rieshy Posted February 28, 2013 Posted February 28, 2013 I posted a Rare disease post and thought I'd share it here especially for those of us dealing with any sort of chronic illness. Have great Thursday:) Quote
sbgrace Posted February 28, 2013 Posted February 28, 2013 Thank you for sharing that glimpse into your lives. My son has a metabolic disorder as well. Quote
J-rap Posted February 28, 2013 Posted February 28, 2013 Thank you for sharing. You are a great mom!! I really like your writing style, too. Quote
besroma Posted March 1, 2013 Posted March 1, 2013 Beautiful blog post. You are a wonderful mother. Quote
mamatohaleybug Posted March 1, 2013 Posted March 1, 2013 Thanks for posting your link. My DD also has a rare disorder so I can relate. Quote
Splash Posted March 2, 2013 Posted March 2, 2013 Thanks for your post. My daughter has an chronic life threatening Ultra Rare Disease that we are learning to manage. She was just diagnosed this fall after almost losing her. Quote
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