Jump to content

Menu

You're right, I'm wrong-please continue with your everyday lives.


Dmmetler
 Share

Recommended Posts

Never mind- I didn't mean to insult anyone. You're right, I'm wrong.

 

I do hope that no one here casually recommends medication as the solution to a 4 yr old climbing around and not wanting to sit still during big sis's gymnastics practice-it was the fact that this mom seemed to be getting "Oh, yes, my son did that, and we put him on Celexa" from multiple people at the same time that really pushed me over the edge, after having no fewer than three similar conversations with different folks this week happen in groups of parents.

Link to comment
Share on other sites

I think you should remember that the parents have lived with the child 24/7 all his/her life. They have seen ALL the child's behavior. Behavior/emotional problems are on a continuum; one person may have the issue at times, but be perfectly functional and happy; another may be struggling to a great enough degree that it interferes with normal functioning and causes distress.

 

Kids are on medication more now than in our generation, clearly, but also there is less stigma attached to mentioning it to others now.

Link to comment
Share on other sites

One of my dc is on Zoloft for anxiety. You would be amazed if you knew him. He presents perfectly in public (usually). He is a fun, reserved, polite, rule following normal little boy in public. The only thing you might notice is his severe stutter if he talked to you for any length of time.

 

We made the decision to medicate carefully and thoughtfully. We don't tell anyone because they would have the same response as the OP.

Link to comment
Share on other sites

Guest inoubliable

You're not alone. None of my kids are on anything. And we know a ton of kids who ARE, and I hate to judge but knowing some of these families and the kids' issues as described by the parents it seems more like parenting fails and public schools not having resources enough to deal more than medical issues.

 

ETA: I realize my reply could get me flamed. Let me clarify - I know that some kids absolutely need to be medicated for whatever reasons and that medication is the difference, for them, in leading a productive life or not. Not every medicated child out there is being doped up simply to make the parents' life easier or a school administrator's job peachier. I do get that. I DO know a few kids who are medicated and are absolutely more in need of good parenting than medication.

 

Like my neighbor who tried for a couple of years to convince doctor after doctor to give her kid Ritalin for ADD.Katie was out of control - throwing temper tantrums, not sleeping at night, crying hysterically when her mother would leave at times, falling asleep in school or talking nonstop when awake at school. Not one doctor would agree and told her that her kid needed a schedule, she needed consequences for acting up in school, and that my neighbor needed to put her in therapy because the kid was acting up due to a tumultuous home life. My neighbor went berserk over this. She now "medicates" her child with melatonin on her own. She medicates Katie so heavily at night so that Katie sleeps during school, too. And she's medicating her this way because Michelle doesn't come home until after midnight most nights since she's out with boyfriend-of-the-moment. Katie is upset and has issues with this that manifest in her throwing tantrums at 11 years old. Michelle literally picks this child up and THROWS her into her bed and has her 16 year old son forcibly hold Katie down to administer the melatonin. Then Katie sleeps in school and the school calls to complain. And what does Michelle do? She convinces Katie that it's her math teacher who is terrorizing her in school and that Katie can't sleep at night because of nightmares about this teacher coming in her window and so that's why she needs to give her a sleeping aid. That's the kind of medication/parenting fail that I was talking about.

 

I've seen every episode of ER and still don't have MD at the end of my name, so of course I'm not diagnosing anyone's kid over the internet or even across the ball park.

Link to comment
Share on other sites

I hate to sound grumpy, but OP, that's a pretty harsh post. Definitely comes off as judging negatively all parents whose kids use meds for behavior.- blaming them for given the meds "unneccessarily".

 

I'm going to go with the theory that You Just Have No Clue. You are seeing the behavior of children who are being treated and saying "since they behave fine on meds, the meds aren't necessary". That doesn't even make sense.

 

I think you need to walk a week in shoes of these parents before you start making critical comments about whether the meds are needed or not.

Link to comment
Share on other sites

Mine aren't, but my DS sounds just like your DD -- supertalkative, focus issues on some topics, but hyperfocus for things like Legos -- and I was strongly encouraged by both our ped and one of his nurses to consider meds. Another nurse backed me on continuing without them, and they all eventually settled into a stance of "as long as his grades are ok, it's ok to go without for now." FWIW, I would once have left a practice that was so in favor of medicating, but I do see benefits for many kids, and I do believe the staff were trying to be supportive. There are times when my DS is able to describe issues he is having organizing his own thoughts and behaviors -- when his focus issues are noticeable to him and getting in the way of what he wants to do. Because of that, I won't rule out the possibility of trying meds in the future.

Link to comment
Share on other sites

Unless you are the childrens parents or the doctor of said children, you would have NO WAY OF KNOWING what these children's normal behaviors are actually like when not on their meds. Medication for neurological issues address issue's with the BRAINS CHEMISTRY not poor parenting. The meds don't work if there is NOTHING WRONG. I don't know any parents who took the decision to medicate lightly, mostly because of the stigma and judgmentalism of NON-EXPERTS.

Link to comment
Share on other sites

Oh lawdy, this is gonna get heated ;-). I just want to point out that if a child is treated with a stimulant for adhd and truly doesnt need it; they would seem wired and off the wall. The stimulant calms a child with adhd and in some cases like my son, their issues aren't hyperactivity but impulsiveness and attention deficits. Those cant be observed and diagnosed casually as a bystander. I fought opinions such as yours that made me self conscious of medicating and thought I was just a horrible parent that obviously just didnt have it together. Medication and the comprehension and completion of his studies have changed our life in our household.

Link to comment
Share on other sites

Oh lawdy, this is gonna get heated ;-). I just want to point out that if a child is treated with a stimulant for adhd and truly doesnt need it; they would seem wired and off the wall. The stimulant calms a child with adhd and in some cases like my son, their issues aren't hyperactivity but impulsiveness and attention deficits. Those cant be observed and diagnosed casually as a bystander. I fought opinions such as yours that made me self conscious of medicating and thought I was just a horrible parent that obviously just didnt have it together. Medication and the comprehension and completion of his studies have changed our life in our household.

 

 

Yes, I could have written this post except I have a daughter on meds, and she did have hyperactivity in addition to the other symptoms.

Link to comment
Share on other sites

Like many others said, my kids not only acted normal, but normally better than some. But not if they weren't on medication. It isn't all the same medication for each of them either, since they don't have the same problems. I am sure that some people who saw my severely adhd child on meds thought I am crazy to put her on it but when you realize that on meds, she does great, off meds, she acts like a hyper 4 year old (she is an adult now) or worse, medications have been a real blessing for us. LIke having a child survive versus succumb to depression- what a choice- of course you medicate.

Link to comment
Share on other sites

No, none of my kids are on medication, nor have they every been. However, medications for ADHD, anxiety, depression, etc. can have positive, life-changing affects for some kids. Unless I have walked the difficult path of a parent in this issue, I would not make assumptions that the decision was made lightly nor that the medication is unnecessary.

Link to comment
Share on other sites

First, I am going to chose not to get offended by your OP and just hope there is more thought, compassion and understanding than I am seeing.

 

Here is where I am at. I have one who really needs to be medicated, but is highly allergic to the meds themselves, at least as they are presently being formulated in my state. Two others truly have adhd as well, but I have pulled them off as well. They are struggling more with school and dd11 seems to have lost her love for reading. (really she has just lost her ability for long concentrated effort) it saddens me greatly, but it is where we are at.

 

All of that, and I did have an unusual observation over Christmas. We went and visit family that we have not seen in over 5 years. This included cousins around the same age as my kids and the adult extended family members as well. Oh my gosh!!!! They were as chattery, bouncy, excitable as mine were. I could sit back and see the ADHD at work back through generations. It was truly fascinating. I had a major sense of loss as well though, because mine had grown up away from family, I was not able to contextualize their behavior within the genetic pool. Nor was I able to see how the adults had coped organically. I think as we become more spread out as a society we lose more than we think.

 

I was so struck by the boys uncles, that we will be moving very close to them. Raising these kids is very hard and I need the help and support of family that has raised and is presently raising this type of child. In a sense, I am moving my kids back to a very rustic, kid in the woods, environment. This is the onyl way I can see us surviving without the medications.

Link to comment
Share on other sites

One of my dc is on Zoloft for anxiety. You would be amazed if you knew him. He presents perfectly in public (usually). He is a fun, reserved, polite, rule following normal little boy in public. The only thing you might notice is his severe stutter if he talked to you for any length of time.

 

We made the decision to medicate carefully and thoughtfully. We don't tell anyone because they would have the same response as the OP.

 

 

 

This is us. I waited and waited, not wanting to put my son on medication. What a waste of time that was. He's so much better on the meds. If you had seen any of the public meltdowns my kid had before the medication, you'd understand.

Link to comment
Share on other sites

To the OP---I would ask yourself if his behavior is interferring with his normal everyday life. Does it negatively impact his self esteem ("always the kid in trouble")? Does it interfer with friendships and sibling relationships? Is he really struggling with school work due to this?

 

If it isn't negatively impacting him, then meds are likely not the right answer right now. If it is impacting him, then that is the time to more carefully consider interventions.

 

Most parents, at least here on these boards, have tried many different non medical interventions, struggled with the decision to medicate, etc.

 

here medication has made a world of difference. The child that was predicted not to be able to live in a home environment (meaning would likely need residental treatment) is my easiest one. The child is happy, creative, very social, etc. Without medications though we would be looking at residential or a long term mental health treatment facility.

Link to comment
Share on other sites

In general, I think that as a society we are quick to medicate because it is the quickest solution with measurable results.

 

That said, I believe that many children are medicated who really do not need to be. However, I am not a doctor or the parent of those children so I can't really say. I try to live by the thought that I can only parent one famly at a time. Mine. I've got enough on my plate without worrying what is on someone elses.

Link to comment
Share on other sites

There hav always been parents who abuse their kids with medication. Thare are parents who are overwhelmed with today's challenges that the lack the time and tools to discipline, so when the school say behavior problem they medicate without much thought. There are schools that insist on medications for happy active children the teacher doesn't want to deal with. There are moms who want attention so they find things wrong with their kids so they can get the attention they think they deserve.

 

But all of those situations are few and far between. I think what you are seeing is better clinical diagnosis, better awareness of conditions and more involved parents. Autistic kids used to be shut away, kids with aspergers were labeled quirky. The same with kids who suffer from sensory processing disorders. Anxious kidsagain quirky or quirky and shy. They were left alone to deal with their issues as best they could in an unkind world.

 

I do agree with you that it does seem that it is every 10th kid who is perfectly normal and that normal maybe the minority now. Because for every medicated kid, there is one unmediated but in therapy kid, one kid with his parents in denial, and one kid who's issues are present but don't require more than parental awareness and home therapy. Then add in all the kids with some form of food allergy.

 

Personally I think a good half of these kids I the not normal category suffer more from environmental conditions, but that is for a different tread.

Link to comment
Share on other sites

First, I am going to chose not to get offended by your OP and just hope there is more thought, compassion and understanding than I am seeing. Here is where I am at. I have one who really needs to be medicated, but is highly allergic to the meds themselves, at least as they are presently being formulated in my state. Two others truly have adhd as well, but I have pulled them off as well. They are struggling more with school and dd11 seems to have lost her love for reading. (really she has just lost her ability for long concentrated effort) it saddens me greatly, but it is where we are at. All of that, and I did have an unusual observation over Christmas. We went and visit family that we have not seen in over 5 years. This included cousins around the same age as my kids and the adult extended family members as well. Oh my gosh!!!! They were as chattery, bouncy, excitable as mine were. I could sit back and see the ADHD at work back through generations. It was truly fascinating. I had a major sense of loss as well though, because mine had grown up away from family, I was not able to contextualize their behavior within the genetic pool. Nor was I able to see how the adults had coped organically. I think as we become more spread out as a society we lose more than we think. I was so struck by the boys uncles, that we will be moving very close to them. Raising these kids is very hard and I need the help and support of family that has raised and is presently raising this type of child. In a sense, I am moving my kids back to a very rustic, kid in the woods, environment. This is the onyl way I can see us surviving without the medications.

That is so interesting. We live far away from family too. I did have the benefit of being young when all my nieces and nephews were born so I saw them all growing up. I would love to move back to our home state where DS could have a much more outdoor life like my DH had growing up.

 

ETA - I always ask my MIL about what my DH was like growing up but I honestly don't think she remembers (she was overwhelmed with 4 young kids, one with very pressing special needs) and I think my DH liked to be outside sooooo much that she didn't see him all that much. LOL

Link to comment
Share on other sites

All I can add is that I have seen the struggle some parents go through even when the medication is working - with the constant monitoring of dose, trying different meds or combinations, having to medicate to offset side effects, etc., etc. It's NOT the easy way out that some think, and I tend to believe that a parent must really see the benefits if they are willing to go through that.

Link to comment
Share on other sites

My oldest was on meds FOR YEARS. He truly has ADHD.

 

I fully regret ever putting him on, he was a walking cocktail of pharmaceuticals and the side effects of the brew were more than horrific.The endless Dr appointments, psychiatrists, physiologists, neurologists, geneticists... I wish I knew back 20 years ago about GAPS and how diet and teaching habits when young could help. I am eternally sorry that he was my first--though perhaps I wouldn't ahve learned as much without him being my first. I don't know.

 

I fully sympathize with moms of ADHD kids. Really, I get it, in all of its brutality.

 

THAT SAID, I agree.

 

I see a lot of poor parenting (this is a generational loss, this lack of mothers) getting pacified with kids getting put on meds.

Link to comment
Share on other sites

One of my dc is on Zoloft for anxiety. You would be amazed if you knew him. He presents perfectly in public (usually). He is a fun, reserved, polite, rule following normal little boy in public. The only thing you might notice is his severe stutter if he talked to you for any length of time.

 

We made the decision to medicate carefully and thoughtfully. We don't tell anyone because they would have the same response as the OP.

 

 

 

I've been thinking about this thread a little this morning. All people and families are different. Medication was a last resort for us, and here we are.

 

We don't tell anyone other than medical and school staff (speech therapy for severe stutter caused by anxiety) that my ds is on medication. Not from shame, just b/c there's no need. No one could tell that he needed it before or after he started taking it. We don't want our ds defined by his medication or his need to take it. We want him to be defined by who he is, and that package includes the medication at this point. Anyone we did tell would be absolutely shocked and undoubtedly unbelieving that my ds actually needs medication.

 

Not only do we not announce that our kid is on medication, but we also don't share his behaviors that led us to this point. My ds would be absolutely embarrassed if we did share his issues, so I would wonder a little if another family voluntarily shared their kids' struggles and medical solutions. My ds's situation is very serious to us, and I guess we don't consider it a topic of general conversation. It's not shameful, it's just private. Private in the same way that our other medical information is private.

Link to comment
Share on other sites

I agree that dietary changes can have a huge impact on those kinds of behaviors. Cutting out sugar from my son's diet dramatically reduced the frequency and length of his completely out of control meltdowns. It did nothing for combatting his anxieties, though. He still wouldn't go anywhere where any animals could be present, including our own backyard. Now, he will play outside, go into homes of people with cats, and even petted a puppy that was not moving at all, and held a tiny snake at a nature show.

Link to comment
Share on other sites

DS has never been medicated, but it has been strongly suggested to us over the years that we should medicate. DS was diagnosed with Asperger's Syndrome at age 7, but he also met the diagnostic criteria for ADHD, ODD, and Bipolar for many years. Life for him (and with him) was extremely difficult.

 

Instead of medication, we chose to try nutritional intervention (cleaning up his diet, eliminating various foods he's reactive to, and adding in supplements).

 

Prior to nutritional intervention, DS was extremely hyperactive (couldn't sit still for more than 2 seconds, constantly jumping on furniture, pacing from wall to wall, etc.), couldn't focus, had multiple meltdowns a day, was exceptionally oppositional (both to us as well as teachers, coaches, etc.), was physically and verbally aggressive both to family and even strangers, was physically destructive (constantly throwing and breaking things around the house), and couldn't get to sleep until after midnight most nights. Anytime we took him anywhere, we could count on having a major issue or a meltdown. Playdates always ended badly. Before we decided to homeschool, he attended preschool for one year at age 4 - and he was kicked out of three different preschools that year for behavior issues.

 

We started with diet changes 2.5 years ago (tested for food sensitivities and removed all his "reactive' foods - gluten, casein, soy, and 5 other foods - as well as HFCS, MSG, and all artificial colors, flavors, and preservatives). We started to see a different kid within a week. A month or so later, we added in various supplements - Omega-3's, a good multi-vitamin, and so on. He's made tremendous progress. With nutritional intervention he is much calmer, he can sit still and do his work (even when I'm not in the room, which is huge for us), meltdowns now happen once a month instead of 6 times a day, he is now cooperative and pleasant most of the time, his aggression is almost gone (only comes out after extreme frustration now and only happens at home instead of in public), and he now has a normal healthy sleep schedule. He still has the social difficulties of Asperger's, but his extreme behaviors are now mostly gone. We had a playdate with a homeschool friend yesterday and the boys had a great time together. HUGE progress. :)

 

My DS needed SOME kind of intervention. If nutritional intervention hadn't worked for him, we would have considered medication. Because life "as is" was not sustainable for him or us.

Link to comment
Share on other sites

I was a medicated child that didn't need to be medicated, so I'm coming at this from that POV. I was put on ADD meds when they were reaching their height of popularity in the early 80's. My mother trusted the doctors and the teachers, and patiently switched me from med to med when each one didn't work. Eventually it was discovered that I was pretty high on the gifted spectrum, I was pulled from regular classes, and things got better. My mom and dad also had to learn to cope with me, I think.

 

My youngest is just like me. My in-laws were constantly pushing us to look into medication with him when he was younger, but I refused and DH backed me. The similarities are uncanny -- extreme frustration and tantrums, stubborn refusal and defiance, distracted easily, bursts of energy. I knew as soon as his verbal and motor skills caught up with his brain he would improve, just like me. I knew he could learn better ways to handle his frustration, just like me. I knew the distractions would fade once he found something new to learn, something challenging. I was right.

 

I don't fault my parents, they did their best and followed professional advice. They were at the end of their rope, they loved me, they wanted to make things better for both me and them. They also learned from those mistakes, and didn't make the same ones with my sister. I also know my experience isn't every family's experience. For some, medication is the only answer. If one of my children needed meds, I wouldn't fight it. I don't know other people's stories. I think fewer kids get bad diagnoses these days, or at least I hope so! I think medical professionals know more about these issues now than they did 25 years ago. Back then, I think it was treated like a cure-all and there was this idea of just hand out some meds and don't worry about the underlying issue. Now, most kids I know on meds see behavioral specialists, often go to some sort of therapy, and have other support beyond just the meds. Modern treatment goes beyond the old way, which was just medicating a kid into submission.

Link to comment
Share on other sites

Never mind- I didn't mean to insult anyone. You're right, I'm wrong.

 

I do hope that no one here casually recommends medication as the solution to a 4 yr old climbing around and not wanting to sit still during big sis's gymnastics practice-it was the fact that this mom seemed to be getting "Oh, yes, my son did that, and we put him on Celexa" from multiple people at the same time that really pushed me over the edge, after having no fewer than three similar conversations with different folks this week happen in groups of parents.

 

 

It's often next to impossible to maintain precision of language when discussing trends, especially when many in the conversation identify as a datapoint.

Link to comment
Share on other sites

Looks like I am coming very late to this party. I have a kid who at times seems to need intervention of some sort. I am trying various things but not medication. Things would have to be really bad before I'd introduce chemicals to modify behavior.

 

But this reminds me of a time when I was at the Little Gym and I'm pretty sure I made a whole family angry. I can't remember the details, but I was observing their three-year-old and several things made me suspect a vision issue in her. My whole family has various vision issues, including one of my adopted children, who benefited a lot from vision therapy. So I tend to notice these things at an earlier stage than most parents. I thought I was being helpful when I suggested a vision check. You would think I called their kid a baby gorilla or something. I should just keep my mouth shut at all costs.

Link to comment
Share on other sites

Looks like I am coming very late to this party. I have a kid who at times seems to need intervention of some sort. I am trying various things but not medication. Things would have to be really bad before I'd introduce chemicals to modify behavior.

 

But this reminds me of a time when I was at the Little Gym and I'm pretty sure I made a whole family angry. I can't remember the details, but I was observing their three-year-old and several things made me suspect a vision issue in her. My whole family has various vision issues, including one of my adopted children, who benefited a lot from vision therapy. So I tend to notice these things at an earlier stage than most parents. I thought I was being helpful when I suggested a vision check. You would think I called their kid a baby gorilla or something. I should just keep my mouth shut at all costs.

 

 

This reminds me of the time I told a mom that her infant wasn't strapped into her carry style carseat, yet she was being carried around.

 

I got a really nasty, "yeah, I know!" sneering, ugly voiced response. The mom put her down again and then the grandma came and picked up the baby and seat. She dumped the baby out and the baby landed on her face. It was awful. That poor baby was screaming as soon as she caught her breath.

 

I'm glad I said something tho'. I would have hated myself if I hadn't.

 

 

Link to comment
Share on other sites

Another thought related to another thread there is no shame in not having the perfect children any more. A few decades ago a child being medicated was urged to not say anything. There was a strong social stigma in mot being just like everyone else. So moms weren't casually sharing info on what worked for their kid.

 

And people are so pleased by what they find works for them they see how it could work for everyone so they share. A lot. For some people every one of my problems can be cured by either going gluten free, on a strict smoothie diet, with super supplement A or B depending on who it is recommending it, etc. the same can be seen in homeschooling. We've all talked to the new homeschooling convert who now thinks public school should be outlawed. So when medication works for their kid, they are eager to share in hope it may help someone else's kid.

Link to comment
Share on other sites

I think the issue is arm chair diagnosis and perscribed "cures" from people who see a child for a very minimal amount of the time NOT those who use needed medication or intervention for their own child.

 

I have had many people try and convince me that DS is ADHD because he is high energy. I am often to shocked to reply and miss an oppertunity for a good comeback. DS loves a challenging workout s a result of working out frequently and pushing himself physically he has more energy than same age children who are not nearly as active. If it wasn't for his internal desire to push himself physically he would need a wheel chair now.

 

Note: I am not a fan of pharmaceuticals and I hate that DS is on medications to try and slow a rare degenerative disease. I researched and researched and researched all my options and frankly, my son is going to die from the disease one way or another. There is NO cure. Not diet, not supplements not moving. Nothing. I do not want to hear parents of perfectly healthy children talk about how a pill will help my son.

Link to comment
Share on other sites

I think the issue is arm chair diagnosis and perscribed "cures" from people who see a child for a very minimal amount of the time NOT those who use needed medication or intervention for their own child.

 

I have had many people try and convince me that DS is ADHD because he is high energy. I am often to shocked to reply and miss an oppertunity for a good comeback. DS loves a challenging workout s a result of working out frequently and pushing himself physically he has more energy than same age children who are not nearly as active. If it wasn't for his internal desire to push himself physically he would need a wheel chair now.

 

Note: I am not a fan of pharmaceuticals and I hate that DS is on medications to try and slow a rare degenerative disease. I researched and researched and researched all my options and frankly, my son is going to die from the disease one way or another. There is NO cure. Not diet, not supplements not moving. Nothing. I do not want to hear parents of perfectly healthy children talk about how a pill will help my son.

 

:grouphug:

Link to comment
Share on other sites

I think the issue is arm chair diagnosis and perscribed "cures" from people who see a child for a very minimal amount of the time NOT those who use needed medication or intervention for their own child.

 

 

This. This is what I read from the original OP as well. I don't get why people are upset.

Link to comment
Share on other sites

One of my dc is on Zoloft for anxiety. You would be amazed if you knew him. He presents perfectly in public (usually). He is a fun, reserved, polite, rule following normal little boy in public. The only thing you might notice is his severe stutter if he talked to you for any length of time.

 

We made the decision to medicate carefully and thoughtfully. We don't tell anyone because they would have the same response as the OP.

 

 

 

If your open to it please look into a condition called "Pyroluria" it causes severe anxiety and its very treatable without drugs. Its detected with a simple urine test but most Dr's have never heard of it. Its caused by a blood disorder that strips zinc/B6 from the body, testing blood levels can come back normal because it creates a functional deficiency when a "pyrolle" binds to the zinc/B6 and then it can not enter the cells for use so while you can even have high levels of both in the blood your deficient because it can't get into the cells and is useless. The best article I have seen on it is http://naturalinsight.hubpages.com/hub/Pyroluria-A-Hidden-Disorder we went through pure hell for years due to this nasty disease before I ran across it online and got testing for everyone.

Link to comment
Share on other sites

I think the issue is arm chair diagnosis and perscribed "cures" from people who see a child for a very minimal amount of the time NOT those who use needed medication or intervention for their own child.

 

I have had many people try and convince me that DS is ADHD because he is high energy. I am often to shocked to reply and miss an oppertunity for a good comeback. DS loves a challenging workout s a result of working out frequently and pushing himself physically he has more energy than same age children who are not nearly as active. If it wasn't for his internal desire to push himself physically he would need a wheel chair now.

 

Note: I am not a fan of pharmaceuticals and I hate that DS is on medications to try and slow a rare degenerative disease. I researched and researched and researched all my options and frankly, my son is going to die from the disease one way or another. There is NO cure. Not diet, not supplements not moving. Nothing. I do not want to hear parents of perfectly healthy children talk about how a pill will help my son.

 

 

:grouphug: :grouphug:

Link to comment
Share on other sites

 

 

If your open to it please look into a condition called "Pyroluria" it causes severe anxiety and its very treatable without drugs. Its detected with a simple urine test but most Dr's have never heard of it. Its caused by a blood disorder that strips zinc/B6 from the body, testing blood levels can come back normal because it creates a functional deficiency when a "pyrolle" binds to the zinc/B6 and then it can not enter the cells for use so while you can even have high levels of both in the blood your deficient because it can't get into the cells and is useless. The best article I have seen on it is http://naturalinsigh...Hidden-Disorder we went through pure hell for years due to this nasty disease before I ran across it online and got testing for everyone.

 

 

WHOA. This is overwhelming. I have never heard of this. I am guessing most doctors wouldn't have the slightest clue how to test for this or treat it?

Link to comment
Share on other sites

 

WHOA. This is overwhelming. I have never heard of this. I am guessing most doctors wouldn't have the slightest clue how to test for this or treat it?

 

 

 

Sadly yes, NONE of our Dr's had heard of it. I paid the $70 out of pocket and went though Biocenter in KS for testing. My 12 yr old has now been CURED of Bipolar 1/ODD/ADHD/Primary Immune Deficiency and went from being a C,D,F student who couldn't remember what you read 3 sentences ago to an A/B student. I have a long history of major depression and anxiety, GONE:) There is an awesome resource on facebook https://www.facebook.com/groups/pyroluria/ the docs sections is packed with FAQ's enough to fill a book from a Dr who treats it:)

Link to comment
Share on other sites

 

 

Sadly yes, NONE of our Dr's had heard of it. I paid the $70 out of pocket and went though Biocenter in KS for testing. My 12 yr old has now been CURED of Bipolar 1/ODD/ADHD/Primary Immune Deficiency and went from being a C,D,F student who couldn't remember what you read 3 sentences ago to an A/B student. I have a long history of major depression and anxiety, GONE:) There is an awesome resource on facebook https://www.facebook...oups/pyroluria/ the docs sections is packed with FAQ's enough to fill a book from a Dr who treats it:)

 

messaged you...

Link to comment
Share on other sites

Sadly yes, NONE of our Dr's had heard of it. I paid the $70 out of pocket and went though Biocenter in KS for testing. My 12 yr old has now been CURED of Bipolar 1/ODD/ADHD/Primary Immune Deficiency and went from being a C,D,F student who couldn't remember what you read 3 sentences ago to an A/B student. I have a long history of major depression and anxiety, GONE:) There is an awesome resource on facebook https://www.facebook...oups/pyroluria/ the docs sections is packed with FAQ's enough to fill a book from a Dr who treats it:)

 

That is nothing short of a miracle. Really.

 

That article? Is freaking fascinating.

 

AND they remark on the work of Dr. Natasha Campbell-McBride and GAPS

Link to comment
Share on other sites

Nobody has ever said that to me thankfully. FWIW, at bumper bowling on Fridays (age range is 4 -8 with most of the kids being 7) the kids are like insane wild maniacs. They climb the ball return. They lay on the floor to watch the ball go down the lane. They throw balls into the seating area to see what will happen if they do. You name it. I wish I could take a tranquilizer to get through it. LOL And they ALL do it. It can't be that all the kids need drugs. And if they are all on drugs...well those drugs aren't doing much. LOL

 

So your kid is normal!

 

(This is not meant as a mean comment towards anyone who uses medications, needs medications, etc.)

 

Wow! I'm surprised parents let their kids do that, much less management.

Link to comment
Share on other sites

 

 

Sadly yes, NONE of our Dr's had heard of it. I paid the $70 out of pocket and went though Biocenter in KS for testing. My 12 yr old has now been CURED of Bipolar 1/ODD/ADHD/Primary Immune Deficiency and went from being a C,D,F student who couldn't remember what you read 3 sentences ago to an A/B student. I have a long history of major depression and anxiety, GONE:) There is an awesome resource on facebook https://www.facebook...oups/pyroluria/ the docs sections is packed with FAQ's enough to fill a book from a Dr who treats it:)

 

Wow, amazing stuff.

 

I will say that every time I hear of someone being cured of a condition that the traditional medical establishment just medicates, it comes from the alternative sector. I hear these stories all the time. The latest is from a Facebook friend who has cured her chronic migraines after several years.

Link to comment
Share on other sites

 

That is nothing short of a miracle. Really.

 

 

 

Not a miracle and its makes me mad as hell that we suffered so much for so many years and saw so many Drs and NONE ever suggested it. Our Pedi was against it when I decided to pull her off psych drugs, our psych (the kind who order drugs, can't remember what they are called, having a bad morning here) was at a loss since he still couldn't get her stable after a couple years of psych drugs and said its worth a try. EVERY. SINGLE. DR. we saw IMO should have been able to detect the markers but Dr's get virtually NO EDUCATION in nutrition, knowing what I know now I see the red flags that were ignored. After what we have been though and the sheer amount of recoveries from mental illness I have seen over the past 2-3 years that were caused by nutritional and diet issues and the people were just put on powerful drugs makes me ANGRY. No one should suffer due to a Dr's ignorance. Our lives were destroyed, I'm still trying to pick up the pieces and recover and we have a long road to go for me made even longer because no Dr's who treat this in the US that I am aware of take our insurance and we can't afford a good one so I'm left to research and self treat on my "good days" rather then pick up the phone and call a Dr for advice. Thankfully my kids don't have the complications I do, high copper and adrenal fatigue sucks big time.

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...