Random Posted February 15, 2013 Share Posted February 15, 2013 :grouphug: Beautiful! Quote Link to comment Share on other sites More sharing options...
PrairieSong Posted February 15, 2013 Share Posted February 15, 2013 That was lovely. What a beautiful girl who seems to have done a lot of living in her short life. Our friends just lost their son to CF as well. I am so sorry for your loss. Quote Link to comment Share on other sites More sharing options...
sbgrace Posted February 15, 2013 Share Posted February 15, 2013 What a beautiful tribute to a beautiful and clearly well-loved soul. I feel privileged you shared. Quote Link to comment Share on other sites More sharing options...
nd293 Posted February 15, 2013 Share Posted February 15, 2013 Thanks you for taking the time to let us 'meet' her. She looks like someone who lived her life fully and with joy. Quote Link to comment Share on other sites More sharing options...
Melissa in Australia Posted February 15, 2013 Share Posted February 15, 2013 :grouphug: :grouphug: Quote Link to comment Share on other sites More sharing options...
Donna Posted February 15, 2013 Share Posted February 15, 2013 :grouphug: Quote Link to comment Share on other sites More sharing options...
Michelle in AL Posted February 15, 2013 Share Posted February 15, 2013 She is beautiful!! I was a adolescent nurse for 11 yrs and I have many beuatiful memories of my CF patients. Hugs to you, Michelle Quote Link to comment Share on other sites More sharing options...
Pod's mum Posted February 15, 2013 Author Share Posted February 15, 2013 Thank you everyone for your support and help getting through yesterday. I kept busy and that helped too. To others dealing with CF, most kids do get to become adults nowdays. A few don't though. And my girl always knew she was working to an unknown and probably shortened time-frame and was pretty determined to try and fit it all in. She did a good job too. She exhausted US keeping up with her. She even climbed Ayers Rock when she was 11. That is really really hard even if you've got full lung function and aren't suffering from sore joints. She was amazing. And she still is. Quote Link to comment Share on other sites More sharing options...
Pod's mum Posted February 16, 2013 Author Share Posted February 16, 2013 (edited) Last one and then I'll sod off for a bit. I do have a longer version of the first video but my download is very slow so it can wait a bit longer before I get around to uploading it. But this is one is very short and I sometimes put it on loop, just for the chuckle at the end. So I've uploaded it. "Late December 2010. This was in her last few weeks. She ached and was slow, tired and breathless, but wasn't going to miss out on a bit more fun. Love the giggle. Really miss it" ETA: That's horrible quality, I'll try to redo it. ETA: Can't fix it. This sort of stuff used to be her job. Edited February 16, 2013 by Pod's mum Quote Link to comment Share on other sites More sharing options...
*LC Posted February 16, 2013 Share Posted February 16, 2013 Thank you all for your comments and support. I cried through them all. She was an uncompromising, exhausting, exasperating and difficult child, who loved and enjoyed life as verociously as she fought against what she did not want (such as hours of treatment each day, and pretty much anything anyone at the hospital wanted her to do). She bore no one any ill-will, and once she recovered from a screaming melt down could not understand why others didn't recover as completely from what had just occured...". ... She joined the church before us with the same complete acceptance and could not really understand why others should be so upset that she was dying. Surely that's the whole point of Christianity, that we know it is not the end. Praying that today went okay for you and your family. Thank you for sharing your daughter with us. I have a child that has a similar personality. Have you ever heard the song "With Hope" ? I've always thought the lyrics were speaking to a child who has died after suffering sickness in life. Here are the lyrics This is not at all how We thought it was supposed to be We had so many plans for you We had so many dreams And now you've gone away And left us with the memories of your smile And nothing we can say And nothing we can do Can take away the pain The pain of losing you, but ... We can cry with hope We can say goodbye with hope 'Cause we know our goodbye is not the end, oh no And we can grieve with hope 'Cause we believe with hope (There's a place by God's grace) There's a place where we'll see your face again We'll see your face again And never have I known Anything so hard to understand And never have I questioned more The wisdom of God's plan But through the cloud of tears I see the Father's smile and say well done And I imagine you Where you wanted most to be Seeing all your dreams come true 'Cause now you're home And now you're free, and ... We have this hope as an anchor 'Cause we believe that everything God promised us is true, so ... So we can cry with hope And say goodbye with hope We wait with hope And we ache with hope We hold on with hope We let go with hope Quote Link to comment Share on other sites More sharing options...
kwickimom Posted February 16, 2013 Share Posted February 16, 2013 Thanks for sharing her with us! Shes beautiful and so was the tribute! Quote Link to comment Share on other sites More sharing options...
Hockey Mom Posted February 16, 2013 Share Posted February 16, 2013 My heart breaks for you. No mother should ever have to attend her child's funeral. :( Your daughter's smile just radiates in those pictures. You can see the twinkle in her eyes in some of them as well. What a blessing you have given us. Thank you for sharing her with us. Quote Link to comment Share on other sites More sharing options...
lisabees Posted February 16, 2013 Share Posted February 16, 2013 Just lovely. :grouphug: to you and your family. Quote Link to comment Share on other sites More sharing options...
KnitWit Posted February 16, 2013 Share Posted February 16, 2013 ((((Hugs)))) Quote Link to comment Share on other sites More sharing options...
justamouse Posted February 16, 2013 Share Posted February 16, 2013 She was so beautiful and that was the most lovely tribute. It looks like you took advantage of every moment you had with her. :grouphug: Quote Link to comment Share on other sites More sharing options...
StaceyinLA Posted February 16, 2013 Share Posted February 16, 2013 Beautiful tribute! It certainly looks as though she lived her life to the fullest and made some wonderful memories for y'all to carry with you! Quote Link to comment Share on other sites More sharing options...
Denise in IN Posted February 16, 2013 Share Posted February 16, 2013 Such a beautiful young lady, and a beautiful tribute to her. :grouphug: May you have peace as you remember her today. Thanks for sharing her with us! Quote Link to comment Share on other sites More sharing options...
readwithem Posted February 16, 2013 Share Posted February 16, 2013 What a lovely girl - beautiful smile and those curls! Oh my. We're not meant to bury our children. :( Thank you for sharing the videos. Quote Link to comment Share on other sites More sharing options...
Monica_in_Switzerland Posted February 16, 2013 Share Posted February 16, 2013 What a beautiful tribute. What a comfort to know she was among the people she loved, in her own home when she died. She is part of our great heavenly family now. Quote Link to comment Share on other sites More sharing options...
Quiver0f10 Posted February 16, 2013 Share Posted February 16, 2013 Beautiful! Thank you for sharing with us. :grouphug: Quote Link to comment Share on other sites More sharing options...
Anne in CA Posted February 16, 2013 Share Posted February 16, 2013 So precious. Quote Link to comment Share on other sites More sharing options...
Hot Lava Mama Posted February 16, 2013 Share Posted February 16, 2013 My heart breaks for you. It looks like you packed an exciting, wonderful life in her short years. Prayers coming your way. Hot Lava Mama Quote Link to comment Share on other sites More sharing options...
speedmom4 Posted February 16, 2013 Share Posted February 16, 2013 Thank you so much for sharing your beautiful daughter with us. I love your description of her in your update because that was the exact impression of her I got from the tribute video. There is just something in her eyes and smile that show her mischief not just her beauty. I can't imagine what you and your family have been going through these past two years. I pray for hope and healing. Elise in NC Quote Link to comment Share on other sites More sharing options...
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