wy_kid_wrangler04 Posted December 22, 2011 Share Posted December 22, 2011 (edited) This really hits home because when I was pregnant with ds5 I was told he had trisomy 18. I spent the first almost 6 months of my pregnancy thinking my baby was going to die. Then they did an amniocentesis and that "proved" he had downs syndrome :glare: Ds was born fine. This baby indeed was born with trisomy 18. Here is a link to a facebook page set up for her and this is today's update: Day 19 - Crystal had several episodes early this morning around 5:30am where she stopped breathing and an oxygen bag (which gave more dosage of oxygen than the one currently attached to her nose) was administered to her to revive her. The doctor called this afternoon and brought up the possibility of having to connect her to the ventilator (oxygen machine), for which she may not come out of, and in this case we should be prepared to decide to pull her out of it and accept the worse. I know that doctors mean well, but I felt it was too early to suggest death for my child. Another preparation we are making is to have Crystal go through G-tube surgery to place a "button" on her stomach to administer direct feeding (as oppose to the nasal feeding tube which she has right now). Please continue to stand with us on prayer that God will give us wisdom as we make decisions for Crystal... "If any of you lacks wisdom, he should ask God, who gives generously to all without finding fault, and it will be given to him." - James 1:5 Please please PLEASE pray for Crystal and her family. My heart is simply breaking for them. God is carrying them through this!! ETA: Sorry I forgot to put the link. Here is the facebook page. You can see updates and pictures. Edited December 22, 2011 by wy_kid_wrangler04 Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.