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ReadingMama1214

Obsessions

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Dd is a newly 5. She's always been sensory sensitive, but not SPD. Her sensitivities seem to Come and go and from what I've tracked, she seems more emotional and sensitive around a big leap in cognitive development. For example, when we were dealing with her sensitivities a few months ago, her reading drastically approved following the season of sensitivity.

 

Now she seems to be experiencing some obsessions. In December she kept obsessing over whether or not we heard her pee and constantly believed she hadn't gone pee. This led to frequent bathroom trips and tantrums. We took her to the pediatrician multiple times and they confirmed nothing was medically or physically wrong. The pee issue seems to have cleared up, but now she's moved onto washing her hands. She was washing them for a long time after bathroom trips. Now she asks if she "picked her nose" because it feels like she has boogers on her hands. She can't be reasoned out of it. If I ask her if she picked her nose, she can say no but then says it feels like that and it leads to tears and frustration.

 

There's no new stressors or changes in life.

 

She goes to half day preschool and yesterfay was her first day back. The teacher said she seemed fine the entire class.

 

I plan to see if the schools OT can see her. Our pedi wouldn't refer us to an OT last year and only suggested a behavorial specialist.

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Dd is a newly 5. She's always been sensory sensitive, but not SPD. Her sensitivities seem to Come and go and from what I've tracked, she seems more emotional and sensitive around a big leap in cognitive development. For example, when we were dealing with her sensitivities a few months ago, her reading drastically approved following the season of sensitivity.

 

Now she seems to be experiencing some obsessions. In December she kept obsessing over whether or not we heard her pee and constantly believed she hadn't gone pee. This led to frequent bathroom trips and tantrums. We took her to the pediatrician multiple times and they confirmed nothing was medically or physically wrong. The pee issue seems to have cleared up, but now she's moved onto washing her hands. She was washing them for a long time after bathroom trips. Now she asks if she "picked her nose" because it feels like she has boogers on her hands. She can't be reasoned out of it. If I ask her if she picked her nose, she can say no but then says it feels like that and it leads to tears and frustration.

 

There's no new stressors or changes in life.

 

She goes to half day preschool and yesterfay was her first day back. The teacher said she seemed fine the entire class.

 

I plan to see if the schools OT can see her. Our pedi wouldn't refer us to an OT last year and only suggested a behavorial specialist.

 

 

The sudden onset of OCD like behaviors is a symptom of Pandas.  But not sure if there are other symptoms or not. 

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The sudden onset of OCD like behaviors is a symptom of Pandas. But not sure if there are other symptoms or not.

I looked at that a few days ago. I believe it's normally caused by strep? She hasn't had any strep or viruses recently.

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One treatment you can try without a prescription is NAC (n-acetyl cysteine); it's an amino acid supplement that has shown promise in clinical trials for the treatment of OCD.

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I looked at that a few days ago. I believe it's normally caused by strep? She hasn't had any strep or viruses recently.

 

 

Well, it probably isn't that but I believe they can test for it.

 

My ds was similar at that age.  He still gets an idea in his head that he won't let go of.  It is easy for me to get frustsraed with him but I have found I have to be very calm and gentle and remind him that his ideas have no basis in fact.  He went to a counselor for a bit after the divorce and the pyschiatrst in charge told us that it is behavior found on the anxiety end of things.  And most people learn to work around it and not to worry too much about it unless it began to impact his daily life.

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One treatment you can try without a prescription is NAC (n-acetyl cysteine); it's an amino acid supplement that has shown promise in clinical trials for the treatment of OCD.

Thanks. I'll look into it when I'm at our natural grocery store later.

 

I plan to talk to her schools OT and see if they'll see her and give us some pointers.

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The workbook "what to do when your brain gets stuck" is geared towardshelping children with obsessions and compulsions. I got it from Amazon (others in the series are also good).

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Sudden onset OCD with a weird urinary symptom that doesn't quite make sense one way or another (sort of an odd combo of a sense of urinary urgency with some OCD mixed in) can easily be pans/pandas - it is a specific listed symptom (such as the list is, anyway).  I would rule that out if at all possible, though it can be a can of worms.  At a completely bare-bones minimum, that would start with a throat culture for strep.  (Key word being start, not end.)  Note that this condition is still controversial in some areas, less so in others; it doesn't sound like the ped picked up on it.

 

I second the suggestion to look at NAC.

Edited by wapiti
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I looked at that a few days ago. I believe it's normally caused by strep? She hasn't had any strep or viruses recently.

 

When my girls have strep, they show very few symptoms, none of which are "typical". The first time they had strep, actually, the only sign was a headache and a very minor rash. I went to the doctor and he said "Yeah, of course she has a headache, she's just coming out of scarlet fever" and I freaked. She had no fever! She had no sore throat! Nothing was scarlet, not even that rash!

 

Since then, I've learned to recognize the signs of something being a little "off" and have had many conversations with the doctor that run "I know they're not showing any signs of anything, but I'm pretty sure they have strep" and then, voila - it turns out to be strep. But that was a learning curve. (This was so frustrating that I eventually ordered a bunch of rapid strep tests off of Amazon, just so I could say "Here's the test! Please confirm it and prescribe some antibiotics, kthnxbye." Test runs show they only have strep when I think they do, not when I just randomly swab them.)

 

This doesn't mean that it is PANDAS, or that she had strep at all. It could be run of the mill OCD, or even something else. I'm just sharing my experience having two kiddos who have atypical reactions to strep throat.

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Yeah, strep in my family tends to manifest as a headache and intestinal symptoms, almost never a sore throat.

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Yeah, strep in my family tends to manifest as a headache and intestinal symptoms, almost never a sore throat.

Ugh.

Thanks for writing this.

We recently had a sudden onset of OCD a few weeks after a high fever with no other symptoms. A few weeks after the OCD hit, he was put on antibiotics for a severe ear infection and a positive strep test (no symptoms except the ear infection). The OCD disappeared in day 6 of antibiotics. Somewhere in there, I studied Pans/Pandas.

 

This kid has had scarlet fever previously without ever complaining of a sore throat. And he has a pain tolerance of zero. A bumped for is cause for three hours of crying. :-)

 

I agree, OP, get tested.

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Thanks for all of your responses! She has complained of a sore throat a week or so ago, but never exhibited other symptoms (fever, rash, headache, etc.) and it seemed to be due to dryness. we live in a dry environment and winter can be tough on her. I'll look into the strep test and see what happens there.

 

She has had sensory issues in the past and I do wonder if they're at all connected. If the strep is clear, I will ask for a referral from her pediatrician to get an evaluation. 

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I looked at that a few days ago. I believe it's normally caused by strep? She hasn't had any strep or viruses recently.

I haven't read all of the replies, but THIS caught my attention. My dd7 was diagnosed with PANDAS/PANS last year after a long hard road. She has other things going on as well, which complicated everything. We were skeptical at first, as she never showed any 'sick/strep' symptoms. Due to advice from fellow boardies, I took her to the doctor and guess what? Positive for strep.

Rinse and repeat. Every time I see a huge upswing in her symptoms, especially OCD/anxiety/ticks, she turned up positive...but always asymptomatic as far as classical strep symptoms. Really frustrating, and her doctor thinks this has probably been going on for years. Same issue with ear infections...no real pain, and tend to be secondary to strep:(

Sorry to be the bearer of that kind of news, but have her checked. If is is negative, great. It is still information to rule something out:)

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I looked at that a few days ago. I believe it's normally caused by strep? She hasn't had any strep or viruses recently.

 

My son (7) tested positive for strep without having any symptoms. I asked for the test after he started having serious OCD and 'pee' issues overnight. It's worth a test to know for sure.

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My son was just diagnosed with PANS.Pandas is caused by strep but pans can be caused by lots of different types of infections and even environmental stressors. It is something to look at closely. I would start by googling pandas network site.

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Great advice above that bears taking very seriously, and I'll add that my a.d.d did stuff like that at that age. Possibly unrelated to the add, just some weirdness he had, but definitely no other dx.

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Our pedi is pretty invested in PANDAS/PANS study. He requires all of his residents to study it. However, during the height of her symptoms Dd tested negative. He said doing a blood test would show positive because most people have had strep.

 

His kids follow feingold diet which I plan to look into more.

 

We see a pediatric effective elimination specialist this week and I'm hoping for more insight.

 

She'll see an OT soon as well

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