Menu
Jump to content

What's with the ads?

BlsdMama

Throw a little party with me?

Recommended Posts

:hurray: :hurray: :hurray:  If I got this right, you know it's not ALS!?

 

It may be the beginning of MS or something completely different? Either way, I am rejoicing with you that it is not your worst fear come true. Hopefully something minor that can be either cured or easily maintained.

  • Like 1

Share this post


Link to post
Share on other sites

  :party:  Here's your party!  I'm praying all goes well with the follow-up procedures and that you get some solid answers.   

  • Like 1

Share this post


Link to post
Share on other sites

:hurray: :hurray: :hurray:  If I got this right, you know it's not ALS!?

 

It may be the beginning of MS or something completely different? Either way, I am rejoicing with you that it is not your worst fear come true. Hopefully something minor that can be either cured or easily maintained.

 

 

He said, because I outright asked, that while ALS could, potentially, present like I am, it is highly unlikely and that he doubts it.  It is presenting much more like MS.  And while the previous neuro told me my MRI was clean so that MS was off the table, that he sees MS being a possibility.  And I am pretty grateful - because otherwise trying to figure out what can cause clonus, hyperreflexia, drop foot, and twitching does not leave many fun alternatives.  I was hoping for MS and, ideally, remitting relapsing readily controlled with meds!

  • Like 9

Share this post


Link to post
Share on other sites

While I know the possibility of a diagnosis is not ideal -- the ideal would be perfect health -- I also know how frustrating it is to have or see symptoms that specialists can't explain, and so I understand how relieved you must feel that someone is listening and understanding.

 

:party:  :party:

  • Like 3

Share this post


Link to post
Share on other sites

:hurray: :grouphug:

 

I'm so relieved for you. I distinctly remember your post before Xmas and I was so concerned. I had similar symptoms that -- long story short -- turned out to be something annoying, but benign.

 

Sending champagne and confetti!!

 

Alley :party:

Share this post


Link to post
Share on other sites

WOOT!!!!!!!

 

I know that MS isn't something to be happy to have.....but...... if you have MS WOOOOTTT!!!

 

As for the EMG, it's not a typically ordered test in part because it isn't conclusive if you do not have lesions in that area of your spine. Even if you have leg involvement.

 

LP makes perfect sense.

 

My daughter has had 2 in the past 3 months. Are you worried about the procedure? 

 

{{{{{{{{HUGS}}}}}}}}}}

 

Kris

  • Like 1

Share this post


Link to post
Share on other sites

i'm thankful with you it is most likely not ALS.

Share this post


Link to post
Share on other sites

Celebrating with you! While obviously MS has its own challenges, at least it's not the worst case scenario. Good luck as you continue to get this sorted out.

Share this post


Link to post
Share on other sites

WOOT!!!!!!!

 

I know that MS isn't something to be happy to have.....but...... if you have MS WOOOOTTT!!!

 

As for the EMG, it's not a typically ordered test in part because it isn't conclusive if you do not have lesions in that area of your spine. Even if you have leg involvement.

 

LP makes perfect sense.

 

My daughter has had 2 in the past 3 months. Are you worried about the procedure? 

 

{{{{{{{{HUGS}}}}}}}}}}

 

Kris

 

 

No.  I have to have spinals for my cerclages and I have had an epidural a few times - so Ive had a lumbar puncture in one form or another over a dozen times.  

 

;)

 

I knew that I would know what he was thinking based on the tests he ordered.  If he ordered a new MRI or LP, then he is wanting to confirm MS.  If he is ordering an EMG again, he is looking for fasciculation confirmation and ALS or MND is higher on the list, kwim?  I was relieved it was the LP.  :)

  • Like 3

Share this post


Link to post
Share on other sites

No.  I have to have spinals for my cerclages and I have had an epidural a few times - so Ive had a lumbar puncture in one form or another over a dozen times.  

 

;)

 

I knew that I would know what he was thinking based on the tests he ordered.  If he ordered a new MRI or LP, then he is wanting to confirm MS.  If he is ordering an EMG again, he is looking for fasciculation confirmation and ALS or MND is higher on the list, kwim?  I was relieved it was the LP.   :)

 

You and I both!!!

 

Do be warned, you aren't guaranteed an answer with the LP. My daughter's keep coming back clean and I'm starting to get peeved. She doesn't quite fit the McDonald criteria. My son, however, had more than 15 o-bands in the CSF.

 

{{{hugs}}}

 

 

Oh, also! You need to get a CD copy of all of your images!

 

Kris

SaveSave

  • Like 1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×
×
  • Create New...