speedmom4 Posted December 30, 2011 Share Posted December 30, 2011 I'm so sorry. You might want to consider the ketogenic diet. When ds was in a bad stretch, that diet and Keppra were the 2 things that pulled him out. Later on, adding the VNS was another layer of treatment that really helped. My son also has a Vagus Nerve Stimulator (VNS). He has had it for 6 years. I think it has made a difference. I also know several people who have had success with surgery. My heart really goes out to you. I know how scary it is when seizures aren't being controlled well. Seeing a child deteriorate in front of your eyes is awful. I am hoping your doctors find a good solution and that this season will end soon. Please keep us updated. :grouphug: God Bless, Elise in NC Quote Link to comment Share on other sites More sharing options...
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