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Muscular Dystrophy MDC1A


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A friend of mine has a daughter (adopted from China who is 8 yrs old) who is recently diagnosed with MDC1A. She is looking for support forums and any information as she is struggling. They knew there would be physical problems when they adopted her (bilateral hip dislocation) but they didn't realize the extent. They have all fallen in love with this adorable little girl and are hurting.

 

If any moms have any resources to share, I would appreciate it. And, if there's anything specific I can do for her, (other than the obvious), I would appreciate that information as well. Feel free to PM if preferred. :)

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