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Beans27

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Posts posted by Beans27

  1.  

     

    None of this is about CAPD, but to get back to it, it's important to realize CAPD also has effects way beyond academics. It has the potential to affect every interaction and therefore every relationship. IMHO, that's the most serious aspect to be aware of. I really don't know about dyslexia.

     

     

    I agree. I have 3 kids with varying degrees if CAPD. It seriously affects their lives. People don't undertand that either.

  2. My mom had metastasized breast cancer at 33, radical mastectomy, chemo. She was fine for 22years then she got cancer in the other breast. Mastectomy and chemo. A year later they found she had ovarian cancer. Surgery and chemo, chemo, and more chemo. Finally it came down to quality of life for her. She died 2yrs after diagnosis, at home with hospice. They were wonderful. There was only so much help I could give with a 2yr old and a newborn.

     

    I think everyone's cancer story is different.

  3. Thanks everyone. :grouphug:

    What prompted the pity party was something incredibly stupid.

    I've been drooling over Bitty Twins from AG for Princess. I *know* she'd adore them. She's been asking for a boy doll. And I know that being able to have a doll w/nice hair that doesn't mat would thrill her to pieces.

    It was the realization that if I bought this, I wouldn't have the $ for groceries. That's what prompted my whining.

    If Wolf's job hadn't fallen apart, we'd be doing so well right now. We'd be paying less than half of what the mobile cost us, incl utlities. And have benefits. And a steady income. This Christmas would've been awesome.

    But now, it's a time of stress and fear. And honestly, I'm angry about it.

    We've found out since, from a former crew member of Wolf's that they're totally messing w/everyone...eliminating his position pretty much everywhere, have slashed the budget dramatically, etc. As we suspected at the time, it really had NOTHING to do w/Wolf, but everything to do w/the fact that he was on probation, and they could get rid of him w/out any negative backlash for them, incl having to pay unemployment insurance to him.

     

     

    AG is addicting. Just...walk..away..from..the...catalog. LoL

    But seriously, if you are near a store, you can buy just one twin. Aliitle cheaper.

  4. I understand. I am sick and tired of worrying. Christmas is a month away and it is all I can think about. I feel paralyzed. I hate this feeling.

     

    I am on SSD, which amounts to barely anything. DH had an accident in July and is out of work. Hoping to go back soon.

    I applied for a moratorium for my mortgage in July, sent the additional info they needed, and am still waiting for a response. We could be in foreclosure for all I know. Opening mail is too stressful, bad I know.

    My dad is paying the tuition for our boys. TG we have him, but it's not fair to him to use his money for that. If DH was working and able to drive, we'd be ok. I know this will end and is only temporary, but I feel like I can't see the light at the end of the tunnel right now.

    I try to keep thinking how blessed we are and how others are suffering. But it is hard to stay positive when the holidays come around.

     

  5. I see you have twin girls. Are they both doing this?

    I have a 10 yr old DD also. She isn't snippy to others, but will try to act funny on the phone with certain adults. As though she's me.

    I correct her and tell her she doesn't talk like that to adults.

     

    I can also be snippy at home, can't we all? LoL. But I am not sure that is completely the cause of a child being snippy.

    Maybe something else is bothering her?

  6. Does anyone use this site? My dd used these little books a lot in ps. This is our first yr hs-ing. I'd love to let her continue with these books, plus it helps to track her progress since I know what level she left ps at.

    Problem is it is expensive to join.

    Any ideas or advice?

  7. Thanks so much for all your replies!

    DS is definitley not adhd. Possibly add but then again he's a boy. ;).

     

    I spoke to one psychiatrist who sounded great, but doesn't take insurance. So Monday I will call those who take our insurance and hopefully find one who has an opening.

    He was bullied in ps starting in 4th grade. 6th was the worst year, but he knew he was getting out for jr high. Now that I am homeschooling dd and see how easly it is, I wish I had just pulled ds and homeschooled him. The bullying changed him and if he definitely has dysthymia, that is the cause.

    He is now off Strattera for 3 full days and is back to himself. The meanness is gone.

  8. Well neuro finally called back. She said stop strattera, which we already did. She said ds is obviously not adhd because of how he reacts to the meds.

    She thinks it's anxiety based. My oldest ds has that too.

    So, now to make appt with psychiatrist because the anxiety and dysthymia is more than she wants to handle.

     

    He seems better off the strattera, but his anxiety is back.

  9. My 12yr old is in private school. He's dx with all the dys. We think he might have add. He was on Concerta in 3rd grade but he was too robotic and lost too much weight so he went off.

    Last year, his neuro rx'd intuniv. It seemed great, until he went up on the dose. Then he was zoning out too much. So we went back down and it just wasnt the same. So he went off that.

    Now this year, his neuro rx'd strattera because it's good for anxiety and add. Things were great for a week, but then he started really crashing at the 8hr mark and was outright nasty. He's still in school at the 8hr mark. :scared:

    So today I told him not to take the strattera and see how he was. After school he seemed so confused and out of it. But he's not nasty. Tonight he seems better than earlier. Not so confused.

    He also has anxiety, epilepsy, and capd. He had a neuropsych this past summer and it said, among other things, r/o dysthymia, which is chronic depression. I have been saying something was up for the last 3yrs. He has gone downhill. Nothing makes him happy. He rarely smiles. He is like Eeyore from Winnie the Pooh, that is the best way to describe him.

    I am so torn about what to do. Our ped doesn't deal with antidepressants or adhd meds. His neuro hasn't returned my calls his week. (drives me crazy when they can't bother returning calls)

    His anxiety was alot better on the strattera. It was just coming down that was horrible.

    Any advice?? Ideas? Anything? :001_smile:

  10. Have you gone to Linguisystems or Super Duper to get some games or activities to work on this? My ds with verbal apraxia has grammar errors my dd never had. I think it's just a matter of the brain trying to think and process so many things at once (motor control and thoughts and grammar and...).

     

    Thanks for the info. I will definitely check those out!

     

    My 14 yr old ds was diagnosed with apraxia as a preschooler. My dd was-is so much worse. I asked her speech teacher she had at school if she had apraxia and she said most likely, based on her speech now.

     

    She has come so far though. Just last year she was still saying "her is" or "him is". Stuff like that.

  11. My 5th grader has always had speech issues. I think she had apraxia though the ps doesn't diagose. This is our first year hs.

     

    She qualifies for speech thru the sd 1x30mins a week. Her artic is fine at this point. It's more a grammar issue.

     

    She'll add -ed to the end of any word to make it past tense. Ex. Runed instead of saying ran. She will also add ed to a word that alredy has ed. Ex playeded.

     

    She doesn't write it like this, just says it like this.

  12. Thank you for bumping this thread! I had signed my kids up for Learning Ally when it was Reading for the Blind and Dyslexic and FREE.

     

    I thought I had to have a CSE and have Bookshare put on dd's IEP in order to get the school to download it on her laptop.

     

    But now I know I can get it without involving the school! :hurray:

     

    I faxed the disability verification form to the neuropsych to fill out and we should have Bookshare shortly!

  13. My dd uses it for APD. SHe was diagnosed with APD in the spring of 3rd grade. The school already had the program so she began using it an hour a day before school. Then in 4th grade, the head of spec. ed changed things. DD was then doing the program during school. DD wasn't happy about missing so much class.

     

    So we purchased the program and use it remotely thru a speech pathologist in another county.

     

    If DD hadn't been able to use it in school, I am not sure I would have purchased it. But after seeing the improvement in DD's APD, I had no issue with purchasing the program.

     

    She does it at home 30mins a day 5 days a week, then the speech pathologist emails me a report at the end of the week.

     

    I definitely see a difference. DD is also dyslexic, but I don't see any improvement with her dyslexia, only her APD.

     

    You can go to the FFW site and call around for quotes from local providers and then call off site providers and get quotes. That is what I did and I went with the cheapest.

  14. My dd had apraxia also and is dyslexic. She was in ps and they gave ger speech therapy and Wilson reading. When she hit the wall in 4th grade, they agreed wIth me that she needed Lips.

     

    Looking back, I would have started her on Lips in K, definitely!

     

    Not sure how much they get from earobics. My dd did better with fast forword. Expensive but I really saw a difference with dd's APD.

     

    HSing this year because I'm not happy with how slowly the ps is working on her reading and dyslexia.

  15. I really have nomadvice, but wanted to say our girls sound so much alike.

     

    Mine will be 10 in a couple weeks, going into 5th grade. She also plays with her AG dolls and loves them. She will watch National Geographic too.

     

    She plays teacher with her dolls and is very into her pretend play.

     

    I don't hear of many girls her age who actually play with their AG dolls so I had to reply!

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