freeindeed Posted April 5, 2012 Share Posted April 5, 2012 (edited) Anyone here have a child diagnosed with this? Here is a link that explains what it is: http://intramural.nimh.nih.gov/pdn/web.htm Someone online mentioned this to me when I described my dd's symptoms & behaviors. She is being seen by several doctors and (as of yet) we have not gotten complete answers to what is going on with her. We do have a couple of diagnoses for some of her issues (that I don't want to post on a public forum). I will say that she is visually-impaired due to a genetic condition and also has some developmental delays. Her neurologist is having a chromosome/genetic study done, and her pediatrician is having tests done to look for past strep infections and also any current type of infection. If you are familiar with anything like this, please PM me. Thanks! Edited April 5, 2012 by freeindeed Quote Link to comment Share on other sites More sharing options...
mjayal Posted April 5, 2012 Share Posted April 5, 2012 My son is DXed with PANDAS. We have done IVIG and long term antibiotics. Still do maintenance antibiotics dose. Let me know if you have any question. Meenakshi Quote Link to comment Share on other sites More sharing options...
freeindeed Posted April 5, 2012 Author Share Posted April 5, 2012 My son is DXed with PANDAS. We have done IVIG and long term antibiotics. Still do maintenance antibiotics dose. Let me know if you have any question. Meenakshi Thanks. I'm PM'ing you. Quote Link to comment Share on other sites More sharing options...
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