rieshy Posted February 28, 2013 Share Posted February 28, 2013 I posted a Rare disease post and thought I'd share it here especially for those of us dealing with any sort of chronic illness. Have great Thursday:) Quote Link to comment Share on other sites More sharing options...
sbgrace Posted February 28, 2013 Share Posted February 28, 2013 Thank you for sharing that glimpse into your lives. My son has a metabolic disorder as well. Quote Link to comment Share on other sites More sharing options...
Remudamom Posted February 28, 2013 Share Posted February 28, 2013 Wow. Good job mom. Quote Link to comment Share on other sites More sharing options...
J-rap Posted February 28, 2013 Share Posted February 28, 2013 Thank you for sharing. You are a great mom!! I really like your writing style, too. Quote Link to comment Share on other sites More sharing options...
besroma Posted March 1, 2013 Share Posted March 1, 2013 Beautiful blog post. You are a wonderful mother. Quote Link to comment Share on other sites More sharing options...
mamatohaleybug Posted March 1, 2013 Share Posted March 1, 2013 Thanks for posting your link. My DD also has a rare disorder so I can relate. Quote Link to comment Share on other sites More sharing options...
Splash Posted March 2, 2013 Share Posted March 2, 2013 Thanks for your post. My daughter has an chronic life threatening Ultra Rare Disease that we are learning to manage. She was just diagnosed this fall after almost losing her. Quote Link to comment Share on other sites More sharing options...
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