I'm linking a blog for you where you can see the experiments for every chapter -- this group seemed to have a lot of fun, and took an even more hands-on approach to some of the activities. The explanations for each chapter might also help you to modify the lessons for your dd as needed.
Thank you so much; this is very helpful! I really want for her to be able to do this and feel good about it.
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My dd has Lyme disease & is experiencing lots of cognitive stuff, so we don't know what she'll be capable of next year. We are hoping to get together with another family to do the science experiements in some of the Apologia books. My dd hasn't finished General Science but the other family has, and their dd will be using Physical Science as their main curriculum. What I'm wondering is, if my dd isn't able to do all of the reading/follow everything in the book, would she still be able to do the experiments and get something out of it? I want her to be able to spend time with her friends (the other family) and not be so isolated, but I also don't want her to feel inept.
Thoughts?
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:lol: as opposed to the non-pubic restrooms?
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All of us here close the lid before flushing. This is one of the reasons I hate public bathrooms (no lid). My dds both unlock door, partially open door, flush, and run. Using toilet paper for the handle after washing is fine by me, which is what oldest always does at our home and in other homes.
I always flush with my foot in pubic restrooms.
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This thread has made my day; I needed a laugh!
Plus, it is my worst case scenario. I have a phobia against non-handwashers, and I am picturing myself in this situation. :ack2: I can't tell you the times I've been in public restrooms and have seen people walk out without washing. Which is why I always use a paper towel or my shirt to open the door. Most doors, really. Yes, I am a freak and a total germaphobe. :D
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Maybe he just had gas and only flushed the toilet to cover the fact that he was just sitting around in the bathroom for a while till it passed, and then he didn't think to wash. It could be anything and there is no way I would comment to any guest in my home about their bathroom habits. Just no.
ETA: I also can't imagine how mortified and angry my dd would be with me if I did such a thing.
:lol: :lol:
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First of all -- good grief!! Did this version of the board really start in '08?! I was also around back in the good old board flipping days. I started lurking here in 2000 when I pulled my kids out of 2nd grade and preschool, but was more active on the old Kaleidoscapes board. Anyone remember that place? It imploded and shut down in the early 2000s.
I mostly lurked on the high school board when the draconian homeschoolers got their start. At the time as I was in the midst of homeschooling my very outside-the-box high schooler, and none of those draconian subjects were going to work for him. Y'all intimidated me back then! But I loved the wise women who frequented the board back then -- Jean in Wisc, MMV, Stacy in Canada. Jane in NC, you too!
I, too, have been touched by the warmth and generosity of the WTM boardies. Jane's son, the archaeologist, made a point of welcoming me and my younger son when we were visiting his college campus. It seemed perfectly normal to him that he should meet up with someone his mom "knew" from the WTM. My son is finishing his junior year at that same college. Kay in Cal and her husband invited this same younger son to play D&D with them, and I helped them out from time to time when Doug was in the hospital and when they packed up to move to the East Coast. We scored a few boxes of good books from them, too!!
I'm wondering about a few other old names -- Regina in St Louis who was a former ballerina, or Colleen whose family runs an organic dairy farm in Washington state, I believe. Colleen's older boys must be in college. Oh and Quiver of 9 or was it 10?!
No way, this version of the boards couldn't have started in 2008! My dd would have been only 6, and I know it was still the old version. Not the original, I guess, but not the current version.
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I guess I've only been on here since 2008-but it seems longer! :001_smile: One of the things these boards have done for me is get me hooked on Mike's Hard Lemonaide! Does anyone remember when that's all everyone talked about???
Honestly, though, when I first started hsing and had no idea what I was doing, this was my safe haven. Not only have I learned so much, but I have sometimes felt more comfort and understanding and compassion from members here, than anywhere in my "real" life. I've gotten advice on everything under the sun. So much so, that whenever I was stumped about something (anything), my mom would say "Why don't you ask your forums?"
I also spent waaaaay too much money in the classifieds, back when they were good. (Sorry SWB :D )
This is the place where I used to get my daily news and find out what was going on in the world, since I never had time to watch the news back in the early days.
All in all, I'm so thankful and grateful for everyone and for the formation of this forum.
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My dc loved the 50's Cafe (they are into retro & love the atmosphere), the Kona Cafe at the Polynesian and the big hit was Tomorrowland Terrace Fireworks Dessert Party. We lucked out & had one of the best seats for the fireworks, so that was great, but they loved every single dessert that they tried. I tried to hold them back, but it was a once in lifetime type thing. :001_smile:
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Another Lymie family here. Dh, ds13, my 80 year old mom and I all tested Igenex positive within the last year. We live in Pennsylvania which I just read is the most infected state in the nation.
I have been on Biaxin for 10 months and the rest of the family began in January of this year. I am feeling so much better now than a year ago. The onset of mine was so dramatic and severe that I literally thought I was having a breakdown. I don't know what a breakdown feels like - I was just sure I was having one. I couldn't control my emotions and burst into desperate crying spells over the fatigue, fever, chills, etc. I had to crawl down the stairs in the morning, hands didn't function, neck pain was awful and I could count the crumbs of food I ate in a week because all food was repulsive. I didn't begin feeling better until Sept. and I continue to improve.
Ds's main symptoms were fatigue and brain fog. Now he is having digestive issues and our LLMD advised that he take a break from his abx for the weekend. I feel so bad for him because he wears out so quickly. Last spring he earned his black belt in TKD and used to work out with an intensity that he can't even attempt now. I am not sure what the long term implications are for him and while I am sad for all of us, I am especially concerned that he is starting out his life with this struggle.
What also breaks my heart are the stories I have heard in the waiting room of our LLMD of people who have undergone the expense and frustration of years of testing that revealed nothing. Or those who were told they have MS only to find they have Lyme. We are fortunate to have been diagnosed before we reached that stage, but what a crime.
To the OP, you are not alone! It is hard to know which traits or cognitive challenges to attribute to Lyme. Like other posters, we are going GF to address ds's digestive issues and we'll see if that helps the cognitive stuff we both feel.
Hugs to you all
I'm glad you are improving, and hope the rest of your family does as well. :grouphug:
My dd's stomach is starting to bother her, which concerns me because she's not been taking antibiotics for that long. I fear it's a very long road ahead for her and that does break my heart. It's been so beautiful outside, and she has hardly been able to enjoy any of it or be out for very long. This is a girl who used to spend hours & hours exploring and loving nature. I know I have to keep my focus on the future, but these are days that we won't ever get back and she's missing out on so much.
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Bridgeway Academy has a HOPE program that is actually a fairly innovative program that re-trains the brain- I know they mainly work with LD's, but it might be worth a call to see if they can address some of the cognitive issues. I've seen amazing success in a couple of my students who have gone through the HOPE program. Also, are you working with a functional medicine doc? One of my friend's contracted Lyme's 2 years ago and is traveling to CO to work with a functional med doc there. They discovered that she also had W. Nile (they often go together) which was exacerbating the Lyme's. If you would like me to put you in touch with my friend, pm me- she might have some good info for you.
Hoping you get the answers that you need to care for you kiddo!
I forgot that Bridgeway offered that option! I will talk to our enrollment counselor and see how it might work for us, especially the first part of the year.
Thanks!
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Hi Tammi, I am so sorry you are dealing with all this. Cognitive issues, memory issues, and the like make life so much more difficult, never mind the fatigue and pain.
School is the last thing she needs to stress about, her health is the most important thing. When they are stuggling to understand, focus and comprehend the added stress isn't a good thing. As a fellow classical homeschooler, I know how hard it is to back off on schoolwork, but trying to keep up with it right now may not be possible.
This is a good article on the neuro issues of Lyme, scroll down to assessment. It may help you understand just how much is going on with her.
http://www.mentalhealthandillness.com/tnaold.html
I wish health and healing for your daughter. :grouphug: :grouphug:
Thanks for the info., Liz! Could this also be caused because she needs more herbals for detox? Someone said milk thistle, red root, and chlorella might be good to add.
Health & healing wishes for you guys, too. :grouphug:
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My dd12 and I both have chronic lyme. For me personally starting on a gluten free diet made a really HUGE difference in brain fog and concentration issues. Our fatigue levels also improved drastically. As you probably know, you get worse with treatment before you get better. If my dd wakes up and tells me she is still tired or I notice that she is not able to concentrate very well, I either send her back to bed or we just watch documentaries for school that day. I have had to learn to do what we can on good days and not stress about what doesn't get done on the bad days. Healing is more important than school on any given day.
Hope she starts feeling better soon.
That's what I wanted to hear, I guess. That this is normal, and it's okay to take a break, do the bare minimum, etc... :001_smile:
We started going gluten-free last summer, due to all of her intestinal pain (Lyme!) but it hasn't made a huge difference. Well, at least with the GI stuff. Maybe if we hadn't gone GF, the brain stuff word have gotten worse, sooner. Are you just gluten free, or are you GF, sugar free (no honey), dairy free and completely grain free, too? That's what we were advised, and it has been a NIGHTMARE. I thought GF was hard, but this has been almost impossible. And while we've always tried to do some organic and grass fed beef, now we have to do organic for most things, gmo free, grass fed, veg. fed meat of all kinds-and I won't even go into the few fish(s) we are allowed. :banghead: I know it would be the healthiest, ideal diet, but still......
I hope you and your dd are doing better, too.
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Puberty and Lyme disease are a pretty potent combination when it comes to brain fog. My son was the same age as your DD when he was diagnosed, and one reason it took so long to figure out what was going on was because I chalked up the increasing brain fog to the onset of puberty + a huge growth spurt + his baseline ADD.
I'm sorry to tell you that we didn't see a dramatic improvement when he started treatment; in fact, he felt worse for a while. He was on doxycycline for 2 years and it was a very gradual improvement. We didn't get much school done for a while there, either. I would focus on the basics (math & English) and go light on the content subjects — maybe audiobooks and read alouds, documentaries, TC lectures. Expect her to need lots of rest and sleep. Lyme is hard to fight, and I think this age is probably the hardest time to have to fight it, because kids' bodies and brains are already going through so much upheaval anyway.
Best wishes for your DD's recovery. I'm glad she was finally diagnosed and is able to start healing. :grouphug:
Thanks for the advice.
Right now, she isn't even able to have me introduce new material in math (and we are so behind as it is) we are just going over old material.
I guess we will have to come to the realization that it's going to be slow going.
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My dd has been diagnosed with chronic lyme disease & she is currently being treated. I'm thankful that we finally have a diagnosis, and I knew it wasn't going to be easy. I guess I thought that she would start to show improvement, though, especially cognitively. She is getting much worse in that area, however.
She has struggled with math for years, and has always taken a long time to read things (now we know why) but lately, she can't even concentrate. She has to read something over & over for it to make sense, and even then, it sometimes doesn't. She's even having trouble following/participating in certain conversations & discussions.
At this point, we've almost had to completely stop school, and I don't even know what to do for next year. We were considering joining a Co-op, but she is afraid she'll be embarrassed because she won't be able to keep up or participate. I had originally thought about something like Bridgeway Academy or Kolbe, or something similar to help us, keep us on track, etc... but I don't know what to do. She's feeling so down on herself and so depressed.
Does anyone have any experience with Lyme themselves or their kids-especially the cognitive stuff?
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That was me who asked the question! I had a similar experience, but then was able to speak multiple times to someone, they were very helpful and I did place and receive an order from them. :001_smile:
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Your dd will be OK. Really.
It may take a while and it may take some experimentation with treatment, but she will be OK.
Lyme is so scary because the symptoms are so widely varied, and also because you can have a symptom today but not tomorrow, and then three days from now, it's something different. You can start to feel like you are going crazy.
The main thing is that she is seeing experts in the field and they are doing tests and getting her started on medication. I truly believe she will be fine, but I don't think it will happen overnight. It might even be discouraging for a little while because some symptoms go away pretty quickly, but others take much longer, so some people seem to recover more quickly than others, even when Lyme is still active in their system.
It is scary and frustrating and worrisome, but the good news is that she is being diagnosed and treated so she can get on the road to recovery instead of continuing to get worse.
Thanks for this. I feel like I need the hope, because I've made the mistake of reading a lot of Lymie blogs & similar things where people have/are going through absolute hell (can I swear on here? :001_smile:), and I lay in bed every night in a panic, thinking about my poor dd. Hearing positive outcomes is very encouraging.
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You mentioned distance isn't an issue, our LLMD is Dr. Raxlen in NYC, he is a founding member of ILADS. We adore him. I havn't heard anything about the center you speak of but I have heard pretty bad things about places like it.
We've been gone, so I just came back to this to day. I looked up your doctor & am impressed with his treatment plan.
My dd did have an appt. with a Dr. Coleman & Dr. Meress, who are both LLMD's, and Dr. Meress was just appointed to some position on the ILADs board, I believe. I do feel comfortable with him, but am open. They say that based on their clinical diagnosis of dd, she has it, but they took blood for a bunch of tests, and we are waiting on the results. In the meantime, they started her on antibiotics as well as a bunch of supplements and drops. Nothing was mentioned about IV treatment or doing any type of MRI, etc.., though. I am thinking because they are waiting for test results. I want to make sure we cover all bases, which is why I hope they do followup with an MRI (based on dd's last one). It's so overwhelming.
Have you all responded well to treatment? I read some of these blogs and feel so scared. I'm trying to not let myself go there at all, because I know I have to keep it together for everyone.
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I'm not familiar with the treatment center, I just wanted to mention that last week I read an article that Claritan, the antihistimine, kills lyme disease. It needs to go through more trials before it's marketed, but it might be the first drug specific to lyme disease to come to market. Apparently it starves the bacteria. It's very inexpensive. I think I bought a year's worth of generic Claritan for less than $20 at Sam's Club a few years ago. I doubt most physicians would recommend it at this point, but if I thought someone had chronic lyme I'd give it a try.
http://lymedisease.org/news/lyme_disease_views/claritin-lyme-balf.html
I just heard about this, too! I take Claritin D constantly during spring & fall.
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the site isn't as active as it once was. Many people have moved on to other places but there are still a lot of very knowledgable individuals. Good luck to you and your Doctor.
Do you have any idea how long the clinic you inquired about has been around. Quick google search and it appears to me to possibly be fairly new?????
When I googled lyme disease treatment clinic/center Shea Medical Center came up, and their site has a huge informational page under treatment. I watched a video they have that gives lots of info. on Lyme itself, a paper a doctor from the clinic has written, etc... But, I am still trying to see if they have a LLMD. Or a recognized one, that is.
We have good friends in AZ, that's why I also considered it.
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Been treating for Lyme since 2011. I've never heard of the clinic you mention. We have been receiving treatment through LLMD's (Lyme Literate Medical Doctors). We have had to travel outside of our state to receive the treatment because there is no one local.
You can try posting here: http://flash.lymenet.org/scripts/ultimatebb.cgi under "seeking a medical doctor". You might be able to find someone in your area depending on where you live.
Thanks, I did join & post on the site!
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Washington DC tours-best?
in The Chat Board
Posted
We're only going to be there for 2 nights & part of the time will be taken up by a dr.s appt. But it's always been my ds's dream to go, so we need to see as much as we can. We arrive at 11am, so my thought is to do a half day (translate 2-3 hour tour) tour that day, then the following day-all day-is free. He wants to go to Air & Space Museum, dd wants to go to Natural Hist. Museum. :scared:
Keep in mind, dd suffers from fatigue, due to Lyme disease, so we can't be going from dawn til dusk.
Both of them really want to go to the top of the Washington Monument and to see the Lincoln Memorial. That's why I thought the half day tour would be good. Thoughts? Am I crazy to try to fit it all in? I was going to have them both research the top things they wanted to see at both museums, knowing we'll only scratch the surface.
Also, we'll be there the very end of June, so I'm sure the crowds will be horrendous.
Thanks! (I need to book tour ASAP, so... )