oneddmanybooks Posted April 17, 2018 Share Posted April 17, 2018 I've been gone a while, but I lurk and try to pray for requests. I would really appreciate prayers and thoughts relating to my diagnosis. After months of fatigue, shortness of breath, etc., I was recently diagnosed with pulmonary hypertension (PH). Then further testing revealed that I have a rare form of PH called CTEPH. The good news is that CTEPH is the only form of PH that is potentially reversible, or partially reversible, by a very delicate, major surgery. I am currently waiting to find out if the experts decide that I am a candidate for the surgery (my CTEPH is peripheral, which makes the surgery more difficult). If I am not approved for the surgery, the doctors plan to do a series of balloon angioplasties. I have excellent doctors and am fortunate to live near a top-notch hospital. I have great support through family both near and far, and our wonderful church family. I am also thankful that PH treatment has greatly improved over the last 20-30 years. In addition to dealing with chronic illness, we must make a decision in the next few months about dd's high school education (9th grade this fall). She absolutely wants to homeschool the next four years. For several reasons, we are not certain what is the best choice. There are a few private schools nearby which are possibilities. Thank you so much for your prayers and thoughts. 4 Quote Link to comment Share on other sites More sharing options...
Selkie Posted April 17, 2018 Share Posted April 17, 2018 Prayers and hugs and many good thoughts to you! 1 Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted April 17, 2018 Share Posted April 17, 2018 Prayers. 1 Quote Link to comment Share on other sites More sharing options...
mominco Posted April 17, 2018 Share Posted April 17, 2018 Praying! 1 Quote Link to comment Share on other sites More sharing options...
oneddmanybooks Posted April 18, 2018 Author Share Posted April 18, 2018 Thank you so much! It is hard to wait for the decision about surgery. Hopefully I will find out soon. Quote Link to comment Share on other sites More sharing options...
sbgrace Posted April 18, 2018 Share Posted April 18, 2018 I will pray. 1 Quote Link to comment Share on other sites More sharing options...
oneddmanybooks Posted April 19, 2018 Author Share Posted April 19, 2018 Thank you!! Hoping to hear from the doctors soon... Quote Link to comment Share on other sites More sharing options...
ashfern Posted April 19, 2018 Share Posted April 19, 2018 Hugs! Our 10 year old niece was just diagnosed with PH in Feb. 1 Quote Link to comment Share on other sites More sharing options...
oneddmanybooks Posted April 19, 2018 Author Share Posted April 19, 2018 Ashfern, oh my - 10 years old. I hope she is doing well? I will pray for her. Quote Link to comment Share on other sites More sharing options...
readinmom Posted April 20, 2018 Share Posted April 20, 2018 Praying for you... 1 Quote Link to comment Share on other sites More sharing options...
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