TravelingChris Posted March 20, 2012 Share Posted March 20, 2012 My 18 yo dd is still not at all better. Today she fell out of the wheelchair and her brother found her in an odd position on the floor- looking like she was a Moslem praying to Allah- but that was only how she ended up on the floor. SHe is supposed to be registering for fall semester this Friday. Friday is when she may find out what is wrong with her (or may not). SHe has a visit with her neurologist to go over all the tests he has ordered. Since she isn't getting better and can't even reliably stay in a wheelchair, I can't see her going back to her dorm and her college experience this semester which ends in about six weeks. She can't drive, can't walk reliably, has to have either myself or her sister monitor her in the shower so she doesn't drown or hurt herself, etc. It is all just so hard for her and for the rest of the family. We don't know what this will mean for her scholarship. We don't know if the scholarship can be transferred to the local campus, if it comes to that. We just don't know. Quote Link to comment Share on other sites More sharing options...
JennW in SoCal Posted March 20, 2012 Share Posted March 20, 2012 My 18 yo dd is still not at all better. Today she fell out of the wheelchair and her brother found her in an odd position on the floor- looking like she was a Moslem praying to Allah- but that was only how she ended up on the floor. SHe is supposed to be registering for fall semester this Friday. Friday is when she may find out what is wrong with her (or may not). SHe has a visit with her neurologist to go over all the tests he has ordered. Since she isn't getting better and can't even reliably stay in a wheelchair, I can't see her going back to her dorm and her college experience this semester which ends in about six weeks. She can't drive, can't walk reliably, has to have either myself or her sister monitor her in the shower so she doesn't drown or hurt herself, etc. It is all just so hard for her and for the rest of the family. We don't know what this will mean for her scholarship. We don't know if the scholarship can be transferred to the local campus, if it comes to that. We just don't know. :grouphug::grouphug::grouphug: I am so sorry for both of you in going through this. Hope Friday brings some answers and that everyone's prayers are lifting you up in the meantime. Please keep your WTM family posted! Quote Link to comment Share on other sites More sharing options...
TranquilMind Posted March 20, 2012 Share Posted March 20, 2012 My 18 yo dd is still not at all better. Today she fell out of the wheelchair and her brother found her in an odd position on the floor- looking like she was a Moslem praying to Allah- but that was only how she ended up on the floor. SHe is supposed to be registering for fall semester this Friday. Friday is when she may find out what is wrong with her (or may not). SHe has a visit with her neurologist to go over all the tests he has ordered. Since she isn't getting better and can't even reliably stay in a wheelchair, I can't see her going back to her dorm and her college experience this semester which ends in about six weeks. She can't drive, can't walk reliably, has to have either myself or her sister monitor her in the shower so she doesn't drown or hurt herself, etc. It is all just so hard for her and for the rest of the family. We don't know what this will mean for her scholarship. We don't know if the scholarship can be transferred to the local campus, if it comes to that. We just don't know. Wow. How horrible. i hope they find answers and fix this! Quote Link to comment Share on other sites More sharing options...
Brenda in MA Posted March 20, 2012 Share Posted March 20, 2012 Oh Chris..... This is all so heart-breaking.... Is there any way your dd might be able to take incompletes for her courses and finish them from home over the summer? This is a question I would at least ask of the school. Also -- is there any harm in having her register now for the fall in hopes that she might be able to heal over the summer. She could always drop the courses later if it turns out that she can't return. We'll keep all of you in our prayers. Brenda Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted March 20, 2012 Share Posted March 20, 2012 1. They make chest restraints and seat belts for wheelchairs. I highly recommend them. Get her neuro to write for a chair with the harness system. 2. Most universities have a "hold" program for scholarships for medical leave...it just requires documentation....it's something to look into. Quote Link to comment Share on other sites More sharing options...
UmMusa Posted March 20, 2012 Share Posted March 20, 2012 I pray her health improves. I'm sure this is so hard for you... take deep breaths and keep a good eye on her. Drop whatever you have to in order to focus on the most important needs right now. Quote Link to comment Share on other sites More sharing options...
FloridaLisa Posted March 20, 2012 Share Posted March 20, 2012 Wow, Chris. I'm on and off the boards this year and I didn't realize your dd and your family was suffering so terribly. I know your mama heart is breaking. Prayers for you all, Lisa Quote Link to comment Share on other sites More sharing options...
Barbara H Posted March 20, 2012 Share Posted March 20, 2012 That is scary. The college disability office should be able easily to work with you on medical leave and getting everything set up. I wouldn't not let that part weigh on you too heavily - they are usually really caring and want to help out. Quote Link to comment Share on other sites More sharing options...
Harriet Vane Posted March 20, 2012 Share Posted March 20, 2012 I'm so very, very sorry. :grouphug: I recently re-read Joni Eareckson's autobiography and in it she mentions a young woman who is struck with a rare, fast-progressing form of MS. I thought I should mention it. :grouphug: Quote Link to comment Share on other sites More sharing options...
Kathy in Richmond Posted March 21, 2012 Share Posted March 21, 2012 :grouphug::grouphug: So very sorry for you and your daughter. I'm praying that her doctors find the cause and that she starts healing soon. I'm betting that the school will have no problems holding her scholarship for her in the future when she's better. Quote Link to comment Share on other sites More sharing options...
Leonor Posted March 21, 2012 Share Posted March 21, 2012 I'm so sorry. I've been on and off the boards. I had been praying for her. Will continue to pray for her and your family. :grouphug: Quote Link to comment Share on other sites More sharing options...
Kareni Posted March 21, 2012 Share Posted March 21, 2012 I hope that Friday will bring some much needed answers and that your daughter's college will be supportive. Sending positive thoughts for you all. Regards, Kareni Quote Link to comment Share on other sites More sharing options...
Jane in NC Posted March 21, 2012 Share Posted March 21, 2012 I hope that your daughter's college is understanding regarding a medical withdrawal and leave. More importantly, I send your daughter best wishes for answers and recovery! :grouphug: Jane Quote Link to comment Share on other sites More sharing options...
Merry Posted March 21, 2012 Share Posted March 21, 2012 and I hope you will know what's wrong by Friday and that it'll be fixed quickly. Quote Link to comment Share on other sites More sharing options...
readinmom Posted March 21, 2012 Share Posted March 21, 2012 :grouphug: Quote Link to comment Share on other sites More sharing options...
Pod's mum Posted March 21, 2012 Share Posted March 21, 2012 Dear Christina, I was trying to study externally in Australia while caring for a chronically sick child. Once I got brave enough to go and ask for extensions as needed, they were provided with compassion and understanding. They were willing and able to make exceptions when I let them know what was happening. I was even able to withdraw, without academic penalty, during the final week of a subject following another long hospitalisation. I eventually stopped trying to study and just concentrated on caring for and enjoying my girl/s. Health was and is more important. Priorities change. If you find someone not helpful, go higher. Those with more power can be less bound by regulations and none of you need this hanging over you too. Hang in there. It is scary and heartbreaking. When you can take no more, you discover you just have to. Again and again. My younger daughter feels special that she was able to help care for her big sister as she got sicker. The older daughter however, had to see it as a gift, letting her little sister help her. At first this had been hard for her until she saw it like that. With compassion, Tracey Quote Link to comment Share on other sites More sharing options...
delaney Posted March 21, 2012 Share Posted March 21, 2012 :grouphug: No advice or words, just hugs Quote Link to comment Share on other sites More sharing options...
Mommyfaithe Posted March 21, 2012 Share Posted March 21, 2012 My 18 yo dd is still not at all better. Today she fell out of the wheelchair and her brother found her in an odd position on the floor- looking like she was a Moslem praying to Allah- but that was only how she ended up on the floor. SHe is supposed to be registering for fall semester this Friday. Friday is when she may find out what is wrong with her (or may not). SHe has a visit with her neurologist to go over all the tests he has ordered. Since she isn't getting better and can't even reliably stay in a wheelchair, I can't see her going back to her dorm and her college experience this semester which ends in about six weeks. She can't drive, can't walk reliably, has to have either myself or her sister monitor her in the shower so she doesn't drown or hurt herself, etc. It is all just so hard for her and for the rest of the family. We don't know what this will mean for her scholarship. We don't know if the scholarship can be transferred to the local campus, if it comes to that. We just don't know. :grouphug::grouphug: I am so sorry. Please, has she been checked for neuro-Lyme??? I know it is a long shot, but if the neuro finds nothing wrong, don't dismiss Lyme from causing these types of symptoms. My GF could not walk for weeks, and ds was incapacitated for almost 5 months. I know others with similar issues from Lyme. It is worth a look, especially in you live anywhere with small furry animals running around, not just deer. I am praying for your family... :grouphug: Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted March 21, 2012 Author Share Posted March 21, 2012 Yes, I think that is one of the tests (Lyme) that had to go to another lab and that is why we got a neurologist appointment on Friday (to go over all the tests and figure out what to do next). She also is starting PT on Friday. Quote Link to comment Share on other sites More sharing options...
Brigid in NC Posted March 21, 2012 Share Posted March 21, 2012 :grouphug: I hope Friday brings helpful information for your family. :grouphug: Quote Link to comment Share on other sites More sharing options...
Nan in Mass Posted March 21, 2012 Share Posted March 21, 2012 Oh Chris! I am so sorry! Hugs and more hugs. I was going to mention lymes, too, but it looks like you are checking for that. Best wishes for an accommodating university and a speedy diagnosis and recovery. Nan Quote Link to comment Share on other sites More sharing options...
justamouse Posted March 21, 2012 Share Posted March 21, 2012 :grouphug::grouphug::grouphug: I hope and pray you get some answers. This is horrible and my heart breaks for you all. Quote Link to comment Share on other sites More sharing options...
Mom25girls Posted March 21, 2012 Share Posted March 21, 2012 I've been reading and quietly following your daughters trials this year. I'm so very sorry. Just wanted you to know that I've been praying. :grouphug: Quote Link to comment Share on other sites More sharing options...
Moira in MA Posted March 21, 2012 Share Posted March 21, 2012 So sorry to hear of your dd's continuing health problems. I hope you get a diagnosis soon. Hope her application for medical leave goes smoothly. Prayers for a swift recovery. ~Moira Quote Link to comment Share on other sites More sharing options...
KnitWit Posted March 21, 2012 Share Posted March 21, 2012 :grouphug::grouphug: Oh, I am so very sorry! I will say a prayer for your family. Quote Link to comment Share on other sites More sharing options...
mamajudy Posted March 22, 2012 Share Posted March 22, 2012 :grouphug: I'm so sorry you are going through this. I pray that you get some answers soon, concerning your dd's medical problem as well as her college/scholarship status. :grouphug: Quote Link to comment Share on other sites More sharing options...
Miss Marple Posted March 22, 2012 Share Posted March 22, 2012 I'm so sorry! I hope you get the news soon so you can make plans. I hope it's good news and this is a temporary condition. I cannot imagine the stress you all are under. :grouphug: Quote Link to comment Share on other sites More sharing options...
Lizzie in Ma Posted March 22, 2012 Share Posted March 22, 2012 :grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
creekland Posted March 22, 2012 Share Posted March 22, 2012 :grouphug: Many prayers from here. I hope tomorrow brings some answers with a good plan for getting things fixed. I fully suspect the college will work with her/you. Take care. :grouphug: Quote Link to comment Share on other sites More sharing options...
Teachin'Mine Posted March 22, 2012 Share Posted March 22, 2012 :grouphug: I'm so sorry. If she's on any medications at all, I would google them and search for any possible side effect of a drop in blood pressure - even if it's rare. I'm praying you get some good answers soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
Twigs Posted March 22, 2012 Share Posted March 22, 2012 :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
TravelingChris Posted March 23, 2012 Author Share Posted March 23, 2012 So we know she doesn't have a brain tumor or anything neurological. Next stops will be rheumatologist and immunologist. Her regular doctor also suggested the Mayo clinic or Cleaveland Clinic or someplace like that. I will have to look into this. She has one teacher who will definitely work with her to finish the semester. SHe is waiting on the others. She can't be at school but she could do work at home or locally here. On Monday, we will see about her summer session here. She can't get her major here so it isn't a long term solution (she wants to major in Economics) but she could do things like Spanish and Calculus here. Quote Link to comment Share on other sites More sharing options...
Jane in NC Posted March 23, 2012 Share Posted March 23, 2012 So we know she doesn't have a brain tumor or anything neurological. Next stops will be rheumatologist and immunologist. Her regular doctor also suggested the Mayo clinic or Cleaveland Clinic or someplace like that. I will have to look into this. She has one teacher who will definitely work with her to finish the semester. SHe is waiting on the others. She can't be at school but she could do work at home or locally here. On Monday, we will see about her summer session here. She can't get her major here so it isn't a long term solution (she wants to major in Economics) but she could do things like Spanish and Calculus here. Well at least a few possibilities have been eliminated. I continue to send you and your daughter good thoughts for a quick resolution! Jane P.S. It really is OK if she takes the summer off. Gosh, I admire students who are driven, but she may need a break! Quote Link to comment Share on other sites More sharing options...
Hoggirl Posted March 23, 2012 Share Posted March 23, 2012 :grouphug::grouphug: and prayers. The not knowing is just. so. hard. I pray that they find an answer soon and that she can receive the accommodations she needs. Quote Link to comment Share on other sites More sharing options...
creekland Posted March 24, 2012 Share Posted March 24, 2012 Glad they eliminated a couple of nasty possibilities. Here's hoping for answers and better health soon. :grouphug: Quote Link to comment Share on other sites More sharing options...
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