Just an update...

[mom22kids]

I posted a lot here over the Summer about my dd and wanted to give an update to all those who helped me figure out what was going on,

 

Based on some poor CAPD scores I did some research and discovered that there are 3 types of CAPD disorders.  One that is based in the Right brain and has a unique set of characteristics, one that is Left brain based also with it's own set of traits and tendencies, and one that is based on Insufficient Interhemispheric Integration (L&R don't communicate) and my dd has the last one.

 

This made everything ELSE make sense.  Hence why she has moderate Dyspraxia, why she has Visual Processing Issues and her type of CAPD is usually accompanied by SPD which was what she was initially diagnosed with.  Her type of CAPD also comes with memory issues, sequencing difficulties, organization struggles and really explains most of what we see with her.

 

So it has all fallen into place.

 

Her type of CAPD is the one that most benefits from an FM system so we bought one before school started (the Roger Focus that Crimson's Wife suggested) and it has been life changing.  Years ago it was suggested that she had ADHD (we never believed that) and when she wears her hearing devices the difference would be akin to a true ADHD kid on meds vs when they are not.  The difference is night and day.

 

The new school has been amazing - but it's early ;)

 

Oh and once we resolved her Iron and B12 deficiency she became an entirely different child in terms of energy and level of engagement.

 

Thanks!

Edited September 24, 2016 by mermaid'smom

[kbutton]

Did the audiologist classify her type of CAPD, or is this through your research? I would be very interested in any information you have on the various types. I have seen a little bit here and there, but it's mostly been in slide show format without the lecture to go with it.

[Heathermomster]

Great, great update! Thank-you for that.

 

Please share any and all links that you have.

[mom22kids]

I would suggest you read the book "When the Brain can't hear". 

[kbutton]

I would suggest you read the book "When the Brain can't hear". 

 

I have read parts of it. I didn't remember quite that much detail on types, but it's been a while. Thanks!

[Tiramisu]

Yay!!! I'm so happy for you and your DD!!!

 

What a blessing that you figured it out! And your description matches my DD with CAPD very closely. Same global processing issues, same struggles.

 

The fm system wasn't such a life-changer for us because she didn't get one until she was in college. It's just tricky in music classes and discussion-based classes. I wish we would have figured it out earlier! So I hope you continue to share your stories for others who come here looking for answers.

 

Oh, and you might remember about my B12 being low again. I think I found out about the same time you got your DD's result. I started supplementing again and I feel the improvement. I can think and express my thoughts much more clearly, and I think I've been more organized and plan better, even with things like meals which benefits the whole family. I'm sleeping better, too, and that helps everything. My mood is slowly improving, but my family is doing well recently so that might explain that. I'll take it all, gratefully, and share your happiness!

[mom22kids]

Yay!!! I'm so happy for you and your DD!!!

 

What a blessing that you figured it out! And your description matches my DD with CAPD very closely. Same global processing issues, same struggles.

 

The fm system wasn't such a life-changer for us because she didn't get one until she was in college. It's just tricky in music classes and discussion-based classes. I wish we would have figured it out earlier! So I hope you continue to share your stories for others who come here looking for answers.

 

Oh, and you might remember about my B12 being low again. I think I found out about the same time you got your DD's result. I started supplementing again and I feel the improvement. I can think and express my thoughts much more clearly, and I think I've been more organized and plan better, even with things like meals which benefits the whole family. I'm sleeping better, too, and that helps everything. My mood is slowly improving, but my family is doing well recently so that might explain that. I'll take it all, gratefully, and share your happiness!

 

We love the FM system and since we bought it privately she was able to get jazzy colors etc.  You might remember that she REFUSED to wear the school based FM system so we are shocked by her flip in opinion.  She wears it all day but typically doesn't want to wear it here at home unless we are doing homework.  Her friends think it's pretty cool also.

 

The B12 was also surprising.  The deficiency wasn't THAT low (though no one knows what each persons unique levels should be) so the improvements were unexpected.  She is so bright eyed and even the texture of her skin changed.  She also very quickly stopped mentioning her legs and the numbness etc.

 

Happy to hear you are also doing better on B12!!

[mom22kids]

I have read parts of it. I didn't remember quite that much detail on types, but it's been a while. Thanks!

 

It discusses 3 main types and 2 sub-types (if I remember correctly?) and there is some bleed/carry over between them all so you may have symptoms from more than one type.  My dd is CLASSIC Insufficient Inter-hemispheric Integration.