Jean in Newcastle Posted September 5, 2012 Share Posted September 5, 2012 Whew! After a two hour exam, we now know that she has a very rare growth on the blood vessels in her retina. It is benign and is much like a strawberry birthmark only in her eye. It is not in an area that affects her vision. They will be monitoring it. I pressed them a bit and they admitted that if it changes, they actually have no idea what to do for it but she would be passed on to even more specialized retina specialists. It has probably been there since birth but was not seen because at younger ages her eyes were not dilated and looked at this closely. It actually made the doctors quite excited because of it's rarity and it's "impressiveness". They were making comments like "way cool" and "I need a picture for my journal article!" She will have another appointment with these same specialists in 4 months and they will see if there are any changes. Most of the appointment, while long and involving a bunch of sophisticated machines with cameras and bright lights, was painless. There was one slightly painful part that did cause a few tears but my dd was a trouper. We have now apologized to the cat for blaming it for toxoplasmosis.;) Quote Link to comment Share on other sites More sharing options...
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