Update Headed to the Allergist-prayers please

[coffeefreak]

DD has been sick for a long time. You can read the story here, but I thought I'd post an update/prayer request. First, a little rant...

 

I talked to her Pediatrician on Monday night and was less than pleased. She did not have the results at that time (I found out later that she was looking at the wrong screen), but she said to me that she REALLY needs me to make sure she gets the allergist's report so this doesn't happen again. I had talked with her nurse earlier and the nurse had told me that they had the allergist's notes from Friday, so I was a little confused. I said, "I thought Dr X was actually very good about getting you her reports, we have all the reports from 3 years ago, right?" To which the Dr Replied, "Well, I don't have Gillian's paper chart in front of me, and if Dr X gets us the new results, they'll actually be in Gillian's computer chart." and then it hit me, this whole time NO ONE WAS PULLING MY DAUGHTER'S PAPER CHART AND LOOKING AT HER HISTORY!!!!!:cursing: This hospital and their Dr's went to a computer system last summer and it's been nothing but frustrating. I do see the benefit, but I was told, as a parent that all the paper charts were being scanned into the system and that's why the clinic shut down last year for two weeks. Now I find out, it never happened for my youngest and it's like she has no medical history... AT ALL! I now have a 3 ring binder, full of printouts, notes, notebook paper to take notes, and DD's blood test results. I've decided I will now insist on all lab results and reports. I know I'm partly to blame here, but the Dr had all the info in her history, she just wasn't looking.

 

So, the good news is, we eliminated corn as of Tuesday, and saw a HUGE improvement. Like new kid overnight! No tummy aches at all for the first time in a year!!!!:party: We'll be going in to do the scratch tests, discuss the plan (which I already know will involve no corn, wheat or soy), and discuss the follow up, which I will be going to :blushing:

 

Thanks for listening and all the :grouphug:! You have no idea how much I appreciate it.

Blessings!

Dorinda

[Jean in Newcastle]

:grouphug: I hope that you get some good help from the allergist.

[macpuffins]

I now have a 3 ring binder, full of printouts, notes, notebook paper to take notes, and DD's blood test results. I've decided I will now insist on all lab results and reports. I know I'm partly to blame here, but the Dr had all the info in her history, she just wasn't looking.

 

I've had to do this for myself too, it isn't something we think of, especially in this day & age where they SHOULD be able to have better access, not worse!

 

So, the good news is, we eliminated corn as of Tuesday, and saw a HUGE improvement. Like new kid overnight! No tummy aches at all for the first time in a year!!!!:party: We'll be going in to do the scratch tests, discuss the plan (which I already know will involve no corn, wheat or soy), and discuss the follow up, which I will be going to :blushing:

 

Thanks for listening and all the :grouphug:! You have no idea how much I appreciate it.

Blessings!

Dorinda

 

corn too? ugh!

there are still OOOOOOODLES of things you can do to keep her diet varied & fun, but it does mean that some of the traditional gluten-free pre-made stuff won't be on your plate b/c a LOT of it has corn. you will likely have to determine if it is the protein or the sugar that is the corn problem - one makes the grain an issue, other makes high fructose corn syrup an issue. but that's a battle for another month, right now she's better than she's been in ages, and that is ALL that matters.

 

:grouphug:

you are her best advocate, and now will be her best security detail. YAY Mom!

 

btw - glitches along the way are a part of the learning curve, so DO NOT get yer knickers twisted if something doesn't go right the first time. if she is - overall - getting better, then it is going right. if you have questions, The Hive is here for you :)