Pamela H in Texas Posted July 1, 2008 Share Posted July 1, 2008 Seems as if she's fallen out of remission (it's been almost 8 months <sigh>). Doc is still monitoring but we're both stressed. It didn't help that I couldn't get through at doc's today to let him know that she's spilling even MORE protein. I seriously think something is wrong with the phones at Children's or something. My mom is coming Wednesday and we're hoping a hospital visit isn't part of her "vacation" here <sigh> In better news, dd is in some good spirits. She asked if she could take the wii with her to the hospital if she has to go back. Quote Link to comment Share on other sites More sharing options...
Remudamom Posted July 1, 2008 Share Posted July 1, 2008 So sorry, praying for your dd. Quote Link to comment Share on other sites More sharing options...
astrid Posted July 1, 2008 Share Posted July 1, 2008 :grouphug:So sorry.....that's got to be so tough for all of you. Sending positive thoughts and healing energies your way! Astrid Quote Link to comment Share on other sites More sharing options...
Crissy Posted July 1, 2008 Share Posted July 1, 2008 I'll be praying, Pamela!:grouphug: Quote Link to comment Share on other sites More sharing options...
nakitty Posted July 1, 2008 Share Posted July 1, 2008 Absolutely! Quote Link to comment Share on other sites More sharing options...
Chris in CA Posted July 1, 2008 Share Posted July 1, 2008 Praying here as well Quote Link to comment Share on other sites More sharing options...
newbie Posted July 1, 2008 Share Posted July 1, 2008 Praying here too. Blessings with you all, Jet:grouphug: Quote Link to comment Share on other sites More sharing options...
Quiver0f10 Posted July 1, 2008 Share Posted July 1, 2008 So sorry :grouphug: I hope she is well soon. Quote Link to comment Share on other sites More sharing options...
Lolly Posted July 1, 2008 Share Posted July 1, 2008 So sorry. Praying for you and dd. Hope you find answers soon. Quote Link to comment Share on other sites More sharing options...
elegantlion Posted July 1, 2008 Share Posted July 1, 2008 Prayers and :grouphug: here as well. Quote Link to comment Share on other sites More sharing options...
clarkacademy Posted July 1, 2008 Share Posted July 1, 2008 Sending alot of prayers your way and hopes the visit with grandma goes very well. Quote Link to comment Share on other sites More sharing options...
Kelli in TN Posted July 1, 2008 Share Posted July 1, 2008 Oh, Pamela. That hurts my heart. :grouphug: Quote Link to comment Share on other sites More sharing options...
Jackie in AR Posted July 1, 2008 Share Posted July 1, 2008 I'm sorry, Pamela. ((hugs)) Quote Link to comment Share on other sites More sharing options...
WTMindy Posted July 1, 2008 Share Posted July 1, 2008 Seems as if she's fallen out of remission (it's been almost 8 months <sigh>). Doc is still monitoring but we're both stressed. It didn't help that I couldn't get through at doc's today to let him know that she's spilling even MORE protein. I seriously think something is wrong with the phones at Children's or something. My mom is coming Wednesday and we're hoping a hospital visit isn't part of her "vacation" here <sigh> In better news, dd is in some good spirits. She asked if she could take the wii with her to the hospital if she has to go back. Sending you all my good thoughts and prayers!!:grouphug: Quote Link to comment Share on other sites More sharing options...
Damselfly Posted July 1, 2008 Share Posted July 1, 2008 That is heartbreaking to hear. It sounds like you're keeping a positive attitude which is probably the best medicine around. I'll keep your daughter in my prayers. Quote Link to comment Share on other sites More sharing options...
crazycoffeechic Posted July 1, 2008 Share Posted July 1, 2008 Praying here too. Quote Link to comment Share on other sites More sharing options...
Pamela H in Texas Posted July 1, 2008 Author Share Posted July 1, 2008 Thanks y'all. I have a call into doc AGAIN. Hopefully they call SOON. We're all hoping no hosp visit while gma is here. Quote Link to comment Share on other sites More sharing options...
Pamela H in Texas Posted July 1, 2008 Author Share Posted July 1, 2008 Got ahold of doc office. They didn't have an appt ready til July 25th! I was unsure that was wise but took it and then had the scheduling person transfer me to our nurse. Nurse said to test every other day and that doc doesn't want to get overly worried until we hit 100+ (she's at 30+). So it's a wait and see kind of thing. Seems like it's going in the wrong direction, but doc knows where we're at and we can test regularly and it'll work out somehow. Quote Link to comment Share on other sites More sharing options...
Scarlett Posted July 1, 2008 Share Posted July 1, 2008 Pamela---so sorry. I have missed the details on your dd's illness...can you fill me in? PM me if you prefer, or others might like to hear too. Quote Link to comment Share on other sites More sharing options...
Tammyla Posted July 1, 2008 Share Posted July 1, 2008 :grouphug:Sending hugs and prayers.:grouphug: Quote Link to comment Share on other sites More sharing options...
Mom2GirlsTX Posted July 8, 2008 Share Posted July 8, 2008 Oh Pamela, I just now saw this, I can't believe I missed this. I am so very sorry. How are her levels doing now? Has there been any improvement? Quote Link to comment Share on other sites More sharing options...
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