Popular Post BlsdMama Posted April 18, 2017 Popular Post Share Posted April 18, 2017 So. Saw the Lyme doctor - the date I had in Wisconsin got pushed to mid May and so we ended up seeing an MD in Minnesota last week.She was informative. I am not used to MDs taking a holistic approach so that is going to take some getting used to. We had a Lyme test done through Igenex but the results will take three weeks to come back. Based on clinical presentation she does believe that I have Lyme. Lyme can mimic Motor Neuron Disease. Looks like I will most likely start IV antibiotics in early May after the tests come back. I feel MND is less likely all the time. I hope it isn't just wishful thinking. In OTHER news, while sitting at the office, 3.5 hours away, we got news that our daughter's water broke. :) Gratuitous eye candy ~Our daughter, AUNT Olivia with her new nephew: 79 Quote Link to comment Share on other sites More sharing options...
mommyoffive Posted April 18, 2017 Share Posted April 18, 2017 Well good news all around! You are a grandma! Congrats I love that you really trusted your gut. 1 Quote Link to comment Share on other sites More sharing options...
kewb Posted April 18, 2017 Share Posted April 18, 2017 Glad you have gotten some answers. Good luck on your journey. Quote Link to comment Share on other sites More sharing options...
Anne in CA Posted April 18, 2017 Share Posted April 18, 2017 I'm glad things are going well! Quote Link to comment Share on other sites More sharing options...
FaithManor Posted April 18, 2017 Share Posted April 18, 2017 Hope you re spend well to treatment, and congrats on that grand baby! Quote Link to comment Share on other sites More sharing options...
maize Posted April 18, 2017 Share Posted April 18, 2017 Here's hoping that Lyme test comes back positive! (feels weird to say that but...) And huge congratulations on the new grandbaby!!! 2 Quote Link to comment Share on other sites More sharing options...
Seasider Posted April 18, 2017 Share Posted April 18, 2017 Aw, beautiful! I am so happy you persevered on the Lyme diagnosis. I hope your test comes back with a conclusive positive and that you respond well and quickly to the abx. 1 Quote Link to comment Share on other sites More sharing options...
AlmostEmptyNest Posted April 18, 2017 Share Posted April 18, 2017 Hi Blsdmama, I'm in MN and my teen daughter was recently diagnosed with Lyme. She is seeing an integrative doctor next week. May I message you to get more information on the MD you saw? It would be helpful to compare notes. Quote Link to comment Share on other sites More sharing options...
ScoutTN Posted April 18, 2017 Share Posted April 18, 2017 :grouphug: :grouphug: Glad you are making medical progress. I hope the Lyme treatment is effective! :hurray: :hurray: :hurray: for grandbaby! Quote Link to comment Share on other sites More sharing options...
unsinkable Posted April 18, 2017 Share Posted April 18, 2017 Great news! What a beautiful picture! They are both GORGEOUS! Quote Link to comment Share on other sites More sharing options...
mumto2 Posted April 18, 2017 Share Posted April 18, 2017 Your grandbaby is beautiful!!!! Aunt Olivia is adorable too! :grouphug: I am so glad that you were able to get in to see the Lyme Dr. Great to hear that testing is moving forward towards treatment. Quote Link to comment Share on other sites More sharing options...
Selkie Posted April 18, 2017 Share Posted April 18, 2017 So happy for your progress! Aunt Olivia and baby are darling. Congratulations, Grandma! :hurray: Quote Link to comment Share on other sites More sharing options...
BlsdMama Posted April 18, 2017 Author Share Posted April 18, 2017 Hi Blsdmama, I'm in MN and my teen daughter was recently diagnosed with Lyme. She is seeing an integrative doctor next week. May I message you to get more information on the MD you saw? It would be helpful to compare notes. Absolutely! 1 Quote Link to comment Share on other sites More sharing options...
OneStepAtATime Posted April 18, 2017 Share Posted April 18, 2017 :hurray: :hurray: :hurray: (all the way around) Quote Link to comment Share on other sites More sharing options...
clementine Posted April 18, 2017 Share Posted April 18, 2017 Lots of great news! I hope results come back as NOT Lyme!!! Quote Link to comment Share on other sites More sharing options...
Rebecca Posted April 18, 2017 Share Posted April 18, 2017 BlsdMama, That wee baby is so delicious! By: I feel that MND is less likely all the time Do you mean: You are feeling pretty strongly that a Lyme diagnosis is the correct path? This is a long journey! Prayers for your complete health and healing. And as you continue waiting... -Rebecca Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted April 18, 2017 Share Posted April 18, 2017 Happy with all the news and hopefully it is Lyme Disease and treatment will resolve it. Congratulations on your new grandchild! Quote Link to comment Share on other sites More sharing options...
debinindy Posted April 18, 2017 Share Posted April 18, 2017 Great news! And beautiful baby! :hurray: :hurray: :hurray: Quote Link to comment Share on other sites More sharing options...
Denise in IN Posted April 18, 2017 Share Posted April 18, 2017 Congratulations on the new grandbaby! I am happy to hear good news on the medical front and hopeful that your body will respond to the lyme treatment. :hurray: Quote Link to comment Share on other sites More sharing options...
Guest Posted April 18, 2017 Share Posted April 18, 2017 That's two doses of great news! A cute grandson AND a helpful doctor!? Yay! Quote Link to comment Share on other sites More sharing options...
Spryte Posted April 18, 2017 Share Posted April 18, 2017 Congrats on the baby, and what a beautiful auntie! Your update on Lyme made me tear up. Hugs and support to you! I remember my first four hour visit with my beloved LLMD. It was intense. And the relief and fear that the diagnosis brought... oh my. What does she have in mind for you while waiting on Igenex? Are you testing for a gazillion things? I remember having to split the blood draws. We did 27 vials one day, and 30 a week later. Gaaah! The info gleaned was overwhelming. I did 5 months of IV, but the majority of my treatment was oral. If you need anything, don't hesitate to reach out. Lymenet was instrumental there for me, in answering questions and listening to me whine about the herxing. Ugh. I have not posted there in years, but I do think I went back and updated when finally mostly well - my whole sordid story is there. :) My name there is cactus, if you head over there at some point. So, so glad you had a visit with the LLMD and in high hopes for you that you are now on the right path. FWIW, my MS diagnosis was bogus. And the symptoms I had that seem to match the ones you have posted about are all gone. It took a long time, and it was a hard road, but worth it. 7 Quote Link to comment Share on other sites More sharing options...
BlsdMama Posted April 19, 2017 Author Share Posted April 19, 2017 Congrats on the baby, and what a beautiful auntie! Your update on Lyme made me tear up. Hugs and support to you! I remember my first four hour visit with my beloved LLMD. It was intense. And the relief and fear that the diagnosis brought... oh my. What does she have in mind for you while waiting on Igenex? Are you testing for a gazillion things? I remember having to split the blood draws. We did 27 vials one day, and 30 a week later. Gaaah! The info gleaned was overwhelming. I did 5 months of IV, but the majority of my treatment was oral. If you need anything, don't hesitate to reach out. Lymenet was instrumental there for me, in answering questions and listening to me whine about the herxing. Ugh. I have not posted there in years, but I do think I went back and updated when finally mostly well - my whole sordid story is there. :) My name there is cactus, if you head over there at some point. So, so glad you had a visit with the LLMD and in high hopes for you that you are now on the right path. FWIW, my MS diagnosis was bogus. And the symptoms I had that seem to match the ones you have posted about are all gone. It took a long time, and it was a hard road, but worth it. So she really wants me to focus on diet, rest, and supplements currently just to get my immune system read for the onslaught. It is an anti-histamine diet? I have no idea but it is the most restrictive thing I have EVER seen. Wah, right? I will totally deal. So really the plan is just - test back, kill the Lyme. :D I am really hoping it is essentially just that. I am probably still pretty naive. 5 Quote Link to comment Share on other sites More sharing options...
displace Posted April 19, 2017 Share Posted April 19, 2017 Congrats x 2!!! Quote Link to comment Share on other sites More sharing options...
Granny_Weatherwax Posted April 19, 2017 Share Posted April 19, 2017 Congratulations, Blessedmama. This is good news indeed. Congratulations on the birth of your grandson, too! Quote Link to comment Share on other sites More sharing options...
Spryte Posted April 19, 2017 Share Posted April 19, 2017 So she really wants me to focus on diet, rest, and supplements currently just to get my immune system read for the onslaught. It is an anti-histamine diet? I have no idea but it is the most restrictive thing I have EVER seen. Wah, right? I will totally deal. So really the plan is just - test back, kill the Lyme. :D I am really hoping it is essentially just that. I am probably still pretty naive. Which diet does she want you on? It may change through treatment. I have landed on a keto diet, but did others through treatment. She'll probably tailor it to you. You can do this! It's worth it. When you do start to treat - hydrate. All the time. There's a tendency to get dehydrated and it will make all your symptoms worse. Ugh. Quote Link to comment Share on other sites More sharing options...
shawthorne44 Posted April 19, 2017 Share Posted April 19, 2017 Congrats on the baby, and what a beautiful auntie! Your update on Lyme made me tear up. Hugs and support to you! I remember my first four hour visit with my beloved LLMD. It was intense. And the relief and fear that the diagnosis brought... oh my. What does she have in mind for you while waiting on Igenex? Are you testing for a gazillion things? I remember having to split the blood draws. We did 27 vials one day, and 30 a week later. Gaaah! The info gleaned was overwhelming. I did 5 months of IV, but the majority of my treatment was oral. If you need anything, don't hesitate to reach out. Lymenet was instrumental there for me, in answering questions and listening to me whine about the herxing. Ugh. I have not posted there in years, but I do think I went back and updated when finally mostly well - my whole sordid story is there. :) My name there is cactus, if you head over there at some point. So, so glad you had a visit with the LLMD and in high hopes for you that you are now on the right path. FWIW, my MS diagnosis was bogus. And the symptoms I had that seem to match the ones you have posted about are all gone. It took a long time, and it was a hard road, but worth it. What is up with Lyme being wrongly diagnosed as MS? That happened to a former coworker friend of mine. There is a Lyme test. She had thought for years that she had MS and made life-altering decisions based on it. 1 Quote Link to comment Share on other sites More sharing options...
Spryte Posted April 19, 2017 Share Posted April 19, 2017 What is up with Lyme being wrongly diagnosed as MS? That happened to a former coworker friend of mine. There is a Lyme test. She had thought for years that she had MS and made life-altering decisions based on it. That's what happened to me. We were even in the midst of selling our home, because I was heading into a wheelchair fast and couldn't navigate our house. My DH spent a year carrying me up and down the stairs. The Lyme tests available are not very reliable, and there is confusion about how tests should be run (most docs run the less sensitive test first, then the more sensitive test to "confirm" - that makes no sense as the first test has too many false negatives). Even the more sensitive test is not terribly reliable. There is a long, complicated and political reason for this that involves patents and shady practices wrt that old Lyme vaccine that used to be on the market and is no longer, as a result of too many recipients coming down with Lyme. There is also the fact that Lyme is a clinical diagnosis but many docs are confused because they are required to report certain results on a western blot. Many think that if the results are such that they don't need to be reported, the test is "negative" - that's actually not the case. Just because a test is not required to be reported to the CDC does not mean it's negative - again, this is part of that complicated situation re: patents. It's all a mess, really, and has literally destroyed lives. There's a documentary on Netflix - Under Our Skin - that explains a lot. They do a pretty good job. The best Lyme tests are at Igenex. A few other labs do specialty testing for other organisms that are hard to find. Fry Labs in AZ is one. But Quest and Labcorp ... notorious for missing things. They don't even run the tests for all of the bands, so they really don't get enough data. OP, I'm just over the moon happy that you found an LLMD. I hope it makes all the difference for you! 6 Quote Link to comment Share on other sites More sharing options...
LMV Posted April 19, 2017 Share Posted April 19, 2017 Congratulations on your first grandson! I hope everything else works out as well. Quote Link to comment Share on other sites More sharing options...
GailV Posted April 19, 2017 Share Posted April 19, 2017 What is up with Lyme being wrongly diagnosed as MS? That happened to a former coworker friend of mine. There is a Lyme test. She had thought for years that she had MS and made life-altering decisions based on it. Ditto what Spryte said. Dh was diagnosed with MS decades ago after a Lyme test came back "negative". His decline was very slow, partially thanks to his aggressive self-treatment with nutrition -- he was constantly figuring out how to optimize his immune system. Lo and behold, after decades, Igenex and a different doctor figured out why his MS didn't follow a typical path (eg, his reactions to heat and cold, his reactions to immune boosting treatments) -- it had been Lyme and co-infections rather than MS. 4 Quote Link to comment Share on other sites More sharing options...
eternalsummer Posted April 20, 2017 Share Posted April 20, 2017 I am so happy for you, on both fronts. Your username is really, as it turns out, pretty accurate :) Quote Link to comment Share on other sites More sharing options...
Guest Posted April 20, 2017 Share Posted April 20, 2017 Low histamine diets are indeed very restrictive but they will definitely help in the short term and are unlikely to be a lifelong thing except for maybe a few food triggers. Quote Link to comment Share on other sites More sharing options...
Granny_Weatherwax Posted April 20, 2017 Share Posted April 20, 2017 (edited) <snip> It's all a mess, really, and has literally destroyed lives. There's a documentary on Netflix - Under Our Skin - that explains a lot. They do a pretty good job. <snip> The documentary is no longer available on Netflix. ETA: It's available on Amazon Prime. :) Edited April 20, 2017 by Scoutermom 2 Quote Link to comment Share on other sites More sharing options...
jewellsmommy Posted April 20, 2017 Share Posted April 20, 2017 Congratulations on the beautiful grandbaby! I've been praying for you and will be watching for more updates! Quote Link to comment Share on other sites More sharing options...
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