Menu
Jump to content

What's with the ads?

AimeeM

Anyone remember my "kid with a sudden eye-turn" thread?

Recommended Posts

RE our 7.5 year old son. Someone here suggested an MRI. His ped's specialist eye doc didn't think it was necessary, so we moved on. He was given patches and that was that.

To recap, an aunt noticed his eye turning about 6 months ago. His pediatrician also brought it up (without me mentioning it) again at his 7 year old well child check up. His optometrist became very concerned during a regular eye check up and sent us to see our already-established specialist who decided it was just another oddity specific to this particular kid.

 

Then we had a check up with his endocrinologist a couple weeks ago. He typically just checks DS7's growth (as yet undetermined growth issues), but he seemed alarmed when told that nobody had ordered a brain MRI for a sudden eye turn in a 7 year old. 

So, he ordered one. We go in the morning for IV sedation and the MRI. We've had an MRI before, but DS was little (about 2 years old). 

 

If you could spare some prayers and good thoughts this way, I'd be grateful.

  • Like 17

Share this post


Link to post
Share on other sites

I remember that. 
I remember freaking out about that.

I remember suggesting a MRI, as that's (sudden eye turn) was how my child was diagnosed with brain cancer.

The fact that six months have passed without more concerning symptoms is comforting to me, but I'm still glad you're going in for a MRI. Good for your endocrinologist; he sounds like a keeper!

 

Best wishes to you and yours.

  • Like 8

Share this post


Link to post
Share on other sites

So glad he is finally getting the MRI. Praying for him, and also asking for extra peace for you.

Share this post


Link to post
Share on other sites

Sending prayers and good juju your way. Glad to hear the endo is providing good care, and blessings to you, your little one and the whole family.

 

Amy

  • Like 1

Share this post


Link to post
Share on other sites

I must have missed your original thread, Aimee, but I'm glad they are doing the MRI. I hope everything goes well and the MRI is clean.

Share this post


Link to post
Share on other sites

Lots of prayers for you.   :grouphug:

 

Whether you go to a pediatric radiologist or not, they are used to doing these on kids even younger than your son.  My friend's daughter has had numerous MRIs and CTs due to an issue with her brain, and quite frankly, those are some of the easiest procedures she goes through.

 

I hope the results are all positive and will be keeping you all in my prayers.

  • Like 1

Share this post


Link to post
Share on other sites

Thinking of you, Aimee, wondering how your morning went. Praying that y'all get a clear diagnosis and, best case scenario, an "all-clear" prognosis.

  • Like 1

Share this post


Link to post
Share on other sites

Just checking in to see if you have an update? Praying for you all!

(FWIW, I'm really tired of docs who "poo-poo" any suggestions made by the parents.

  It's really annoying since we have basically hired them to take care of our loved ones.)

  • Like 1

Share this post


Link to post
Share on other sites

He did the entire 45 minute MRI with contrast with NO sedation! What a big boy he's becoming! They put the IV in for contrast and anticipating sedation, but he was surprisingly content to watch the movie they put on for him, they let him keep his Ender Dragon stuffed toy, let me hold his foot, and he was perfect the whole time. It didn't hurt that they made the experience nothing short of actual fun for him (child life specialist brought in her dog, he played Wii while waiting, MD and nurses came out and talked to him first, etc.). 

 

I'm waiting and watching his online chart like a hawk. I'm pretty hopeful and confident that it's nothing, but... yeah. Still nervous. 

  • Like 17

Share this post


Link to post
Share on other sites

He did the entire 45 minute MRI with contrast with NO sedation! What a big boy he's becoming! They put the IV in for contrast and anticipating sedation, but he was surprisingly content to watch the movie they put on for him, they let him keep his Ender Dragon stuffed toy, let me hold his foot, and he was perfect the whole time. It didn't hurt that they made the experience nothing short of actual fun for him (child life specialist brought in her dog, he played Wii while waiting, MD and nurses came out and talked to him first, etc.). 

 

I'm waiting and watching his online chart like a hawk. I'm pretty hopeful and confident that it's nothing, but... yeah. Still nervous. 

 

Wow what a great tech team! So glad it was a positive experience for him. May the wait pass quickly.

  • Like 1

Share this post


Link to post
Share on other sites

He did the entire 45 minute MRI with contrast with NO sedation! What a big boy he's becoming! They put the IV in for contrast and anticipating sedation, but he was surprisingly content to watch the movie they put on for him, they let him keep his Ender Dragon stuffed toy, let me hold his foot, and he was perfect the whole time. It didn't hurt that they made the experience nothing short of actual fun for him (child life specialist brought in her dog, he played Wii while waiting, MD and nurses came out and talked to him first, etc.). 

 

I'm waiting and watching his online chart like a hawk. I'm pretty hopeful and confident that it's nothing, but... yeah. Still nervous. 

 

The fact that they sent you home makes me a bit relieved.

 

I'd be watching that online chart too. 

 

Kris

  • Like 1

Share this post


Link to post
Share on other sites

Just checking in to see if you have an update? Praying for you all!

(FWIW, I'm really tired of docs who "poo-poo" any suggestions made by the parents.

  It's really annoying since we have basically hired them to take care of our loved ones.)

I've learned which MDs are going to brush us off and which are going to listen within seconds of them entering the room.

I've also noticed that the older doctors really tend to listen more. 

Luckily, with the exception of his new pulmonary (because his old one moved), all of his specialists have been with him for 4-6 years now and are really great. My opinion of the pulmonary is still in the air. He seems okay... but young, cocky, and likes to move quickly. I don't feel confident when I leave his office with DS.

Share this post


Link to post
Share on other sites

They sent you home; I wouldn't get too worked up while waiting. :)

 

Congrats--no sedation is huge!

Oh thank you for saying this. I didn't really even think of that! When he developed complications after his initial lung surgery (he'd been sent home) and they did an x-ray to check his lungs, they didn't let us leave -- they had found something wrong. They sent us back to a separate waiting area for a doctor to speak to us.

 

They wouldn't have let us leave if there was a serious issue.

Edited by AimeeM
  • Like 2

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...