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One thing after another....


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And here I was, complaining about ds not eating well. It puts things into perspective.

 

Yes, I will pray, for all of you. And remember, you have 4 weeks, right? So, don't spend the entire time worrying (easy to say). Get the support you all need, and try to put it aside, and leave it up to Him.:grouphug::grouphug:

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Your family will be in my prayers! :grouphug:

 

Remember to keep faith in God, that He has a plan for you and a plan for your dc. He will not allow you to be tested beyond what you can handle. And may all of our added prayers wrap their arms around you and your family!

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Hugs and hugs to you.

Is there some sort of overarching diagnosis that ties it together? Do you have an idea of what you can expect? Or is everything always a surprise (of the worst kind, I'd imagine)? It's so hard to be kept on the edge all the time. Just for today, I wish you peace.

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You are not alone. My family is on the same rollercoaster. There are too many issues to count...physical, emotional, spiritual, relational...and most folks can't understand because they haven't been there. I'll say a prayer for you and your son tonight. One thing that helps me during low times is to get on a forum and talk to other parents experiencing similar issues. Sometimes I can help someone else by sharing drug info, experiences, or hints that might help them. Usually someone says something that helps me. Parents are the BEST source of information. I'm watching my dd for symptoms this week that might be dangerous. (I found out she had an elevated ammonia level last week....we live with blood tests too....guess who noticed subtle stuff and asked for one?) Meanwhile we're trucking around, keeping life normal with music, school, church, and family. It's lonely because few know. Dealing with insurance, doctors, nurses, and hospitals can be the pits. But we're lucky in that we don't have to continually educate school personnel about our children's health issues. From what I hear from other's struggles, I think that would be unbearable for me. We were homeschooling before our problems began and feel there was a reason for that! You're a good mom. You work hard to keep life normal and do the best for your son. It's okay to be tired. I'm not going to give you that stuff about taking time for yourself, but do try to get a little extra rest when you can this week. You'll recharge. Hang in there.....you're not alone!

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:grouphug: It is hard dealing with medical issues with kids, my son is dealing with medical stuff too.

 

If there is not another medical reason for the liver issues, could it be a medication that he is on or did he have diet drinks/sugar substitutes before the test (those cause high liver numbers in some people). So sorry you are dealing with another issue, and we will be praying for him and your family.

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