Youtube of dd on the 2nd anniversary of her death.

[Random]

:grouphug:

 

Beautiful!

[PrairieSong]

That was lovely. What a beautiful girl who seems to have done a lot of living in her short life. Our friends just lost their son to CF as well. I am so sorry for your loss.

[sbgrace]

What a beautiful tribute to a beautiful and clearly well-loved soul. I feel privileged you shared.

[nd293]

Thanks you for taking the time to let us 'meet' her. She looks like someone who lived her life fully and with joy.

[Melissa in Australia]

:grouphug: :grouphug:

[Donna]

:grouphug:

[Michelle in AL]

She is beautiful!! I was a adolescent nurse for 11 yrs and I have many beuatiful memories of my CF patients.

Hugs to you,

Michelle

[Pod's mum]

Thank you everyone for your support and help getting through yesterday.

I kept busy and that helped too.

To others dealing with CF, most kids do get to become adults nowdays.

A few don't though.

And my girl always knew she was working to an unknown and probably shortened time-frame and was pretty determined to try and fit it all in.

She did a good job too.

She exhausted US keeping up with her.

She even climbed Ayers Rock when she was 11. That is really really hard even if you've got full lung function and aren't suffering from sore joints.

She was amazing.

And she still is.

[Pod's mum]

Last one and then I'll sod off for a bit.

I do have a longer version of the first video but my download is very slow so it can wait a bit longer before I get around to uploading it.

But this is one is very short and I sometimes put it on loop, just for the chuckle at the end. So I've uploaded it.

 

"Late December 2010. This was in her last few weeks.

She ached and was slow, tired and breathless, but wasn't going to miss out on a bit more fun. Love the giggle. Really miss it"

 

ETA: That's horrible quality, I'll try to redo it.

 

ETA: Can't fix it. This sort of stuff used to be her job.

Edited February 16, 2013 by Pod's mum

[*LC]

Thank you all for your comments and support. I cried through them all.

She was an uncompromising, exhausting, exasperating and difficult child, who loved and enjoyed life as verociously as she fought against what she did not want (such as hours of treatment each day, and pretty much anything anyone at the hospital wanted her to do). She bore no one any ill-will, and once she recovered from a screaming melt down could not understand why others didn't recover as completely from what had just occured...".

... She joined the church before us with the same complete acceptance and could not really understand why others should be so upset that she was dying. Surely that's the whole point of Christianity, that we know it is not the end.

 

Praying that today went okay for you and your family. Thank you for sharing your daughter with us. I have a child that has a similar personality.

 

Have you ever heard the song "With Hope" ? I've always thought the lyrics were speaking to a child who has died after suffering sickness in life.

 

Here are the lyrics

 

This is not at all how

We thought it was supposed to be

We had so many plans for you

We had so many dreams

And now you've gone away

And left us with the memories of your smile

And nothing we can say

And nothing we can do

Can take away the pain

The pain of losing you, but ...

 

We can cry with hope

We can say goodbye with hope

'Cause we know our goodbye is not the end, oh no

And we can grieve with hope

'Cause we believe with hope

(There's a place by God's grace)

There's a place where we'll see your face again

We'll see your face again

 

And never have I known

Anything so hard to understand

And never have I questioned more

The wisdom of God's plan

But through the cloud of tears

I see the Father's smile and say well done

And I imagine you

Where you wanted most to be

Seeing all your dreams come true

'Cause now you're home

And now you're free, and ...

 

We have this hope as an anchor

'Cause we believe that everything

God promised us is true, so ...

 

So we can cry with hope

And say goodbye with hope

 

We wait with hope

And we ache with hope

We hold on with hope

We let go with hope

[kwickimom]

Thanks for sharing her with us! Shes beautiful and so was the tribute!

[Hockey Mom]

My heart breaks for you. No mother should ever have to attend her child's funeral. :( Your daughter's smile just radiates in those pictures. You can see the twinkle in her eyes in some of them as well. What a blessing you have given us. Thank you for sharing her with us.

[lisabees]

Just lovely.

 

:grouphug: to you and your family.

[KnitWit]

((((Hugs))))

[justamouse]

She was so beautiful and that was the most lovely tribute. It looks like you took advantage of every moment you had with her. :grouphug:

[StaceyinLA]

Beautiful tribute! It certainly looks as though she lived her life to the fullest and made some wonderful memories for y'all to carry with you!

[Denise in IN]

Such a beautiful young lady, and a beautiful tribute to her. :grouphug: May you have peace as you remember her today. Thanks for sharing her with us!

[readwithem]

What a lovely girl - beautiful smile and those curls! Oh my. We're not meant to bury our children. :( Thank you for sharing the videos.

[Monica_in_Switzerland]

What a beautiful tribute. What a comfort to know she was among the people she loved, in her own home when she died. She is part of our great heavenly family now.

[Quiver0f10]

Beautiful! Thank you for sharing with us. :grouphug:

[Anne in CA]

So precious.

[Hot Lava Mama]

My heart breaks for you.

 

It looks like you packed an exciting, wonderful life in her short years.

 

Prayers coming your way.

Hot Lava Mama

[speedmom4]

Thank you so much for sharing your beautiful daughter with us. I love your description of her in your update because that was the exact impression of her I got from the tribute video. There is just something in her eyes and smile that show her mischief not just her beauty.

 

I can't imagine what you and your family have been going through these past two years. I pray for hope and healing.

 

Elise in NC