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Arctic Mama

Renamed - Grant’s thread, updated post 527

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I'm praying for you, on a daily basis (many times a day). Stay strong, and know we are pulling for you 

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You are definitely in my thoughts! I've been on bed rest before; it isn't easy, but it is what is best for both you and the baby. 

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4 hours ago, Arctic Mama said:

Yeah I love rest but it’s hard to get comfortable with all the poking and vitals.  I finally caved after the last three triages and bought a really good sleep mask.  That plus ear plus have helped SO MUCH!  This is the comfiest sleep mask I’ve ever used, bar none.

https://smile.amazon.com/dp/B07YXLYTBN?psc=1&ref=ppx_pop_dt_b_product_details
 

The ear plugs that come with it are junk, get a better brand, but the mask itself is dark and cushy and doesn’t press on my eyes or irritate me at all.

Ha, that looks almost exactly like the sleeping mask we got our 4th son for Christmas (not purple!)! It has the same cushy eye pockets, and DS has RAVED about it since he opened it!  I'm getting one for one of our college sons for his birthday in February. 

I think the sleep mask and earplugs are absolutely brilliant for hospital stays. Praying for continued good sleep!

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Hugs and Prayers and good vibes winging your way. Do you have a wishlist of books on Amazon?  PM if you'd like some reads sent your way. 

😘

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Well today was a mixed bag. My blood pressure had been looking good on the increased labatelol but then it spiked super high in the evening and woke me from a nap, and wasn’t coming back down on the 400 mg labatelol dose alone.  So they’re layering some other med with it right now on a step wise protocol to get it to respond and that has helped get it back into severe hypertensive but not stroke territory, and then down a bit more right immediately after the dose before it bounces a bit again. It’s just a buying time game, but we did get two doses of steroids in as of this afternoon and that is apparently a big game changer.  As of tomorrow morning I’m 25 weeks gestational age too, so the odds improve every day he grows.  But he was growth restricted a bit on this last ultrasound so the MFM wants to do them twice weekly to watch for reverse diastolic flow.

Edited by Arctic Mama
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Steroids always pushed my BP seriously up for a day or two, so hopefully it will come back down for you as well. 

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25 minutes ago, dmmetler said:

Steroids always pushed my BP seriously up for a day or two, so hopefully it will come back down for you as well. 

Nobody has mentioned that, just that it can mess with my sugars.  I’ll inquire since the jump was about two hours after betamethasone.

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The steroid shots messed up my blood pressure and my blood sugars...and I had huge mood swings for a few days. This is still true when I have the big steroid shots for my R.A. (not with the small 20 mg/day prednisone boosts). 

Congrats on the 25w mark!! Every day counts! 

 

 

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*UPDATES B 1/3/2020* So my blood pressure continues to go up, and we are increasing my labatelol again (500 mg 4 times daily I think) and they’ve added in an IV protocol for hydrolozine (spelling?) to drop it more quickly.  When it begins to really change I get pounding kidney pain, even when it is *dropping*. That’s been a funky side effect!  But yeah, it can still he dropped below crisis range but keeps jumping back up to the 165-210 range for systolic several times per day, which is frustrating.  Diastolic is behaving a bit better (75-95 for the most part) but some of this seems to be a cuff issue.

Baby is holding up okay on strips, but man I’m seriously hoping we can safely spend another two weeks in utero for his sake because of his growth issues.  He’s hanging out right now at the 12-15th percentile, down from 60th at 2 weeks.  No reverse end diastolic flow yet so that’s good news, but I feel like staying pregnant even to the end of January just might not be in the cards for us and I’m trying to not be upset about that, it’s just fear for his outcome 😞
  END UPDATE

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5 minutes ago, happysmileylady said:

Sending positive thoughts for as long a stay as possible for you!

Yeah, I’d much rather be locked in labor and delivery than have him locked in the NICU.  Like, on so many levels.  But they’ll keep me pregnant as long as one of isn’t imperiled by it.  I’m just mad things keep taking worse turns instead of stabilizing for more than a day or three 😞

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Congratulations on 25 weeks.  I hope you have a very long and boring hospital stay!  Every single day he stays inside is a victory......

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That’s scary that your blood pressure is rising like that.  I hope with you being in the hospital, that the drs are able to keep both you and baby safe.

Does the hospital have good tv stations?   How is the food?

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Praying for the two of you.

Curious...are you considering transferring to that children’s hospital in...Indiana, was it?...that was mentioned in another thread that had really good outcomes with micropreemies?

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Update post 75 - 

Current data from my doc to bring it all together, after I got in an hour nap (I’m so sleep deprived in here it’s not even funny):

Just got out of consult and she is reassured that I am responding well to the hydrolozyne, still, so she is hoping we can gain a few more weeks of management out of that, barring any other symptoms.  She said she doesn’t expect we can get all the way to delivery at 34 weeks but isn’t planning a birthday party for him in six days, either, so that’s good.  Big big goal would be making it to 28 weeks, which I believe is January 24th, and that seems doable in the current set of circumstances


But they’re keeping my inpatient until birth with management here now, with twice weekly specialist ultrasounds to check on him and the placenta and oral plus IV blood pressure management for me, plus twice weekly labs to make sure my kidneys and liver still look good and nothing is turning the corner like it did last time with Benny and my blood chemistry.  Right now though my organs are doing well and he seems diagnostically stable too; and hopefully will remain so through his next ultrasound at the beginning of the week.  We aren’t sure which two days of schedule they’re popping me on yet.

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1 hour ago, caedmyn said:

Praying for the two of you.

Curious...are you considering transferring to that children’s hospital in...Indiana, was it?...that was mentioned in another thread that had really good outcomes with micropreemies?

No, Iowa isn’t really on the table currently because I have progressed further and our NICU here actually specializes in the little babies, with the sicker ones needing surgical and complex care management teams being driven over to Cincy Children’s - the two hospitals have a direct consult relationship, thankfully, and that is their standard protocol.  But their outcomes for gestational age in this NICU are better than statistical average, especially since I had time to do mag and steroids and he is otherwise looking stable for the time being.  

 

Edited by Arctic Mama
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6 minutes ago, Arctic Mama said:

Update post 75 - 

Current data from my doc to bring it all together, after I got in an hour nap (I’m so sleep deprived in here it’s not even funny):

Just got out of consult and she is reassured that I am responding well to the hydrolozyne, still, so she is hoping we can gain a few more weeks of management out of that, barring any other symptoms.  She said she doesn’t expect we can get all the way to delivery at 34 weeks but isn’t planning a birthday party for him in six days, either, so that’s good.  Big big goal would be making it to 28 weeks, which I believe is January 24th, and that seems doable in the current set of circumstances


But they’re keeping my inpatient until birth with management here now, with twice weekly specialist ultrasounds to check on him and the placenta and oral plus IV blood pressure management for me, plus twice weekly labs to make sure my kidneys and liver still look good and nothing is turning the corner like it did last time with Benny and my blood chemistry.  Right now though my organs are doing well and he seems diagnostically stable too; and hopefully will remain so through his next ultrasound at the beginning of the week.  We aren’t sure which two days of schedule they’re popping me on yet.

Oh goodness.  If you need anything let me know!

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1 minute ago, happysmileylady said:

Oh goodness.  If you need anything let me know!

Will do!  Shoot me a text or email if you decide to visit, I’m pretty much clear for chatting and having dinner with people here in the room, at least, since most of my appointments, labs, and monitoring are falling on the late and early sides of the day.

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3 minutes ago, Arctic Mama said:

Will do!  Shoot me a text or email if you decide to visit, I’m pretty much clear for chatting and having dinner with people here in the room, at least, since most of my appointments, labs, and monitoring are falling on the late and early sides of the day.

Will Do!

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3 minutes ago, CuriousMomof3 said:

Are the kids allowed to visit?

Nobody under 14 is allowed in the hospital at all until at least February.  This flu and Norovirus season has been brutal. So aside from face time or me meeting them in the lobby maybe there is nobody allowed up but adults, and the NICU is even stricter on that.

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Yay for (relative) BP stability!  Yay for a solid hope to get to 28 weeks or even further!

 

ETA (crossposting): Boo for not being able to see the kids much for the next several weeks.  Every time I'm pregnant I have daydreams of having some (personal, not baby) pregnancy complication and having to stay in the hospital sans children for 4 or 5 blessed days, then by day 2 of the normal vaginal delivery pregnancy stay I miss them like crazy and am desperate to get home.  It's great that you have such a good support structure, though.

Edited by moonflower
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5 minutes ago, Arctic Mama said:

Nobody under 14 is allowed in the hospital at all until at least February.  This flu and Norovirus season has been brutal. So aside from face time or me meeting them in the lobby maybe there is nobody allowed up but adults, and the NICU is even stricter on that.


Ugh. I was lucky(?) enough to have my preemie in August, and my toddler was allowed to visit the NICU.  (Which seems crazy when I think about it now?)  I’m praying for you guys.  I hope your experience with Benjamin will at least make the idea of the NICU less stressful.  You know first hand what amazing work they do there everyday.  

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I'm glad things looked better as the day has gone on.  Praying that your bp cooperates.  

BTW, I got your card yesterday.  It put a smile on my face.. it reminds me to pray for you and your little peanut.

 

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13 minutes ago, PrincessMommy said:

I'm glad things looked better as the day has gone on.  Praying that your bp cooperates.  

BTW, I got your card yesterday.  It put a smile on my face.. it reminds me to pray for you and your little peanut.

 

I’m glad it came!  I’ve been having a hard time figuring out how long letters post from here.  Packages seems faster for some reason...?

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I'm so sorry you don't get to see your other kids. Especially Benny. I know it's hard for everyone, but I just feel it particularly for the special needs kid. Hang in there, and hope you can get some good sleep.

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4 minutes ago, Ali in OR said:

I'm so sorry you don't get to see your other kids. Especially Benny. I know it's hard for everyone, but I just feel it particularly for the special needs kid. Hang in there, and hope you can get some good sleep.

He keeps asking for me 😭

We will have to try FaceTime, I’m worried it might make things worse than better, though.

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Praying for you and your family. It's a rough go, but you've got great support from friends and your dh must be a saint. Thanks for all the updates. We're all cheering for you!

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19 hours ago, Arctic Mama said:

He keeps asking for me 😭

We will have to try FaceTime, I’m worried it might make things worse than better, though.

Aw, poor little guy.  

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I'm sorry you are stuck in the hospital and can't see your younger kids.  That must be so hard. We are definitely cheering for you and your baby.  Hang in there.  ❤️

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1 hour ago, StellaM said:

How are you doing today, AM ?

Blood pressure is all over the place so we are trying to keep it steadier - they’re actually moving me back on the med I seem to be allergic to in order to see if maybe the benefit outweighs the hives? Because the other treatments are just worsening the lability and that makes me feel gross.

Other than that it’s been a pretty good day, I got some solid napping in earlier and no other weird symptoms worsening, so I consider that a win.  And I DID get to FaceTime Benjamin and the other kids and managed to not cry.  Everyone appears in good spirits so maybe my lazy, hands off parenting has done some good 🤔😆

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