Resources for at-risk populations re: COVID-19 ( starting w/Marfan Syndrome)

[kbutton]

I thought I would start a thread where people can post specialized information about at-risk populations and COVID-19.

The Marfan Foundation (Marfan Syndrome and related conditions) is hosting a webinar that will be available after the fact as well. They always include information about related conditions, but relevance varies depending on the topic, and I am not sure what all they will be tackling in this one. For reference, related conditions would be aortic disorders, cardiac valve disorders, and a myriad of connective tissue disorders.

https://zoom.us/webinar/register/WN_P0R60_iQS4CmTxQfjZJ2Eg?utm_campaign=Webinars&_hsenc=p2ANqtz-_1SY6GWiuqEjx_2KBuf3_jmplAbwU6T5ErwyWZZZqd_77auQS_-_jFmozjJ-0F99oJaK-difmOLfVpZ-OdVP8PSTFaAg&_hsmi=84621887&utm_content=121131511&utm_medium=social&utm_source=facebook&hss_channel=fbp-55803523530&fbclid=IwAR0eMR4171whjfemJJkvz6ABWXhfBaykVJewKvFSX5uaLE-NsFiPDS32I_Y

Please feel free to post adding webinars, information pages, etc. for any organizations putting out relevant information for special populations. 

@itsheresomewhere
@Lang Syne Boardie

Tagging because of the large COVID-19 thread.

[Lang Syne Boardie]

@kbutton, thank you so much.

[Pen]

MS related: https://www.mstrust.org.uk/news/update-coronavirus-covid-19-and-multiple-sclerosis

[kbutton]

Another resource for Marfan and Related Disorders: https://www.marfan.org/about-us/news/2020/03/12/new-statement-regarding-covid-19-and-genetic-aortic-conditions?fbclid=IwAR2j_I8Z3T5amYGu2_EATaT7fokGh8IMyMT0MBf1yaK54-psIRwY9pxV94k#.XmrvK6hKjIV

 

[Pawz4me]

Cancer 

Cancer

Auto-Immune/Inflammatory arthritis

[kbutton]

Asthma: https://community.aafa.org/blog/coronavirus-2019-ncov-flu-what-people-with-asthma-need-to-know

[kbutton]

From Dysautonomia International:

Quote

Join us this evening for a webinar: Cornavirus Q&A for the Dysautonomia Community. Space is limited. Register here: http://bit.ly/covid19_dys.

If you can't join us during the live broadcast, you can sign up for our email list to receive a copy of the webinar video after the live broadcast: http://bit.ly/email_DI.

 

[kbutton]

The Marfan link is being updated every time new information comes in. Latest update involves ACE inhibitors and ARBs with the advice being specific to patients at risk of aortic dissection. I believe the original link is good for all the updates, but a short link is available below as well.

Quote

IMPORTANT MEDICATION INFORMATION FOR YOU: Recent reports have raised concerns that ACE inhibitors and angiotensin receptor blockers (ARBs) such as losartan, Irbesartan, valsartan or telmisartan may increase risks for infection or illness due to infection by COVID-19. We currently do not know if ARBs are harmful or protective in people who are exposed to COVID-19. However, abrupt discontinuation of ARBs can make hypertension worse and may trigger acute arterial dissections in people with heritable vascular diseases. Therefore, we strongly advise that people who take ARBs regularly should continue to take them without interruption. For more information, please visit our website for the latest statement from our Professional Advisory Board.

Read the full statement: http://bit.ly/33ooLwj

 

[Pawz4me]

RA and JIA from the National Rheumatoid Arthritis Society (UK)

[Pawz4me]

This is info from the British Society for Rheumatology, but I assume the advice about corticosteroid use would apply to anyone.