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MamaStar

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  1. High TITER for streptococcal primary is what my hospital paperwork says??
  2. Hi... I'm new to this site...I have an 11 year old that started with sudden, intense anxiety and what seem like panic attacks (he does not have panic attack symptoms like heavy breathing, sweating, etc., it's more of all of a sudden he thinks he's in a dream, he feels fake, everything looks different.. it's a derealization) he cries, he yells, he kicks, he screams, and then he is completely exhausted and will sleep... sometimes this goes on all day, sometimes days in a row, some days not as much and we think he's gonna be ok... he is sleeping a lot, not eating, so anxious and scared, can't go to school, can't focus, they get worse and more frequent as time goes on... when he is awake he is obsessed about it happening and is constantly asking if this is real, is he really here, he is sensitive to light, his head hurts (maybe from the screaming and crying) he is not himself and has basically stopped functioning as the child he once was... 2 hospital visits and a week stay (first ER said see a psychiatrist) (second thought temporal lobe seizures but ruled that out) his blood work came back with a high TITER.. still sent me home with nothing except "come back if it continues" ... I stumbled upon PANS/PANDAS and actually know someone that has a child with this... she has given me so many pointers and who to call or see... my Dr. basically told me that some nuerologists don't believe this exists but wants to readmit him for a spinal tap to rule out other illnesses ... im just looking for any suggestions, ideas, advice? He does not have tics or the OCD like many other kids (it's just really being obsessed about these events happening) it's more the over top anxiety and fear (which is what causes these derealization events) and the sudden onset of this and complete change of my child, with the high titer that has me wondering... oh and he has not had strep recently but has had multiple times when he was younger .... lots of soar throats and colds and has seasonal allergies (takes zrytec daily)
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