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Urgent Prayer Request for DS


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April 5, 2015 Hello, Everyone, God is so good! If you could see ds, you would wonder how anyone could think he needs a bone marrow transplant! It is God’s mercy and grace that is - and has - kept

Hello, Everyone,   Thank You for praying and Please don’t stop!  God is still on the throne!   In ds' words, he didn’t get the news he was hoping for - but - he didn’t get the news he fe

Update – June 17, 2018 Don’t know if anyone on here remembers me anymore – but I sure do remember you and still thank God for you! Have thought often of updating, but that’s as far as it wen

June 10, 2015

 

Still critical.
 
HOWEVER:
 
--three days in a row with no new negative news added
--bilirubin down by 3.5 – still way too high but trending in the right direction
--a test related to the bone marrow transplant came back with good news 
 
Still needs MUCH prayer, in particular:
 
--GVHD (graft-versus-host disease) – It is stage 4 (the worst).  Have started a new medicine today to hopefully (prayerfully) help with it.  This medicine comes with GREAT RISK due to the other medical situations he is dealing with.
--The LIVER in general.  Bilirubin needs to come way down.  Not sure if he has GVHD of the liver (in addition to GVHD of the gut) or VOD ongoing (venal occlusive disease) or both.
 
He is in much pain – need to find something to deal with this that is not detrimental to other issues.  Consulted with pain management today; some potentially good ideas.
 
We appreciate your prayers very much.  Please keep praying.
 
He needs prayer from head to toe – remains in critical condition – but God's Word says in 2 Chronicles 20:15b:
 
“Be not afraid nor dismayed by reason of this great multitude; for the battle is not yours, but God's.â€
 
So:
 
“Our soul waiteth for the Lord:  He is our help and our shield.  For our heart shall rejoice in Him, because we have trusted in His holy name.  Let Thy mercy, O Lord, be upon us, according as we hope in Thee.†(Psalm 33:20-22)
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Thank you for the detailed update -- it's so kind of you to keep letting us know how he is doing.

 

Praying for all of the concerns you mentioned, as well as for you and the rest of your family during this stressful and emotional time. :grouphug:

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