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lloyd77

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Posts posted by lloyd77

  1. Can I join in? Starting tomorrow. I did a whole60/paleo starting last Jan 1 and lost 40 pounds total before, once school started again, gaining it all back. Trying to get back on track and in the right direction.

     

    Lindsay

    • Like 1
  2. The frontier or a graco nautilus would work fine for what you need.  We have a frontier for my petite 9 year old and love it, and have a nautilus for the second car.  I like the frontier better in every way (ease of buckling, ease of adjusting harness, plushiness of seat, etc) but it was about 100 bucks more expensive.  The nautilus is a perfectly fine seat, though, I just like the frontier better :)

  3.  

    Ds's sweetie is a very private person, and I have no desire to intrude. Ds is very open though, and is certainly likely to talk about it with his folks while pondering it in his own mind.

     

    I can understand where you're coming from, too. It is certainly a touchy subject--were I dating someone knowing that I was a carrier, I would probably bring it up and my perspectives on children, etc., fairly early in the relationship. If our perspectives were radically different, that would be best to know before you get too involved. I think for most people with hemophilia, though, it's not a reason to not have more/any children.

     

    Thanks for clarifying, too, Mandy, I know it took me several visual aids to get straight the percentages! Nice to see another hemophilia mom:)

     

    Julie, there is a book called "Raising a child with hemophilia" if you really want to get into the nitty gritty from a mom's perspective. They handed it to me before we left the hospital with my son. Helped me to get a better handle on it than the statistics and studies I was finding online.

  4. But isn't hemophilia completely treatable? From what I read, the life expectency for people with it now is darn close to normal.

     

    And yes, this is a touchy subject for me... :P

     

    I believe, from what I've read, that the life expectancy IS normal--like 79 years or something. Not different from the normal male population.

     

    And no, our factor products are no longer blood-derived. That's why they're so expensive.

  5.  

    Since I don't know very much about the condition, or what lifestyle differences it might entail, I thought I'd seek advice from folks who know more than I do.

     

    (haven't read all the posts, just responding to OP on page 2)

     

    I'll come out of lurkdom to add my 2 cents:) I am a carrier of severe hemophilia, and have 2 sons that have the condition. (we did not know I was a carrier before I had my older son, so this was not an issue when my husband and I were dating) It is certainly something to be aware of, and take into consideration, but it's very treatable. (though very expensive to treat--DHs job doesn't pay great but has great insurance, which for us is more important)

    With older children they usually do preventative treatment (to get their clotting factor up to normal) 2 or 3 times a week (for us, it's a 15 minute thing in the morning, like brushing teeth, and my son finds it about that entertaining--needles are not a big deal to him at all--we hope in the next year or two to have him infusing himself!) and then they go about normal, daily activities. School, gym, camp, sports, etc. The only things they are told NOT to do was football, full-contact hockey, boxing and wrestling. Anything else is fair game, they lead totally normal lives. I know in the past hemophilia was a very life-altering thing, but treatments have come a long way and are getting better all the time.

    For what it's worth, also, the chances of having a son with hemophilia are 1 in 4 for carrier moms. It's x-linked, so mom and dad don't both have to have it to pass along the condition.

    I'm sure your DSs sweetie already has seen first-hand exactly what living with hemophilia entails, though, and certainly might have her own thoughts on the matter. Has he discussed this with her at all?

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