Jump to content

Menu

aanj

Members
  • Posts

    22
  • Joined

  • Last visited

Posts posted by aanj

  1. I am having issues with my 15 year kid son with adhd.

    He refuses meds, he did neurofeedback and it seemed to help. I was a believer, however, over the last 6 months things have declined.

     

    He either needs meds or neurofeedback. We can't go on like this.

    Would you try some booster sessions of neurofeedback or go for the meds?

  2. Thanks for the reply. I realize our regular optimetrist is not an expert in this area.

    So, I looed on that website. There are two listed there that are in my town.

    However, I know nothing about them. There are a few others that are not listed on that site but are rated well on ratemds and do seem to specialize in this area. Still, I don't know anyone who used them.

    However, you are making me think it's pretty important that they are on that site.

    I guess it's better that they are.

  3. I am no expert but you might want to see if there is a Developmental Optometrist in your area, if you haven't already. A standard optometrist or even an ophthalmologist may not have the knowledge and background to determine if there is a developmental eye issue. And since developmental eye issues have not been well understood or even acknowledged until fairly recently, many standard eye doctors are not aware of the latest research and tend to dismiss developmental eye issues, even though they DO exist.

     

    Look here: http://www.covd.org/

     

    But other than that, I really don't know. Obviously there is something at work, though. Hopefully others will respond with more knowledgeable feedback...best wishes.

    Is it important that optometrist is found the on COVD Website?

  4. I will be discussing this with the optometrist but my question is below.

     

     

    My son is 15. He has adhd. He is left handed. He wears glasses.

    When he writes, instead of sitting upright and looking down on his page, he brings his whole head to a few inches from the page. He bends his body over the page. He is less than 12 inches from the page.

     

    Also, when he plays on the handheld devices, instead of sitting upright and looking at the game, he bends his head over the game and close to the game. I am constantly telling him to stop moving his head to the game. Instead of looking down with his eyes while keeping his head in the same place, he moves his whole head down to his book, game...

     

    What could the issue be?

    Who should we see?

  5. Son is 13 and years ago saw an OT for fine motor who stated he had issues with proprioception. He has ADHD.

    Anyway, the hasn't had the OT for a while. He does swimming and martial arts.

     

    The OT did give us exercises a long time ago. I don't think it helped. Maybe we just weren't that consistent.

     

    Things he does-he hunches his head over the table of computer always. Never sits up straight. He also LEANS his head on things all the time.

    He fidgets like crazy. Chews things a lot.

    He falls and trips on something every day. When pouring drinks he spills all the time. He is generally hugely clumsy.

     

     

    Should we get another OT to work with him on this? Will it help long term?

    It seemed to me that the exercises helped for that day, not a permanent solution.

     

    ETA He manages without meds, does very well in school. He is a sweet boy, Just very clumsy.

  6. How do you people afford it??? The local provider here wants $100/session and wats him to do 3 sessions/week! Once I week I could possibly do down the road even though it is an hour each way but $300/week? Not a chance.

     

    We have spent about $10 000 when it's all done. We afford it the same way people afford other things like braces etc. I know some people can't afford it. It's not easy for us either. But we make a decent income and basically stopped putting money into savings, plus I am trying to work a bit extra. When spouse gets a bonus, we put it towards that. Takes some maneuvering but somehow we make it work.

    We have scaled back on other things too.

    Now son only goes once weekly so it's much easier. Before was was 2 or 3 times a week, that was costly. But we knew it was temporary.

  7. The neurofeedback clinic in Canada I'm considering is called The ADD Centre. The director is

    , who is the author of both ADHD and neurofeedback books.

     

    The assessment takes 3.5-4 hours, which includes a single-channel EEG and written report ($880). In complex problems, a 19 channel EEG may be recommended for accurate assessment and training recommendations (I think an extra $950).

     

    Tools used include Low Resolution Electromagnetic Tomography (Loreta), 8 channel Thought-Tech Infiniti, and training in the use of metacognitive strategies, which sounds great for DD since she probably also has dyslexia, dysgraphia and dyscalculia in addition to ADHD. Each 50-minute training session costs $125, so 40 sessions over 5 months plus assessments would cost around $6830.

     

    Does anybody else on the forum have neurofeedback experiences to share for those of us who are seriously considering this "Level 1 - Best Support" intervention for ADHD?

     

     

    Hi there,

    I am wondering if you started the neurofeedback?

    I wanted to share that my ds who is 13, he did the neurofeedback. He did well. We were told because of how severe is ADHD was, he may need 80 sessions. He was on 72 mg of concerta at the start.

     

    After 20 sessions it was summer holidays from school, we took him off the meds. He has not gone back on meds. We are now at 62 sessions and could probably stop but we will go to 80. It has helped him tremendously. Yes, he is not perfect and can still be impulsive. But he is managing decently without meds.

    I never thought I would be possible.

    When we started, my GOAL was to lower his meds,I never thought he would of off completely.

  8. We have done Interactive Metronome twice with two different providers. I found myself in a similar position as you. Our VERY experienced provider was 6 hours away and our local provider had about 2 years of experience. For our second round of IM we used the closer provider and it helped, but after reviewing his final scores with the other provider I found she would have pushed him even further. Our situation was different in that our providers were out of two different practices and did not work together....if the more experienced IM therapist could have imparted her knowledge (via phone/email) during the sessions we most certainly would have had even more success.

     

    If my experienced provider lived only an hour away we would have hands down made the drive to her. She really is quite exceptional and has put many, many children through the program. Unfortunately, 6 hours would have required a temporary move.

     

    Depending on the experience level, I lean towards using the experienced OT. Given the time and effort of IM, I would want to get the absolute most out of it. You will already be setting aside a chunk of your day and it is for a short period of time. It is also a lot of work for the child....why not give him the best teacher. Assuming you home school this is the perfect time to cut back on school work.

     

    Has the inexperienced OT gone through the IM training?

     

    I would express your concerns with the experienced IM provider and confirm that he/she is VERY comfortable with your child seeing the inexperienced provider. Ask if you could switch providers part way through if the expected progress is not on track. The great thing about IM is that progress IS measured. Find out where your son is expected to be at during and the end of the program. Yes, every child does progress at different rates, but certainly the experienced OT will have some idea of the expected progress. This way if your son is far off, you can look at whether it is just his normal progression or the OT's lack of experience.

     

     

    Yes the experienced OT has done the IM training.

    She did say measurements of progress are subjective.

    She feels comfortable with the other OT.

    I know I would be able to change providers if I wasn't happy with progress. I just don't know how I would know that progress was poor.

  9. My son does IM and am considering moving to IMhome. He's been doing it with the provider for the last 6 months. I would consider the closer OT if you or the experience OT have a close/working relationship. The closer OT would need to give some feedback (was the child paying attention, looking away, or focusing) but the adjustments come from the experience OT. I would also consider maybe waiting to start over the summer and then switch to the closer OT or at home once you started back up at school.

     

     

    I don't want to wait till summer because, the benefit coverage ends jun 30 and restarts July 1. So I wold lose the $1500 coverage that I need to use before the end of June.

  10. http://www.imhome.org/

     

    I have not used this, and I am not a certified provider, but I am a speech pathologist and I have seen this advertised as a way to receive this service at home via the specialist helping the child by using skype. I am considering it for my own son.

     

     

    Sounds similar to what the OT would do except, instead of me doing he home program, the other OT wold be doing it.

  11. I have not done Interactive Metronome with my child. But I have looked into it a lot. I have talked with providers, as well as people who have done it with their kids. I personally would not want someone who had never done it before as the provider. From what I have read and heard, you want someone who can adjust this program to what your child needs. It is more complex than it sounds. I totally hear you about the drive - that would not be fun. But I probably wouldn't put my time and effort into it with a first time provider.

     

     

    The experienced OT would be setting up he program and she would teleconference in as needed, she would train the other OT. The experienced one would be adjusting the program from afar.

  12. Hi, I am new here.

    My son is 13, he has ADHD.

     

    I am considering IM for him. Benefits will cover the cost, so I don't have much to lose.

     

    MY dillema: There is only one qualified OT in the area who does it. She moved offices and is an hour away from us.

    She gave us 2 options

     

    1) Go see her in her city. It would be a one hour drive each way, after school. She does not work weekends. (so would take 3 hours total)

     

    2) She can have an OT from the local office site administer the IM, that OT has never done it before. The experienced one would over see it, which she states is the important part.

     

    I cant decide. How important is it that the person doing it has experience? I would have thought is was very important, BUT then I remembered people do the at home version of IM therapy with success.

    The COST is the same per hour for having either option.

     

    Doing it in the summer is not an option.

×
×
  • Create New...