Flowing Brook Posted February 21, 2013 Share Posted February 21, 2013 I was wondering if anyone here has any experience with this? Quote Link to comment Share on other sites More sharing options...
Flowing Brook Posted February 21, 2013 Author Share Posted February 21, 2013 :bigear: please tell me I am not the only one on this board with this condition! I was just recently diagnosed and looking for some btdt. Quote Link to comment Share on other sites More sharing options...
Twigs Posted February 21, 2013 Share Posted February 21, 2013 :grouphug: :grouphug: :grouphug: (I had to google to find out what that was) Quote Link to comment Share on other sites More sharing options...
Paisley Hedgehog Posted February 21, 2013 Share Posted February 21, 2013 nm Quote Link to comment Share on other sites More sharing options...
Flowing Brook Posted February 21, 2013 Author Share Posted February 21, 2013 Thanks! Quote Link to comment Share on other sites More sharing options...
Flowing Brook Posted February 21, 2013 Author Share Posted February 21, 2013 I thought I would bump this up one more time. Quote Link to comment Share on other sites More sharing options...
NavyMommy Posted February 21, 2013 Share Posted February 21, 2013 My DH had one. It wasn't to bad, he had surgery to have it removed. Feel free to post or PM me if you have any specific questions! Quote Link to comment Share on other sites More sharing options...
athomemom Posted February 21, 2013 Share Posted February 21, 2013 Yes, I had one removed when I was a child. Are you having surgery? Quote Link to comment Share on other sites More sharing options...
Flowing Brook Posted February 21, 2013 Author Share Posted February 21, 2013 I guess my specific questions are what is the recovery from surgery like. Did you have to have a second surgery? Did it affect your hearing long term? After recovery and for the long term have you had any lingering effects from it? I am almost positive I will be having surgery. Thanks! Quote Link to comment Share on other sites More sharing options...
athomemom Posted February 21, 2013 Share Posted February 21, 2013 I guess my specific questions are what is the recovery from surgery like. Did you have to have a second surgery? Did it affect your hearing long term? After recovery and for the long term have you had any lingering effects from it? I am almost positive I will be having surgery. Thanks! I also had a mastoidectomy in the same ear. I have about 40-50% hearing in my left ear. You have to remember though that I was 6 & 7 years old when I had surgery. I don't know what it's like to hear fully. I go every couple of years to get my ear cleaned out. I was out of school for a couple of weeks. One surgery took 2 1/2 hours the other over 5 hours. I think it will depend on your specific situation as far as outcome and how long it takes. It's been over 30 years since I had surgery! Technology has changed so much. I will be thinking of you! Quote Link to comment Share on other sites More sharing options...
zimom Posted February 21, 2013 Share Posted February 21, 2013 My older DD had a cholesteatoma, and I was also an audiologist for a large ENT practice in my prior life :) A lot will depend on how big the cholesteatoma is, how invasive, etc. my biggest advice is that obviously not all ENTs are created equal. REALLY do your homework. Finding an otologist (ears only) is one way to help narrow down to someone that knows what they are doing. Quote Link to comment Share on other sites More sharing options...
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