sheryl Posted November 30, 2012 Share Posted November 30, 2012 My 13 yo dd is now "officially" weaned from her neurological meds! She was on two medicines for about 5 1/2 years and started the weaning process this past mid-July. This morning she took her last dose!! Thanking God for His mighty work in her! Quote Link to comment Share on other sites More sharing options...
bettyandbob Posted November 30, 2012 Share Posted November 30, 2012 YAY! Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted November 30, 2012 Share Posted November 30, 2012 Wonderful, Sheryl! I remember you talking about that goal. Quote Link to comment Share on other sites More sharing options...
Jennifer in MI Posted November 30, 2012 Share Posted November 30, 2012 Awesome!!!! Quote Link to comment Share on other sites More sharing options...
sheryl Posted November 30, 2012 Author Share Posted November 30, 2012 Wonderful, Sheryl! I remember you talking about that goal. Thanks, Betty. And yes, Jean, you are right! I did send up several threads on that! Sweet of you to remember. Quote Link to comment Share on other sites More sharing options...
sheryl Posted November 30, 2012 Author Share Posted November 30, 2012 Wonderful, Sheryl! I remember you talking about that goal. Thanks, Betty. And yes, Jean, you are right! I did send up several threads on that! Sweet of you to remember. Quote Link to comment Share on other sites More sharing options...
twinmami01 Posted November 30, 2012 Share Posted November 30, 2012 That's great! We weaned my 11 year old twins off their neuro meds about 2 years ago. It was scary at first but I'm glad we did. They were both on meds for close to 8 years. I'm praying all goes well for your DD. Quote Link to comment Share on other sites More sharing options...
sheryl Posted November 30, 2012 Author Share Posted November 30, 2012 Awesome!!!! Thanks, Jennifer! Good to see you again - it's been awhile. How are your trip DL? Was it Sept 2011? Quote Link to comment Share on other sites More sharing options...
sheryl Posted November 30, 2012 Author Share Posted November 30, 2012 Awesome!!!! Thanks, Jennifer! Good to see you again - it's been awhile. How are your trip DL? Was it Sept 2011? Quote Link to comment Share on other sites More sharing options...
sheryl Posted November 30, 2012 Author Share Posted November 30, 2012 That's great! We weaned my 11 year old twins off their neuro meds about 2 years ago. It was scary at first but I'm glad we did. They were both on meds for close to 8 years. I'm praying all goes well for your DD. Thanks so much and for sharing. Bless your heart, they were toddlers on meds? Quote Link to comment Share on other sites More sharing options...
twinmami01 Posted November 30, 2012 Share Posted November 30, 2012 Thanks so much and for sharing. Bless your heart, they were toddlers on meds? Yes, they were put on meds at about 2 due to seizures. Quote Link to comment Share on other sites More sharing options...
sheryl Posted November 30, 2012 Author Share Posted November 30, 2012 Yes, they were put on meds at about 2 due to seizures. Glad all is going well!!! My dd's dr. is very confident she's outgrown too. Quote Link to comment Share on other sites More sharing options...
Whereneverever Posted November 30, 2012 Share Posted November 30, 2012 Wow, great news! I hope someday to make a similar post. Quote Link to comment Share on other sites More sharing options...
Impish Posted November 30, 2012 Share Posted November 30, 2012 :party: Quote Link to comment Share on other sites More sharing options...
Cindy in FL. Posted November 30, 2012 Share Posted November 30, 2012 Great news! Quote Link to comment Share on other sites More sharing options...
besroma Posted November 30, 2012 Share Posted November 30, 2012 Terrific news!!! Quote Link to comment Share on other sites More sharing options...
sheryl Posted November 30, 2012 Author Share Posted November 30, 2012 Theretohere, Imp, Cindy/Fl, Besroma - thanks all!!! Quote Link to comment Share on other sites More sharing options...
FaithManor Posted November 30, 2012 Share Posted November 30, 2012 Woot! :hurray: :hurray: :hurray: Faith Quote Link to comment Share on other sites More sharing options...
Ali in OR Posted November 30, 2012 Share Posted November 30, 2012 That will never be us (multiple seizure meds since infancy, seizures still not completely controlled), but I'm very happy for you and your dd. Congrats! I pray that you'll never worry or think about such things again--may life be completely boring and normal for you! Quote Link to comment Share on other sites More sharing options...
Lizzie in Ma Posted November 30, 2012 Share Posted November 30, 2012 Hurray!!!! Quote Link to comment Share on other sites More sharing options...
amy g. Posted November 30, 2012 Share Posted November 30, 2012 My 18 year old just went off her sleep disorder medicine. She started getting lip blisters for it and she found out that it contains gluten so she decided she wanted to try life without it. So far so good. I hope she never needs medication again. Quote Link to comment Share on other sites More sharing options...
sheryl Posted November 30, 2012 Author Share Posted November 30, 2012 Faith, Ali, Lizzie and Amy, Thanks so much! Ali, I do so completely understand and my heart sends a hug your way. While we've made this progress, there are still other hurdles to jump over. My dh and I formally requested an eeg which will be this coming Tuesday. The dr. did not see the need to order one. Our insurance will cover it and we want to see how well she does "off" of meds. We're expecting this eeg to be normal as the others have been for the last 3 years, but the other ones were normal on meds. We'll have to see how she does completely off of meds. Her nurse said that the first 6 months is critical - that will be May/June when my dd turns 14. Then the nurse said the 2nd six months is critical, but not as much. She said that she's known a case where a girl was weaned and 2 years later she seized. So, there will always be a "chance" that they could return. Based on her age and "type" the doctors are confident she's outgrown them. But, we'll always have to take precautions: no swimming alone, no skydiving (that's good with me), probably no scuba diving (good with me again), according to her nurse. There may be other things too. I've realized that God is there to help us through it, so if she seizes again, I'll be able to handle it better. Thanks again everyone!!!!!! :) Quote Link to comment Share on other sites More sharing options...
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