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Murmer

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  1. The school saying that she is no longer ASD?

    Relates to a major discussion of ASD and Autism. Where research is concluding that ASD appears differently in boys and girls, and that a new diagnostic model needs to be developed for girls. As the current model was developed with boys as the model.

    Which has also wrongly lead to the conclusion, that ASD is more common in boys than girls.

    But this is a result, of girls being diagnosed, with a method developed for boys.

     

    I'll  attach a link to an article in Scientific American, earlier this year:

    https://www.scientificamerican.com/article/autism-it-s-different-in-girls/

     

    After our "chat" with the psychologist we went home and found a heap of research about the difference between girls and boys and will be presenting it during the official IEP...this same psychologist didn't know what ABA is so I don't know if I trust her judgement very much.

     

    School psychologists can make an "educational" diagnosis of ASD and they can say that the child is no longer having any educational impact from ASD. That doesn't take away any medical diagnoses. Lots of kids with a medical diagnosis of HFA or, if they were diagnosed a few years back, Asperger's/PDD-NOS don't qualify for an "educational" diagnosis of ASD.

     

    The hard part is that my child does have education impact she is at least 2 years behind AND has not improved in reading (only known because the test score was in her IEP vs. what they told us at PTC) in the last year!  With special ed...again a really good reason to bring her home at least I can't do worse than the school is currently.

     

     

     

    The language issue is a common one for kids with ASD. My daughter has it, OhElizabeth's son has it. Even if your child speaks fine, she may have difficulty with the higher level language skills. Has she had any recent comprehensive language testing, like a CELF or a CASL? If not, I would highly recommend it. Even if she doesn't qualify for services based on the testing, the pattern of subscores can help ID areas of relative weakness.

     

    One program that both OhElizabeth and I like is by Super Duper. Her son is using The Grammar Processing Program and my daughter is using The Processing Program Vol. 1. The grammar one seems a bit more basic so that would probably be the one to start with.

     

    You will need to build the foundation of oral language in order for your child to have good reading comprehension. Otherwise you'll get a situation like if I'm trying to read something written in Italian. Sure, I could read it since I did study both French and Latin. However, I'm not going to understand more than the very basic gist of what it's saying. In order to understand it fully, I'd need to have a much better understanding of the language.

     

     

    One of the evaluations is the CELF...but I don't have those results yet...we found out about the removing of the ASD because the psych asked us to come in and "chat" but it wasn't an IEP.  The really results meeting is in Dec :( So I am researching getting everything set up and then officially withdrawing her right after the evaluation meeting. Because the state of Vermont requires a bunch of paperwork nonsense.

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  2. I think the Math U See recommendation is a good one. You will use cuisenaire rods for so much of it, and that will give her a physical feeling for the numbers rather than a language-based one. Ronit Bird is a favorite around here, and you can get her Dots ebook very cheaply. She uses dice patterns to learn math facts and to make numbers finally make sense.

     

    If a grade 1 book is too babyish, would your daughter be okay with doing worksheets that you write by hand? You could just copy problems out of a book onto printer paper and she'd never need to know the grade level.

     

    Thanks for the Ronit Bird suggestion!  That looks like a great resource to plugged up a few holes and allow her to perhaps start in a higher level in another system (IE instead of 1st grade she would be able to do 2nd since this looks like it will plug the number sense skills she seems to miss since she is really good with the memorized math facts).

  3. :grouphug:  :grouphug:  :grouphug:   I hear your frustration and am sending you good vibes.  Before I make a recommendation for curriculum, I think it would help to get some questions answered.  

     

    First, what sort of official assessments you have had done?  Is it possible your child is dyslexic?  Dyscalculic?  Did the school do evals?  Or through the private sector?  How do you know she has ASD?  Was there an official diagnosis?  If so, how long ago?  Why did the school reject the ASD diagnosis?

     

    She was medically diagnosed with ASD when she was 5 (almost exactly 4 years ago).  Then when she was 6 the school psychologist also said she was ASD.  This year they are doing her reeval for special ed and the same school psychologist says she is no longer ASD because she has an interest in social things...and there is a disconnect between what the school reported and what we reported (her teachers want her to be "normal" so I think they don't notice anything she is struggling with).  This actually shows that she is very much an ASD girl who is interested in social things but has a hard time doing it and the process of holding it together in school means she has no energy left at home...but the school psych doesn't understand this...along with not even knowing what ABA is.

     

    She has not been diagnosed with any specific learning disabilities...the biggest issue is that she just doesn't catch on to what was taught to her and no one will go back and teach her the basics.  I have been requesting a Barton esque program for years and have been refused.   For math she just doesn't understand numbers because the program used is so language based and language is very very difficult for her.  (Gap between receptive and expressive language along with issues in pragmatic skills).  She just doesn't have any understanding of place value or how numbers work.  

     

    Basically we are working with a child with gaps due to falling through the crack continually, she has a hard time with language and school is all language.  She is capable with learning and at one point last year was almost on grade level in reading...she has not made any progress since that point.  And math is just way to far past what she is able to understand and she really just needs to go back to the beginning and get it more linearly and less words.

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  4. Backstory: We are pulling our daughter out of school due to major issues with the school.  She has ASD but the school refuses to acknowledge it.  She is currently in 4th grade, reading on a 2nd grade level, math low, writing nonexistent.

     

    So found out today that my daughter is even further behind than we thought...I had her do the assessment for Beast Academy 3rd grade...she couldn't even do the very first multi digit addition program.  I realized that basically she only knows 1 digit addition, subtraction and multiplication (basically memorized basic math facts).  But if I give her a math book that says grade 1 she will refuse to do it.  So I need a math program that will hold her attention but basic enough without looking like it was made for a young child.  I loved the graphic novel part of Beast Academy thought it would hold her attention and allow multiple rereads to learn the material but they only start in 3rd grade and that is still too hard for her.

     

    Also need a remedial phonics program.  I think she has some phonics skills and is missing others, I need something she can breeze through what she knows but with enough depth if one of the holes.  Again if it says for 1st grade she will not be willing to do it. Any good ideas?

     

    TIA

  5. Thank you so much!  I am going to answer a few parts of your message :)

    Do you know where you're moving to?  If you move to a state with a disability scholarship, that could be smart.   :D

     

    We are hoping to go across the state line to New Hampshire which has much more liberal homeschooling laws along with the possibility of better public schools.

     

    You asked for spiral math, and you're looking at Saxon or CLE typically, if you ask in the homeschool community.  R&S is known for having a slower pace.  Do you know if she has SLDs or a lower IQ?  I'm just asking, because if there's SLD writing, you might want to factor that in with your choice.  It's not what you asked for, but for my ds (3 SLDs plus ASD/ADHD, gifted) I'm able to use the hands-on of Ronit Bird plus a variety of Daily Warm-ups and things from Teacher Created Resources.  For him, they're just enough, and the answers often have multiple choice options, keeping the writing down.  But math is really personal.  Go with your gut. If you're dealing with a low IQ, you might want to google site search here or start a thread asking specifically about that. 

     

    She is not low IQ but she does have ADHD.  She also has speech issues which make story problems and programs with a lot of language very very difficult...but if she is taught the algorithm she has been able to be successful with math.

     

    You're saying Social Thinking.  I want to blow the pop top lid here on what you *can* do and *can* make happen at home.  You can have ABA while you homeschool.  I use our disability scholarship and have an ABA tutor, who does some academics in the context of working on behavior.  So anything where we have compliance and self-regulation issues, I throw the materials to the tutor and she does them with him.  Golden, simply golden.  It has gotten us HUGE breakthroughs.

     

    We JUST got an ABA company that is willing to come to our house and that is one of the things that is intriguing me about homeschooling...they would have more time to work with her which right now is limited to only after school hours. I will go research more at social thinking.com.  Sadly for some reason I live in an area with very few resources for ASD...there is 1 speech therapist that is taking people and they finally opened an OT within 45 mins of my house :(  But again bringing her home will give us more time to be involved in these sorts of things.

     

     


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  6. We are having issues with the school (they refuse to acknowledge my child's needs and diagnosis)...at this point we hope to move next year so not sure its worth fighting them...I had considered home schooling before her diagnosis so it is not a foreign idea for me...but now I am trying to figure out how to do it if that is route we take.  

     

    1) I am in the state of Vermont, I am a certified teacher in the state of Vermont, my child does have an IEP (but it is not sufficient for her needs especially when the school just ignores it).  According to what I have read they can make me to go "trial" over home schooling.  This concerns me especially as we are looking at only 1/2 year (but may be less effort than dealing with the school).

     

    2) She needs an algorithmic based spiral math program any good ideas for a child with ASD?

     

    3) Social thinking curriculum ideas?

     

    4) Other suggestions that I should consider?

     

    TIA!!!

  7. We have been taking our kids since my youngest was 9 months old...yes I would take a 3 year old to Disney...but I would plan it toward them.  We always took a family member to be a nanny...this person would get afternoons off to do what they wish while we did naps...but then they would take the baby in the evening so we could have nights off...we paid for the room and tickets nanny had to get there (mostly because they live too far away for us to arrange it all).  It can be a fabulous vacation and so fun to watch the wonder (or fear which is also adorable) of seeing giant stuffed animals that move.  

  8. My dd and I like "Mossimo long & lean" tanks from Target.  Dd says when she wants a higher neckline, she wears the tank backwards.  The neckline is high enough for me (totally covers my bra).

     

    I also love these...but I am short so I usually take them in about an inch at the shoulders so they cover my chest a little higher but they are super long so it doesn't make a huge difference in the length.  

     

    I also really like the Downeast Outfitters layering tees...but the last set I bought were shorter than I am use to and I am short so that may not work with long torsos.

  9. I don't know how ebay does not delivered but Ebay does stick by its policies which are typically buyer friendly...I had an issue with someone who sent me counterfeit items even though the listing said authentic...I had to file for return and wait 7 days for a response then on the 7th day I called and got my money right back.  So I think it will go well for you if you never receive it but you may have to wait depending on the policy for items not received...perhaps escalate it now?

  10. 1900 Park Faire is at the Grand Floridian Resort, its a buffet but you meet Cinderella, the prince, the stepsisters and the stepmother...parking at the Grand Floridian Resort is free if you have a dining reservation.  It would probably cost you about 100 dollars for everyone to eat but that is the same cost as 1 person at MK.  Another option is to go to Epcot where they have Mulan, Belle, Aurora, Snow White, and Elsa and Anna are headed that way...its like 6 dollars cheaper per person to do a one day at Epcot.  If you want to see all the princesses (and spend the money) the sit down dining in Norway has all the classic princesses including Ariel.  So that could be a cheaper way to see princesses than MK.

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  11. Those of you who were taught it or have used it way back......what grade levels did you teach?

     

    I did 2nd grade for 1 year, 1st grade for 4 years and reading recovery for 3 years.  The idea of balanced literacy is great...the idea of using all the skills together...but sadly what it has become is literacy with no phonics...or imbedded phonics...I hate imbedded phonics because the smart kids get it naturally and everyone else has no idea what is going on and there is no ladder of learning...so one week it may be short vowels, then the next consonant clusters, then silent 3 then back to short vowels depending on the books chosen as opposed to building on the skills as the children understand them. I love teaching reading with a balanced approach but that includes a very strong explicit phonics program!

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  12. We are at Disney right now and it is crazy busy...but we have had a really enjoyable time none the less.  We did do some planning but it was rather last minute so not a lot of dining/FP+ for headliners...yes you can just show up and wing it but it is more fun if you are slightly prepared...all the menus for dining are online...go look them up by park and see if there is anything you like and want to do.  Look at the rides at each park and pick the ones you HAVE to go on...then try to get a FP+ for them, you may have to be flexible and know that you will rope drop 1 and FP the other big ticket because you probably can't do both.  The best advice is to show up at rope drop...the parks have been doable when we rope dropped them this week...even though after the parks were closed due to volume twice when we were there.  We take mid day breaks most of the time and go back in the evening....Plan for varying weather!  It has been so hot here this week (80+ every day we have been here) but then when we leave it will be 65 as a high so be ready for both extremes.  But it is so much FUN!!! 

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  13. See if there is a masters group!!  Its swim team for grown ups (so a bit more laid back).  The coaches can help with stroke development, there is a group of people there to help (even the speedy ones are cool with hanging with the newbies).  In my group there is a group that calls ourselves the guppies who all started together and learned together...I never met them until I started swimming but it is so much fun.  So check and see if there is one locally and give it a try.

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  14. Oooh! I'm going to look at that... what does an "unlocked" phone mean?

     

    unlocked means it will work with any carrier that uses the same type of towers...basically there are 2 types of towers...one that ATT works with and one that verizon works with...so a verizon phone won't work no matter what on ATT but if you have a regional carrier that uses the verizon towers you could use that phone on that carrier...at least that is how I understand it...it means you are not 100% locked into verizon.

  15. Can someone tell me why Carnival is not a good cruiseline?

     

    And thank you for your input to both of you so far. It really helps.

     

    It's a booze cruise basically...I took my family on Carnival as our first cruise and it was not a great experience.  The food was basic but they couldn't feed my child with a milk allergy...she literally lived on bacon and hamburger meat without a bun and ketchup...this was after calling the cruise ahead of time.  The pool was salt water and LOUD, full of drunk people so we felt like we couldn't take our kids out to the pool...we tried but it was awful. I am a do things person and almost every day I would look at all the offerings and only found 1 thing I wanted to do on the very last day a disney music trivia game...but I couldn't take my kids because it was right in the middle of the casino the only place smoking was allowed.   Basically it was boring and mostly for people who wanted to get drunk and party WHICH is great if that is what you want (I highly recommend it for a Bachellorette party would be way fun) but as a family looking for family fun it was not a good cruise line...so I think its more about what you are looking for partying/drinks Carnival is great for that but for a family based cruise not really good for that.

  16. Also if you want to play by month for the iPhone another option is the plan via Apple...I have been looking at that program for when I am up on my contract because it seems to be the same price as everything else but gives me more options...you get an unlocked iPhone plus apple care.

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