fourcatmom Posted June 4, 2013 Share Posted June 4, 2013 I am having a really bad day. I finally had my Bronchoscopy last Thursday and it really wiped me out. It was suppose to be a 5 minute procedure with a possible biopsy and it was a 45 minute procedure (with extra sleepy meds since it went longer then expected) and a total of 8 biopsies. I am coughing so much, still 5 days later but coughing was my chief complaint before so it's just almost non-stop now and I feel completely exhausted. I did get the results for 1 biopsy back today, negative for cancer and negative for infection through some of the pathology reports but there is still more to come back. I don't really want anything to be positive but then I already know something is wrong and maybe if something came back positive, I could start to have a treatment plan. It's just so exhausting being short of breath and coughing all the time. My last PFT test was in the 60% range this time, it was 70% last March. I know the doctor talked to me after the procedure but since they give you medicine to help you forget, I really don't remember what he said! Anyways, I am just finding it really hard to go through all this stuff and have no definite answers about what is going on. I try to take each day as it comes but today has just not been a good day. :confused1: I feel like every time something is negative, I breathe of sigh of relief but then start to feel hopeless that I am not going to get to the bottom of my symptoms and I don't even know if that makes any sense. Quote Link to comment Share on other sites More sharing options...
marbel Posted June 4, 2013 Share Posted June 4, 2013 I'm sorry to read this. One of my kids has been going through chronic illness with no answers for a couple of years (off and on) with no results. He has gotten to the point that he hopes a test will come back positive just so he'll have an answer. The worst part for me is that the doctors seem to treat his different symptoms as just an unconnected bunch of things wrong, instead of considering that some things may be related. We are at the point of looking for a new general practitioner because we think ours is tired of us. So, I definitey empathize with you and hope you have some answers soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
Flowing Brook Posted June 4, 2013 Share Posted June 4, 2013 :grouphug: :grouphug: I am sorry. I hope you get some answers and a treatment plan soon. Quote Link to comment Share on other sites More sharing options...
fourcatmom Posted June 4, 2013 Author Share Posted June 4, 2013 I'm sorry to read this. One of my kids has been going through chronic illness with no answers for a couple of years (off and on) with no results. He has gotten to the point that he hopes a test will come back positive just so he'll have an answer. The worst part for me is that the doctors seem to treat his different symptoms as just an unconnected bunch of things wrong, instead of considering that some things may be related. We are at the point of looking for a new general practitioner because we think ours is tired of us. So, I definitey empathize with you and hope you have some answers soon. :grouphug: Yes! This! I don't want a positive but there are days where I think an answer, any answer would be better. Maybe with an answer a treatment plan or explanation or course of action could come with it instead of just feeling drained and questioned all the time. And, no more tests! I am sorry that your son is going through this. I would can not image having these feelings as a child. My thoughts are with you and your son. Quote Link to comment Share on other sites More sharing options...
Starr Posted June 4, 2013 Share Posted June 4, 2013 I'm so sorry you continue to feel bad. Hopefully these tests will be negative but that will lead to the answer! Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted June 4, 2013 Share Posted June 4, 2013 :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Lizzie in Ma Posted June 4, 2013 Share Posted June 4, 2013 It is indeed. Hope you get some answers. :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Wildcat Posted June 4, 2013 Share Posted June 4, 2013 I'm sorry you are going through this. I often feel that I can fight my enemy, but I need to know where the enemy is/what it is first!! :grouphug: :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
G5052 Posted June 4, 2013 Share Posted June 4, 2013 I'm sorry that you're dealing with this. I have a family member who has been dealing with significant, chronic issues for over a decade with lots and lots of tests and medical procedures, and really minimal improvement. Sometimes we'll get a little bit of information or improvement, but nothing big. Quote Link to comment Share on other sites More sharing options...
G5052 Posted June 4, 2013 Share Posted June 4, 2013 I'm sorry to read this. One of my kids has been going through chronic illness with no answers for a couple of years (off and on) with no results. He has gotten to the point that he hopes a test will come back positive just so he'll have an answer. The worst part for me is that the doctors seem to treat his different symptoms as just an unconnected bunch of things wrong, instead of considering that some things may be related. We are at the point of looking for a new general practitioner because we think ours is tired of us. So, I definitey empathize with you and hope you have some answers soon. :grouphug: Yes, sometimes it is best to start over. Recently one of our specialists was out of town, and we ended up having a procedure with one of the partners in the practice. He didn't find anything, but in the course of discussing the various issues of concern, he recommended a new prescription medicine that was a possible answer for one issue. Well, it didn't make a huge difference, but it did address that one issue. And we had been in for various scans, etc. last summer, trying to track down an answer for that, but now it is resolved. And we both found that changing primaries brought about some new ideas and different ways of treating some of our nagging health issues. We changed because of a problem in the office, not because we didn't like the doctor, and it was a good thing in the end. The new doctor approached things just a little differently. Quote Link to comment Share on other sites More sharing options...
Mom-ninja. Posted June 4, 2013 Share Posted June 4, 2013 It is very difficult being sick and not knowing why. I hope you get answers soon and that the answers lead to a treatable course of action. Quote Link to comment Share on other sites More sharing options...
fourcatmom Posted June 4, 2013 Author Share Posted June 4, 2013 Thank you everyone for listening and for the support. I am hoping today is a better day! :laugh: Quote Link to comment Share on other sites More sharing options...
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