Joanne Posted August 7, 2008 Share Posted August 7, 2008 My dd has Juvenile Rheumatoid Arthritis. It's "poly", and moderate to severe. She sees the Nurse Practioner several times a year and the Rheumatologist 1 - 2 times a year. She's on some heavy meds for it. The disease itself is an autimmune disorder and the treatments are immunosuppressents (it's a constant evaluation of risk/benefit). But the Dr. saw her yesterday and she looked great! Her wrists and ankles were terrific and her knees greatly improved! The dr. said that puberty will either have no effect or it will get better (some children outgrow it with the onset of puberty). I can accept "the same" and of course we'd welcome it going away. It's in the "Medical Center", a very busy, confusing and intimidating place in Houston. But once you get into the specialist and past all the uber techno clinical mess, they are responsive, warm and thorough. She was asked to participate in a study of children with JRA who take methotrexate (a chemo agent) to see if the function of methotrexate on the immune system effects a child's ability to respond to vaccinations. Funny, that, when you consider I'm a staunch informed consenter on vaccines and did the selective/delayed thing. She chose to participate, and since she hates, hates, hates needles (and she gets shots 2X a week), I was very proud of her. Quote Link to comment Share on other sites More sharing options...
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