AimeeM Posted October 5, 2017 Share Posted October 5, 2017 I feel like laughing. And crying. The doctor, this morning, gave me a note to "give to my family members" describing how the only treatment for mono is sleep, and that they need to let that happen. It went on to explain that I should avoid anything that tires me, everything will tire me, and that if I need to sleep for 20 hours a day, then that's what needs to be allowed to happen. <----- Funny, eh? She said that when she has patients who work outside the home and have mono, she typically has them leave work for about two months. I have three kids. A capable, but easily overwhelmed, 16 year old daughter, who is a huge help already, but isn't driving without an adult yet. I have an autistic 8 year old who also has several medical issues that require regular appointments with specialists at the children's outpatient hospital in nearby city, and a more severely autistic 5 year old who is, quite frankly, just a handful and a half (an adorable handful, but a handful). I understand the standard recommendations for illnesses like this. I understand they are the best case scenario -- but for anyone with kids (SNs or not) how are they actually feasible? Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted October 5, 2017 Share Posted October 5, 2017 They aren't feasible without help like a mother's helper. I was able to homeschool from the couch but I didn't have kids with the same needs as yours. (I do have a son with ASD but he didn't have other health needs and he was content to read etc. when I napped.) 6 Quote Link to comment Share on other sites More sharing options...
Crimson Wife Posted October 5, 2017 Share Posted October 5, 2017 :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug: Does your state offer In-Home Support Services through the Department of Developmental Disabilities? My DD qualifies for IHSS but we've never used it because of the cost share. But if I were to get sick, I would absolutely use it. Also, I would utilize medical transportation services so that I didn't have to drive to the appointments (even if I still needed to accompany my child). Normally a family with a car doesn't qualify for medical transportation but with a doctor's note saying the parent shouldn't drive long distances, I think it would qualify. 3 Quote Link to comment Share on other sites More sharing options...
Spryte Posted October 5, 2017 Share Posted October 5, 2017 Oh no. You need help. Now is the time to hire someone. You need permission to be sick, to rest, and to get well. 4 Quote Link to comment Share on other sites More sharing options...
EMS83 Posted October 5, 2017 Share Posted October 5, 2017 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
happypamama Posted October 5, 2017 Share Posted October 5, 2017 Oh mama. You need a helper. My kids don’t have SN, but there is NO way I could have homeschooled them last year without help. If my parents hadn’t been able to help, I’d have cashed in every favor I could. (As it was, it took four adults and meals from friends to do what is on my plate every day.) Quote Link to comment Share on other sites More sharing options...
TABmom Posted October 5, 2017 Share Posted October 5, 2017 Oh no! I'm so sorry. Please get help. Hire someone to be at your house when your dh is at work. Ask friends to take the kids for a day at a time. I know it's hard to ask for help- but if one of my friends had mono, I would be more than willing to help out. You need to take care of yourself so that you can take care of others later. Quote Link to comment Share on other sites More sharing options...
displace Posted October 5, 2017 Share Posted October 5, 2017 (edited) Depending on your state, you may be able to get respite care for your two younger children. Adolescent can cut down on some driving activities for a bit, uber the rest. Housekeeper/mothers helper. DH vacation/sick leave and/or appointment helper. Cancel or decrease therapies out of the house for a couple months unless they are absolutely necessary. Reschedule routine follow up doctor appointments. ETA- fly in a retired relative to live in with you and be a nanny. Edited October 5, 2017 by displace 1 Quote Link to comment Share on other sites More sharing options...
Crimson Wife Posted October 5, 2017 Share Posted October 5, 2017 Thought of another idea- do the specialists need to see the child in person or would they be able to do a teleconsult? Quote Link to comment Share on other sites More sharing options...
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