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fourcatmom

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About fourcatmom

  • Birthday August 28

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  1. I totally understand that feeling. Yes, we have definately had some steps forward and still a lot of steps backward but we just keep trying to put one foot in front of the other. But, the tutor has really helped because it helps her to be accountable to someone else and takes a bit of the pressure off of me. She actually was doing fractions last week! We spent so much time in division I didn't think she would move forward. She is also doing more therapy now, including speech therapy for cognitive rehab and they do work on memory which has been great and then also CBTi which is cognitive behavioral therapy, insomnia. Plus pain psychology working through living with chronic pain. We still have some medical things to overcome and more procedures in her future but we will get there. We also had a cat diagnosed with diabeties (because you know we needed more medical stuff in our life) but it has been the best thing for her. Don't know if I posted this or not but as soon as the vet said he needed injections, my daughter took the initiative and learned how to do it. She also checks his blood levels. She now talks about being vet tech, first time in a long time she has thought about her future. Day by day, sometimes hour by hour but this year my focus is on hope.
  2. Yes, I have an 20 year old African Grey parrot, but that is a general pic not her
  3. Hey there! I just wanted to come back and say we are having some success with school now! I hired a turor that comes to the house twice a week and that has been the best thing for both of us! She is doing modified school but multiple subjects and we are working on consistency and moving forward. She did just have her shunt placed last month and so far we have had a few issues, including an infection and the headaches are still there but they were reduced for the first week so I will remain hopeful. She is also doing an extended year so we will continue just plugging along, especially since she missed for her recent surgery.
  4. Because I will have even less say in what she is learning and what materials are used. We sometimes are not home and sometimes we do school at all different hours which is dependent on her health so I feel like having someone come to the house might just be harder but we may end up going that direction if I can't get things together to have a successful year.
  5. Sorry for the delay in getting back on, so much going on right now. I will try to answer a few questions that were asked She is with a charter school through the school district. We have been with them since we started homeschooling. I did leave at one point a few years ago , or actually they pretty much kicked her out and I tried to homeschool her by my self but I found it was quite challenging in dealing with the school side of things and the medical and I felt she did better with the charter then with me. She does have an IEP. I am not sure it does any good. She has had neuropsych testing twice, once through the district and once with a brain trauma specialist through the medical center. On the medical one she was diagnosed with a mild neurocognitive disorder. There are only two degrees of a neurocognitive disorder, mild and major. Major is dementia. She also had a speech evaluation and was dxed with a cognitive communication deficit. Her scores in varies categories in testing were quite low. I don't honestly she get the whole LA thing, she is not at grade level math and that is not an issue so not clear on why LA is. She missed almost the whole school year last year and they added 2 more years to her high school plan to make up the credits. I am on the verge of pulling her and just doing home and hospital but I guess I still like the idea of more flexibility in choosing materials over the public school doing it. There is a program through her medical center that helps with schools but they have told me to go the home hospital route that the charter doesn't meet her needs. I am waiting for the charter to write into the IEP that she needs a laptop and I was hoping to do neuropsych testing again this year before I switched as we wanted to compare her results from last year before surgery to see if things have improved at all. I am still on the fence about switching but if they can't work with me then I will have to. I feel like that's what the school wants. One of her IEP goals is to do 60% of her work for 10 days straight. She hasn't met that goal yet and this is her third year on that goal. It's kind of ridiculous. If we stay with the charter I will ask the school advocate through medical to at least be on the phone during the IEP meeting this time. I have thought about counseling, she goes to a pan counselor but they talk about everything and I do have time with her as well but it's more limited and not focused on me per se. I do think the surgery will help, it's been in discussion for over a year but I am not quite ready to take that on just yet. I do suspect it will be in either Oct or Nov. though. I will look at the writing book again.
  6. Well I still don't have this all figured out and we got more bad news, or maybe it's good news if it will help her. But she has to have another surgery. She is a complicated case and they now know that despite her high brain pressure she still has a CSF spinal leak, typically you don't have both. But, she does. I have math figured out and I ordered the grammar.. I would really like a video based program for Science and I still need LA. All the of the suggestions were denied by the school as they are not age appropriate for her which I don't get because she is so far behind. Depending on this surgery we may just have to go the home/hospital route.
  7. Wow....thank you everyone for all the suggestions. It has been a bad day and I need to try and catch up and read the suggestions. Quickly though I saw someone ask how old she is now, she is 16. We are currently still trying to work with our charter school which places some restrictions on what i can and can't do. I did take her out a few years ago and try to just go the route by myself but I found I was very overwhelmed and it was too easy to just not do work depending on what was going on. I find that she needs the accountability (to someone else) and also needs to know she has a purpose in life. I like the idea of the current events just not sure I can put that all together to make it work for the charter. I have not read all the comments but I will come back and read them. Thank you again, I truly appreciate all the help! And, thank you for the science link I will check that out. M
  8. Thank you. I will take a look at all those suggestions tonight. Review of...not sure...she hasn't consistently done school in two years so I am shooting in the dark here a bit. Review of maybe things she might have learned in middle school then we progress or go back depending on what she remembers or what she needs. I don't want to overwhelm her, I just want her thinking about school, feeling confident and trying to do something each day along with the therapy and appointments that still need to happen. Most of the time she is lying down in bed but due to seizures that started recently I want to focus more on workbooks then computer stuff.
  9. I just looked at the LA program and that seems like a lot of teaching, I am looking for more review I guess at this point, some kind of small workbook she can work from, not sure that exists for writing. Going to do Easy Grammar Plus for grammar. Just something that keeps her learning and engaged each day is my goal, not new material right now. We are so hit and miss and doing school that I want her to feel confident again and more towards new material. I am not sure if that makes sense.
  10. Originally yes, whiplash while riding a horse in 2013, 2nd degree TBI when she was thrown from a horse head first into a corral rail in 2014, that lead to a diagnosis of Chiari Malformation (where the back part of her brain descended into her spinal cord), then a CSF leak (multiple), and now pseudotumor cerebri (which is high brain pressure) but we think she still might have a CSF leak. Along with a slew of cognitive diagnosis. But, she also had double vision start out of the blue in 2012 even before the injuries so we have been struggling in one way or another for about 6 years now.
  11. Hi, It's been a long time since i have been on, not sure if anyone would remember me. I have a 16 yo daughter who has had multiple brain injuries. We are going into her 11th year of High School but she has actually had 2 additional years of high school added so I have no idea what level that places her at but she is struggling. I need something for LA that has some writing and spelling. I don't need grammar. She really can't read books due to head pain but could possibly do audio books but she misses a large amount of school so I need something short and simple to just work on consistency and go over things. I also need an Earth Science and I am leaning towards that being video based with some small amount of work to follow up on video. We are in and out of the hospital for procedures, I don't really have the emotional energy to plan a curriculum so if there was something already written down that I could follow that would be helpful. We are on the verge of doing Home/Hospital but I want to give things a try before I move in that direction, the last few years of school have been almost non-existent due to treatments and pain. Any suggestions? I appreciate the help! M
  12. It's been a while since I posted anything. I need help trying to figure out good curriculum resources for my 10th grader, with an IEP and ongoing medical procedures. Right now and last year she was doing Acellus online. Last year was so difficult and she barely got any school done. She was going through a lot of treatment. I was leaning towards the computer school again because it is easy to have with us wherever we are. She has done school at the hospital (three hours from our home) as well as school at the Ronald McDonald House and sometimes at home too. She has a lifting restriction so carrying a bunch of books doesn't work either which makes the computer handy. However, she isn't really learning. I can't follow what she is doing and although she likes the independent piece of it, I just feel it's not moving her forward, Right now she needs LA, Math, Science and History... Reading is beyond difficult, it physically makes her head hurt. She needs short, concise lessons to drive home the idea and then practice. Something I can check easily, I am often overwhelmed coordinating the medical and I need something relatively easy to follow. Grammar and spelling are her stronger areas. She needs things she can do lying down. She spends most of her time in bed. She likes movies, and documentaries but then I have to have something to follow up with those on to see that she retaining what she is watching. Math she is all over the place, we are going back to basics. Simple things are confusing to her and not making sense. I will probably get a tutor to work with her for math but looking for a simple program to follow. Computer is okay. She was doing around 5th grade last year which a lot was simple but some were harder. Right now she is trying decimals. She has had brain surgery and she has spinal fluid leaks which make it hard to stand up. Both conditions affect your cognitively and she has also had a TBI. We also know she has a mild neuro-cognitive disorder. She doesn't feel confident is school. Its all very overwhelming to her. I want to find work that she will enjoy that will give her confidence, build her memory and challenge her a bit. Any ideas? Science is Earth Science and History is World History xposted on HS board
  13. Hi, It's been a while since I posted anything. I need help trying to figure out good curriculum resources for my 10th grader, with an IEP and ongoing medical procedures. Right now and last year she was doing Acellus online. Last year was so difficult and she barely got any school done. She was going through a lot of treatment. I was leaning towards the computer school again because it is easy to have with us wherever we are. She has done school at the hospital (three hours from our home) as well as school at the Ronald McDonald House and sometimes at home too. She has a lifting restriction so carrying a bunch of books doesn't work either which makes the computer handy. However, she isn't really learning. I can't follow what she is doing and although she likes the independent piece of it, I just feel it's not moving her forward, Right now she needs LA, Math, Science and History... Reading is beyond difficult, it physically makes her head hurt. She needs short, concise lessons to drive home the idea and then practice. Something I can check easily, I am often overwhelmed coordinating the medical and I need something relatively easy to follow. Grammar and spelling are her stronger areas. She needs things she can do lying down. She spends most of her time in bed. She likes movies, and documentaries but then I have to have something to follow up with those on to see that she retaining what she is watching. Math she is all over the place, we are going back to basics. Simple things are confusing to her and not making sense. I will probably get a tutor to work with her for math but looking for a simple program to follow. Computer is okay. She was doing around 5th grade last year which a lot was simple but some were harder. Right now she is trying decimals. She has had brain surgery and she has spinal fluid leaks which make it hard to stand up. Both conditions affect your cognitively and she has also had a TBI. We also know she has a mild neuro-cognitive disorder. She doesn't feel confident is school. Its all very overwhelming to her. I want to find work that she will enjoy that will give her confidence, build her memory and challenge her a bit. Any ideas? Science is Earth Science and History is World History xposted on Learning Challenges board
  14. Thank you again for the additional stories. I am there, I am ready and open to trying it but she has been in and out of the ER and I haven't had a chance to go get it and talk to them. I was already headed in that direction and now with the most recent ER visits I know it's the right choice. She has been having some intense crazy leg pain/spasm/cramps/tingling that has been going on all week and lasting for hours. Saturday morning (in the ER) it went on for 6.5 hours straight. Nothing they gave her would stop it and nothing was putting her to sleep which is what they were hoping for. She was completely exhausted. She says it feels like spiders inside her legs. They started at 2:30 am while we were in the car (driving home from 1st ER, long story) and continued until 9am (different ER) when they finally injected her with haldol. She has now been asleep for 27.5 hours with the exception of about an hour around 1:30 am this morning when she got up and ate. I have been waking her up to talk to her and she is ok, just very drowsy from all the meds. Nothing they gave her would make these movements she was having stop. They had to put seizure pads all around the pad because she was thrashing around so much because she was so uncomfortable. She was having them in one arm too. Stanford said they thought they were parathesia and/or neuropathy and started her on gabapentin. The second ER said it was dystonic movements or a dystonic reaction. She eneded up getting an injection of benadryl, an injection of toradol and oral ativan and nothing worked until they gave her the haldol. By then she was exhausted. This only happens at night and usually she can do things to make them stop, like soak in the bath or move them around. We always thought it was like restless leg but they have lasted up to 4 hours sometimes when they start but prior to this week were only happening maybe once a month or so. 6.5 hours was the longest and nothing was helping. Now with her being in her arm too, it's changing. Really thinking it's a nerve thing. I want her off these crazy meds that are either giving her these issues and/or making her sleep for days on end. So done. So tired. I went over 24 hours with no sleep. 6 hours driving to one ER, 7 hours 1st ER (where she had surgery) and 5 hours at the local ER.
  15. thank you for all the input and advice. I have the prescription and will be going down to talk with them. And, I do research everything the doctor recommends, prescription, treatment, procedure, surgery, it doesn't matter what it is. Initially, I think my reaction was maybe thinking of it as "end of life" option (I know its not but that's where my mind went) and I am past that and dealing with facts and what is best for her.
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