The MDA telethon is tonight!

[KungFuPanda]

I had to edit to embed the promo and telethon link.  This is how my family will spend a few hours this evening.  They really do provide some amazing support for any family who wants it.  I know we've definitely benefited from the MDA.

 

I’m not telling you how to spend your evening but . . . 

 

 

 

 

 

 

Edited October 24, 2020 by KungFuPanda

[TravelingChris]

39 minutes ago, KungFuPanda said:

I had to edit to embed the promo and telethon link.  This is how my family will spend a few hours this evening.  They really do provide some amazing support for any family who wants it.  I know we've definitely benefited from the MDA.  

 

I’m not telling you how to spend your evening but . . . 

 

 

 

My mother who had ALS diagnosed in either very late 1984 or early 1985- I think it was definitely confirmed by around March 1985.  Dh and I who had planned to get married in June, 1986 or a bit after that since he would be graduating in June of 86.  We moved our wedding up to Sept 14th of 85 (right before he started his senior year.   Anyway, the MDA society let my sister borrow a wheelchair for her (my sister was 19 and going to a college locally while dh and I were at the U of Chicago- I graduated in June of 85) and I think they also helped in some other ways,

I also am friendly with a man in church who has a mild form of MD (and he used to be a neighbor too). 

KungFuPanda, does your son have Muscular Dystrophy?

 

 

 

[KungFuPanda]

4 minutes ago, TravelingChris said:

My mother who had ALS diagnosed in either very late 1984 or early 1985- I think it was definitely confirmed by around March 1985.  Dh and I who had planned to get married in June, 1986 or a bit after that since he would be graduating in June of 86.  We moved our wedding up to Sept 14th of 85 (right before he started his senior year.   Anyway, the MDA society let my sister borrow a wheelchair for her (my sister was 19 and going to a college locally while dh and I were at the U of Chicago- I graduated in June of 85) and I think they also helped in some other ways,

I also am friendly with a man in church who has a mild form of MD (and he used to be a neighbor too). 

KungFuPanda, does your son have Muscular Dystrophy?

 

He DOES.  He has Duchenne's Muscular Dystrophy.  MDA has been amazing.  They pay for camp for ALL of the kids from 8-18.  (Which is often the ONLY respite care some families get.) They've loaned us equipment.  They're involved in Ds's clinic visits and there is always a representative on hand and assisting at those appointments.  They've even picked up some very expensive pediatric neurology bills when we were between insurances during the last recession. Until the shut-down they hosted a teen-young adult social club every month.  We miss them.

[KungFuPanda]

It’s starting!!!!!

[Kassia]

Thank you for posting.  I used to babysit for a family that was hit hard by muscular dystrophy.  Three of the four children were affected - two sons had it and the one daughter was a carrier.  MDA was absolutely wonderful to them.