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because I don't have enough problems with reflux....burning tongue


SparklyUnicorn
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So, when I tried to go off the Prevacid, that didn't work.  Ended up with a burned tongue and throat.  It was terrible.  So I have since managed to calm it a bit.  At least I feel less, um, damaged for lack of a better way of putting it.  BUT it's still problematic.  My tongue burns like I burnt it.  And I feel thirsty.  The feeling is alleviated to a degree when I eat or drink.  But, ya know, I can't eat and drink all day long.  I'm thinking of making ice and nibbling on ice chips here or there to help.

 

I have an appointment, but not until mid July.  I think what I need is more Prevacid.  I am beyond bummed about that! 

 

I just don't know what is up with this new symptom.  I have not changed anything.  I had the reflux under control prior to going off Prevacid, but either way never had this. 

 

Anyone deal with this ever?  I'm hoping I can get in sooner.  I'll call Monday.  : (

 

 

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I don't know if this would help at all, but maybe you could try XyliMelts:  https://www.oracoat.com/products/xmdm?variant=23894872

 

Everyone at my dentist's office recommends them for dry mouth problems.  It looks like there's a non-mint choice which would probably be better for people dealing with reflux.  

 

Maybe you've already tried just regular chewing gum?  

 

I hope you can find something that helps soon!  

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I don't know if this would help at all, but maybe you could try XyliMelts:  https://www.oracoat.com/products/xmdm?variant=23894872

 

Everyone at my dentist's office recommends them for dry mouth problems.  It looks like there's a non-mint choice which would probably be better for people dealing with reflux.  

 

Maybe you've already tried just regular chewing gum?  

 

I hope you can find something that helps soon!  

 

Thanks.  Those look like they'd be helpful!

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Avoid mint, though--it triggers reflux in many people.

 

Have we talked about ginger?  IIRC that helps me but hurts you, but in case I'm not remembering that right, for me if I drink fresh ginger tea every few hours it really helps my stomach/reflux heal. 

 

I haven't had the burning tongue thing, but with really bad reflux I have gotten acid burns in my nose, ugh ugh ugh. 

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Act makes a dry-mouth rinse that works really well for burning tongue. I have had this for years thanks to one medicine I have to take. Unpleasant side effect but manageable. Burning tongue does make you feel thirsty too and this rinse helps. Rinsing lasts 2-3 hours for me so not super expensive to get some relief.

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My SIL has had issues with a burning tongue for several years.  She has been to multiple specialists through the years and nothing has helped.  I know she has tried reflux meds, gf diet, hormone meds, and several other things.  Sadly, she has just learned to live with it. 

 

Hope you have better luck finding an answer.

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My SIL has had issues with a burning tongue for several years.  She has been to multiple specialists through the years and nothing has helped.  I know she has tried reflux meds, gf diet, hormone meds, and several other things.  Sadly, she has just learned to live with it. 

 

Hope you have better luck finding an answer.

 

that's a bummer

 

all the more reason to take up drinking beer again  :glare:

 

(I'm kidding sorta....)

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I know you are probalby wayyy beyond this, but have you tried Gaviscon? It works different in that instead of just trying to neutralize the acid, it creates a raft (thier word, not mine) that blocks the acid from traveling up the esophogus. Combined with the PPI, maybe you could at least get your tongue to heal if it is from GERD. Hopefully your doctor will know what is going on. :grouphug:

 

  There are two demonstrations on this video if you keep watching.

Edited by Tap
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I know you are probalby wayyy beyond this, but have you tried Gaviscon? It works different in that instead of just trying to neutralize the acid, it creates a raft (thier word, not mine) that blocks the acid from traveling up the esophogus. Combined with the PPI, maybe you could at least get your tongue to heal if it is from GERD. Hopefully your doctor will know what is going on. :grouphug:

 

Video on how it works  There are two demonstrations on this video if you keep watching.

Oddly enough....here is a video that combines PPI and Gaviscon

 

I have but it gives me wicked bathroom problems.

 

I'm starting to think the reflux has nothing to do with the tongue problem though.  The reflux probably does not help, but I don't think it is the cause. 

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It's good, but an explanation would be good too.  The assistant nearly laughed at my disappointment over good results. 

 

I completely get that feeling though. It's like you know something is wrong, but until there is something on paper that "proves" it, it constantly feels like they're on the sidelines rolling their eyes and whispering to each other that you're either crazy or attention seeking. It's funny how one little panel of tests, that is hardly all encompassing, can turn doctors into dismissive jerks. 

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It's good, but an explanation would be good too.  The assistant nearly laughed at my disappointment over good results. 

 

LOL!  I can so relate to this statement.

 

Do you have other GI issues or problems with eating such as food feeling like it is getting stuck when you eat?  Eosinophilic Esophagitis can cause reflux that doesn't respond to PPI's.

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Are you taking a PPI while waiting to get prevacid? Nexium works wonders for me, even when prilosec doesn't. You can take it twice a day (label says once, but my doctor says you can do it twice) to get relief. 

 

I have plenty of Prevacid, not to mention it is also OTC.

 

I tried Prilosec.  Doesn't work so well for me.  Nexium...had a nasty reaction.

 

I have been taking it twice.  I also have some 30 mg tabs left.  At one point he had me on 60.

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