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bettyandbob

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Posts posted by bettyandbob

    Boy Scout with Downs Syndrome article

    in The Chat Board

    Posted

    Eh, it’s on the leaders in this example and not the Girl Scouts or the buddy rule. Scout y needs to go to the bathroom and needs a buddy. She tells the leader she needs to go to the bathroom, leader says girl x go with girl y. Problem solved. It happens all the time with our troop. Since we have Cadets to Brownies, often a Cadet goes with as a buddy, but two Brownies can go. If you have a buddy already identified, tell the leader and head off. If you don’t, in about two seconds the leader can arrange it.

    Again read the rest of the post. I have many more examples. But the thread isn't about problems with girl scouts. So I'm not going to there with their bureaucracy.

     

    I'm just saying the idea that you can avoid levels of bureaucracy in girl scouts is silly.

    Boy Scout with Downs Syndrome article

    in The Chat Board

    Posted

    The “buddy†rule is for safety reasons and just plain common sense. Girls should not be wandering off by themselves. My daughter’s school has a similar rule for their students.

     

     

    Sent from my iPhone using Tapatalk

    One example of stupid decisions. And think about it how long do you wait to find a buddy? And once you've blown it with a kid do you make the same mistake again a couple days later because humiliation is fun for 8 year olds.

     

    I'm not going to go through the list from 6 years of gs. Both my boys were/are in boy scouts. I don't have a similar list from their experiences.

     

    My DD did have a nice leader, who was also heavily involved in boy scouts. She had a venture crew that was just older girls from the girl scout troop. They started doing everything under the auspices of venture crew. Too much red tape to do stuff as girl scouts.

    Boy Scout with Downs Syndrome article

    in The Chat Board

    Posted

    This thread is making me glad my SN child is a girl and in an organization that is far less bureaucratic than BSA. I don’t know if she will be capable of planning and carrying out a Gold Award project but if she does not earn it it won’t be because National has decided to nitpick all her badges.

     

     

    Sent from my iPhone using Tapatalk

    You think girl scouts is less bureaucratic? Not my experience at all. DD did brownies through finishing her bronze award and then dropped it to focus solely on 4H.

     

    Her years of girl scout participation were definitely filled with bureaucracy and rigid rule following that made no sense. One example was counselors at gs camp not allowing DD to go to the latrine alone, but not getting her a partner to go. How do you let a 8 year old wet her pants twice in one week because you have a procedure. DD never went to go camp again. She did go camping with her troop and she did go to other overnight camps. DD encountered similar inflexible adherence to procedure throughout her time in girl scouts.

    • Like 1

    Reasonably priced restaurants in NYC, close to Manhattan for a GF family...

    in The Chat Board

    Posted

    I took my DD to NYC 10years ago. It was the first time she could order straight from a menu-- best birthday ever. DD has celiac. I planned our meals using Yelp back then, just plugging in diet and dollar restrictions and a got a good selection. Then I put the choices on a map so I could what was near each venue we wanted to visit. Awareness and food choices in restaurants has significantly increased since then so I think you don't have any problem.

     

    There's also a gluten free NYC website.

    • Like 1

    Boy Scout with Downs Syndrome article

    in The Chat Board

    Posted

    I can be on board with having clearly defined specific requirements. There have been young men who happened to have down syndrome who achieved Eagle. 

     

    If the situation is truly based on clearly defined specific requirements, the problem I see is someone set this young man up to think he was meeting requirements. There are consequences to doing that. He could probably have been happy as a scout progressing with the badges he could do with appropriate accommodations. Letting stuff slip by created expectations. Backing up on those expectations can be seriously damaging, in a way that is not something easily recovered from if it can be recovered from. 

     

    • Like 6

    anyone have suggestions for shoes...

    in The Chat Board

    Posted

    I am looking for shoes that are good for standing and walking on hard surfaces for long hours. 

     

    Is there something built on an athletic sole that is cute. I'd like to be able to wear without socks. 

     

    One of my problems is I wear 10.5 usually. After size 10 most brands don't offer half sizes. If I knew a brand ran big or small I might be able to deal with that. 

     

    I was looking a jambu shoes recently, has anyone worn them? What other brands should I look at. 

     

     

    Boy Scout with Downs Syndrome article

    in The Chat Board

    Posted · Edited by Diana P.

    I also wander if there's more to the backstory. Like someone decided their boy's achievement couldn't be tarnished by this young man getting something comparable. So they pushed the local and national organization to review.

    I know exactly what parents mean when they say the activities uncovered ability they didn't know their son had. One reason I like participating is it's a way to push my ds' learning.

    I also know the pain when something close to the child is taken away. Whatever happens, I doubt this boy will wear a scout uniform again. A bully scared my ds out of the swimming pool. At that point he had had a successful year swimming on the neighborhood team. It was two years before he showed he knew how to swim again (2years with me dragging him to the pool because I didn't want him to forget). He does compete now (neighborhood and special Olympics),but he's never had the same level of joy he previously had. Something important was taken away.

     

    ETA: about the "important" thing. As parents we like to help our dc find a passion or find a sense of purpose or find simply find something basic to enjoy doing. Achieving that for a child with special needs can be extremely hard. When it is taken away the pain is deep and finding something new may not be possible. Our kids cannot just go try something new. There are not a lot of opportunities for our kids to try stuff in the first place. 

    • Like 8

    Boy Scout with Downs Syndrome article

    in The Chat Board

    Posted

    Wow.

     

    As the parent of a 16 year old, who is a scout, who has down syndrome, this is hard to process. I've been putting my years of special education training to good use adapting materials. Or at least I thought I was. Our troop is all young men who have special needs. Now I am wondering about how the council treats us.

    • Like 7

    Anxiety

    in The Chat Board

    Posted

    Exercise.

     

    It's hard because you are stressed so you think you don't have time to exercise. The reality is you able to tackle what has to get done after exercise because you are less stressed and more focused.

    • Like 2

    Asking young adults to contribute to household

    in The Chat Board

    Posted

    I don't think you can say he's covering his med and dental. Someone has a job that is paying for insurance. Eventually, get will age out of your insurance. Is he 20-21? Five years until he has to get his own insurance is a very short time to get oneself together to manage that expense.

     

    I have a 2e DS who we have to constantly push to make each next step towards self sufficient adult. He is doing it one little step at a time. He's in grad school studying a subject he likes, without a plan what to do with it. But he also has a job (that he's not thrilled about) to support that endeavor. He's generally late in figuring out the next step (what classes he should have taken, finding internships, finding campus apartments), but he's slowly figuring out he has to do stuff despite being perpetually late to the party.

     

    Your DS sounds stuck and lacks understanding that the next step towards an independent adult life is not optional.

    • Like 4
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