amo_mea_filiis. Posted October 19, 2012 Share Posted October 19, 2012 Ds had his big appointment with the autism research center. After 5 hours of diagnostics, he does not qualify for the study on eith end. He does not have any type of autism or PDD, but he's very far from neurotypical. They said that he is very complex, and i will be getting a call about his official results and they referred the social worker to us (who will supposedly track down resources from 3 hours away!). We've been through this before. When he went to diagnostic last year, the neurologist was pretty sure he did not have autism. But then the child psychiatrist 6 months later said he absolutely did have autism. The biggest problem we have run into is that most Drs are only concerned with autism. There are other disorders out there! The research center left us with treating the symptoms and brings us back to multiple labels to try and explain him. He's hyper and impulsive when out of his normal environment, absolutely has an expressive language disorder, can be aggressive, little tolerance for frustration, minimal to no problem solving skills, poor fine motor skills, probably learning disabilities, low lying cerebellar tonsils, asthma, sensory problems, poor motor planning, poor oral motor planning, poor language processing, and more i am probably forgetting. We can get a diagnosis ruled out, but no one is will to dig deeper into his brain. The research center stringly suggested a neuropsych eval. He has an appointment in a little over a week with a neuropsych. The problem is that they do not do the qEEG. I do not want to leave the results appt with more questions like we do with every single other Dr. I'm tired of seeing different "experts" and sometimes being accused of looking for problems, or sometimes having bs diagnoses slapped on. Of course one can look at ds and say he's ADHD and defiant. That's easy. But defiance is not the only reason he isnt reading well. ADHD does not explain why is still unable to write in a line. I go back and forth with keeping this neuropsych appt. On one hand, i'd like to get it done and over with and move on with life and teaching. On the other hand, are they going to ignore, or roll their eyes at my specific questions? Not a single Dr he's ever seen has directly answered my questions. Or worse, they look at me like i'm crazy when i ask about something specific i'd read that fits him. My only obsession with the accurate diagnosis is to give me a picture of what needs to be treated! I dont care what it is, and i most certainly do not want it to be there, but it is there, i need to know what it is, and i need a plan to help him. I went off on a vent, sorry. If you have a complex kid, or even not so complex, would you go ahead with the neuropsych, or keep looking for neuropsych with qEEG? Quote Link to comment Share on other sites More sharing options...
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