Medical Mystery: Diagnose this child

[Whereneverever]

And here is the recent list of things they've ruled out :

 

Tyson's DX that has been ruled out....Kawasaki Disease; Flu; RSV; Mono;Merca; Fifths; Strep; UTI; No brain swelling. Rectal Swab was negative; Chest X Ray Clear ; Measles, Mumps and Stevens Johnson Syndrome all ruled out. Roseola ruled out...All blood work shows " a perfect picture of health" No bacteria in the urine. Scarlet fever ruled out. ...he still has the high fever, rash that is worsening, increased heart rate; CT scan showed Sinus infection; swollen lymp nodes; lethargic, but so restless he cannot sleep. poor appetite, diarrhea.

 

He's been having seizures.

 

I think they need to demand to be transferred to a children's hospital or one with a big infectious disease clinic.

[swellmomma]

Rocky Mountain spotted fever

 

It might be rare given the time of year but maybe?

[Peaceful Isle]

If he is not getting better, and the doctors are clueless, he really needs to go to a better hospital!

 

:( Poor baby!!! Praying for him right now! :grouphug:

[besroma]

I hope they can transfer him to a better hospital, and soon!

[KungFuPanda]

He has been transferred to a bigger Children's hospital, but as of this evening they're still stumped. He may transfer to Pittsburg next.

Edited March 6, 2012 by KungFuPanda

[Amber in AUS]

Poor darling. Glad he's been transferred. Really hope they can get some answers soon.

[Amber in AUS]

Just showed DH, he said what about meningococcal? There was a health campaign here a few years ago after several children died from it.

[TheReader]

Rocky Mountain spotted fever

 

It might be rare given the time of year but maybe?

 

Yes, it really does look like/sound like it to me. A friend's son just recently had it and this is very close to identical to how it presented.

 

Praying for this boy.

[Mom0012]

Is he still at the original hospital? Your previous posts had made me a bit leary of trusting what they rule out. If they are at a bigger hospital with more experienced doctors, then my opinion would be different.

 

Yes, if the hospital he is in can't figure it out, he needs to be moved, IMO. My niece spent a week in a hospital that didn't know what was wrong with her. Thankfully, there was a nurse that continued to urge my sister to have her moved. Once she was in the new hospital, she was diagnosed within a day with a life-threatening condition and had surgery right away.

 

Lisa

[Mom0012]

He has been transferred to a bigger Children's hospital, but as of this evening they're still stumped. He may transfer to Pittsburg next.

 

Oh, I am glad to see this. I do hope they will figure it out soon. Poor baby!

 

Lisa

[KungFuPanda]

As of this morning, the rash is clearing and the baby is feeling better. No dfinitive diagnosis yet. I have passed on all of your theories to the family. They are grateful for the research help and the prayers. The grandma is making a list of all the states that began prayer chains for Tyson :-). Knowing her, she'll probably plot it on a map and frame it for his room. Spirits are up because this is the first improvement they've seen.

 

If you want to list your state/country, I'll pass it on. I'm not sure what displays on the screen /siggy is necessarily accurate.

[4everHis]

As of this morning, the rash is clearing and the baby is feeling better. No dfinitive diagnosis yet. I have passed on all of your theories to the family. They are grateful for the research help and the prayers. The grandma is making a list of all the states that began prayer chains for Tyson :-). Knowing her, she'll probably plot it on a map and frame it for his room. Spirits are up because this is the first improvement they've seen.

 

If you want to list your state/country, I'll pass it on. I'm not sure what displays on the screen /siggy is necessarily accurate.

 

Thank God! That poor baby. Praying he continues to get better and I'm sure they'd still like a diagnosis.

 

Praying for him in the Thumb of Michigan.

[TravelingChris]

Praying for Tyson in Northern Alabama.

[swellmomma]

Praying for him here in Alberta Canada. I am so relieved to hear the rash is starting to clear up.

[TXBeth]

I haven't posted, but I've been praying here in Dallas, TX. I'm so glad to hear he is feeling a bit better, and I hope they figure it out soon.

[catz]

Oh my goodness, I'm so glad. I didn't add anything to the discussion, but that poor little guy just looked miserable!

[Maeintx]

I think they need to demand to be transferred to a children's hospital or one with a big infectious disease clinic.

 

Absolutely! oooopss never mind. I didn't read the whole thread.

[TheReader]

As of this morning, the rash is clearing and the baby is feeling better. No dfinitive diagnosis yet. I have passed on all of your theories to the family. They are grateful for the research help and the prayers. The grandma is making a list of all the states that began prayer chains for Tyson :-). Knowing her, she'll probably plot it on a map and frame it for his room. Spirits are up because this is the first improvement they've seen.

 

If you want to list your state/country, I'll pass it on. I'm not sure what displays on the screen /siggy is necessarily accurate.

 

So glad he's beginning to feel better, whatever it is!

 

My location is correct -- tropical part of Brazil -- if his grandma wants to add that to his map. Will keep praying; so hard to see a kid go through stuff like this.

[Brindee]

So glad he's feeling better! I hope they figure out what it is/was!

 

Praying here in the state of Washington!

[Amber in AUS]

Glad he is improving. We've been keeping him in our thoughts. Grandma can plot Perth, Western Australia (it's our nearest city) :)

[moki4]

Wasn't able to read all responses but viral meningitis should be considered w prolonged fever, restlessness, and rash. If ct of head is clear they should do an lp (lumbar puncture).

Poor babe.

[MariannNOVA]

Praying in Fairfax County, Va -- You know, I'm not good at geography, but Children's Hospital in DC is only a few hours away.

 

I had a friend who had scarlet fever and her rash looked like that.

 

:grouphug:

[Mommyfaithe]

Grandma can add Woodstock, NY. So glad he is improving. Been checking this thread and praying. Keep us updated please....poor baby!

Faithe

[LittleIzumi]

Oh, thanks goodness he's at a better hospital and feeling a bit better!!!! Praying he recovers completely (in Utah :))!

[melissad2]

So very glad to hear he is feeling better! I've had this little fella on my mind. Prayers from upstate SC.

[ereks mom]

If my doc hadn't even HEARD of Kawasaki I'd vote for a new doc and hospital, ASAP.

 

I ABSOLUTELY agree.

[ereks mom]

I think they need to demand to be transferred to a children's hospital or one with a big infectious disease clinic.

 

:iagree:

[tracyohio]

Could it be a reaction to a vaccine? or maybe an allergy to something. Just because a child has been vaccinated does not mean he has NO chance of getting what he was vaccinated for. There not 100%.

 

Just a thought. Maybe check out NAET.com This is new to me as well. It is just something else to look into If traditional medicine is not working for him. My son has allergies and a friend told me about this and how it got rid of her kids allergies. I took my boy to that doctor today. I have to wait 24 hours. Just sayin it could be something that allergy doc's don't think about. I have spent the last 3 hours watching video's on youtube about NAET.

 

I just feel really bad for this little guy. If I was his mommy I would be trying anything. Keep us posted about him.

 

Pray! Pray God shows you the truth of what is going on.

[Mama2Many4]

So glad he's feeling slightly better. Praying here in Rhode Island.

[lotsofpumpkins]

Praying in Florida!

[ktgrok]

I've been praying in Florida, near Orlando!

[5knights3maidens]

I pm'd you yesterday. :)

[k2bdeutmeyer]

So glad they're seeing some improvement. That poor baby looked just miserable.

 

Praying for him in Eastern Iowa.

[5knights3maidens]

How is the baby doing today?

[HiddenJewel]

Any update?

[KungFuPanda]

Here is the progression of updates on Tyson so far. I haven't spoken to his grandmother for a few days, because they are all finally able to rest and I don't want to disturb them. It looks like they never figured out the source of his original fever, but this kid ended up being allergic to several antibiotics. Anyway, he's home and resting now and the family appreciates all of those special prayers. Thank you all :)

 

First there was this:

 

Just got home from seeing Tyson...He was doing sooo much better and they were considering discharging him...we all felt uncomfortable with this since we still dont have a DX..so when the MD came in, I asked if they would keep him one more night, without the IV fluids and change his IV antibiotic to the one he will be d/c with orally...The MD had no problem with this ...They gave him his first dose of Augmentin and within an hour the rash started back....by the time I left, 3 hours later...he was covered in the red welps again...soooooooooo frustrating.....please continue to pray.....the prayers are working as he looks sooo much better and is playing and very perky :)

 

Then there was this:

 

They have tried Tyson on 3 different antibiotics and he is allergic to all of them....other than that and no sleep he is doing better. Fever is staying down...thank you Lord !

 

And finally they are back home.

It is just a little after 3 am and I peeped in on Tyson all snuggled in his cozy bed....he is cool as a cucumber, rash seems better

( from what I could tell).....thank you Jesus for allowing him (and us) a peaceful, restful sleep.

[frugalmama]

if he is reacting to multiple oral antibiotics, he may be allergic to one of the inert ingredients commonly used in many antibiotics as flavoring or a binding agent.

 

I wouldn't be comfy bringing him home without an official diagnosis either :glare: