ktgrok Posted December 18, 2019 Share Posted December 18, 2019 Has Chiari Malformation been looked for? Quote Link to comment Share on other sites More sharing options...
exercise_guru Posted December 18, 2019 Author Share Posted December 18, 2019 Off to Google all of that and the books. Have any of you ever taken a kiddo to. The ER for IV rescue It's 2grams. Magnesium. In 1 liter saline Then IV push of Topomax benadryl and an IV steroid Quote Link to comment Share on other sites More sharing options...
Pen Posted December 20, 2019 Share Posted December 20, 2019 On 12/18/2019 at 2:20 PM, exercise_guru said: Off to Google all of that and the books. Have any of you ever taken a kiddo to. The ER for IV rescue It's 2grams. Magnesium. In 1 liter saline Then IV push of Topomax benadryl and an IV steroid Have you tried the IV? If so did it help? maybe more people would see the question on chat and maybe someone would have familiarity with the IV. Quote Link to comment Share on other sites More sharing options...
exercise_guru Posted February 7, 2020 Author Share Posted February 7, 2020 New update I will post in the top of the thread in a bit. My son after numerous tests and traveling out of state to specialists has been diagnosed with a Vestibular Disorder called "Constant Vestibular Migraines" I am now working to homeschool him for 6th grade math and the school is allowing him to attend from 1pm to 3pm daily when he is well enough to attend. He is on a very strict diet ( The migraine Diet) and on medication for anxiety and the constant dizziness he experiences. I was going to start a thread about Gluten, Genetics, GABA brain chemistry, methylation and such but this board is likely not the venue. Can anyone point me to some threads on this or pm me some information that would be greatly appreciated. My sons diet is Low in histamine and thyramine: here is the link. but its basically no aged cheese, no msg, no caffeine, no food additives, no citrus, no nuts, no avacodos, I also have him on no dairy and no gluten for now but I am working my way through that. Quote Link to comment Share on other sites More sharing options...
kbutton Posted February 7, 2020 Share Posted February 7, 2020 11 hours ago, exercise_guru said: My sons diet is Low in histamine and thyramine: here is the link. but its basically no aged cheese, no msg, no caffeine, no food additives, no citrus, no nuts, no avacodos, I also have him on no dairy and no gluten for now but I am working my way through that. I am still working through my issues with an allergist, but I eat pretty low histamine (but I eat dairy--histamine diets vary a lot, and I just try to sort my triggers). It's a pain. Watch fish, especially tuna if they really think histamine is a trigger. Did they mention avoiding canned foods, aged meats, etc.? Would putting him on antihistamines help if they think histamines are a trigger? I hope that after being strict, you can later introduce some things for convenience. Quote Link to comment Share on other sites More sharing options...
exercise_guru Posted February 7, 2020 Author Share Posted February 7, 2020 There is a book called "Heal your headache" and a new cookbook by someone who has my sons vestibule Migraines "The dizzy cook" We tend to make foods from scratch and I think the tyramine is the big deal compared to histamine. It ages in food and causes migraine problems so pickled and aged cheese . Quote Link to comment Share on other sites More sharing options...
kbutton Posted February 8, 2020 Share Posted February 8, 2020 22 hours ago, exercise_guru said: There is a book called "Heal your headache" and a new cookbook by someone who has my sons vestibule Migraines "The dizzy cook" We tend to make foods from scratch and I think the tyramine is the big deal compared to histamine. It ages in food and causes migraine problems so pickled and aged cheese . I think there is a big overlap as histamine does the same thing. I am sorry you're having to deal with dietary stuff, but I hope it WORKS. Quote Link to comment Share on other sites More sharing options...
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