HSmomNY Posted September 20, 2011 Share Posted September 20, 2011 We just got back from the doctor with a diagnoses of Autism for my soon to be 2 year old son. Breath, Breath.... okay. Ideas for books, web sites, etc. Quote Link to comment Share on other sites More sharing options...
rafiki Posted September 20, 2011 Share Posted September 20, 2011 . Quote Link to comment Share on other sites More sharing options...
blessedmom3 Posted September 20, 2011 Share Posted September 20, 2011 wrongplanet.com is a site for people with ASD as well as parents . It's interesting to see how an ASD person thinks and I get great ideas from them directly . These books helped me immensely . 1) http://www.amazon.com/'>http://www.amazon.com/Teaching-Raising-Children-Aspergers-Expanded/dp/1935274066/ref=sr_1_1?s=books&ie=UTF8&qid=1316559693&sr=1-1 2) http://www.amazon.com/Playing-Laughing-Learning-Children-Spectrum/dp/1843106086/ref=sr_1_3?s=books&ie=UTF8&qid=1316559693&sr=1-3 Maybe that's why he is very high functioning ? I don't know but I did ( and still do ) work with him a lot at home . I don't believe in miracle cures but I do think vitamins and minerals help as well as a well balanced diet without processed foods, colorants , etc . My son improved concentration with Norwegian Cod Liver oil from Carlson . He is dg with HFA / Asperger since last month but I suspected that since he was 2 , only nobody agreed with me, even specialists ! Trust your instinct . Quote Link to comment Share on other sites More sharing options...
blessedmom3 Posted September 20, 2011 Share Posted September 20, 2011 When I first realized my son is in ASD , I came across this and I thought it was very inspiring ------------------------------------------------------------- Autism! Pdd nos! Aspergers syndrome! ADHD! High functioning! Low functioning! Delayed! Hearing these words about your child can be crushing. They can devastate you to your very core. The good news is THEY DON’T HAVE TO! Let me tell you why…. It doesn’t matter. That’s right. It simply doesn’t matter. If you want to really help your child then read on. I’m serious. Don’t be like the thousands who wish they had “lived†this concept sooner. Pretend for a moment you have a newborn. He is simply perfect. By the time he is two years old, his fingers are so long, they look strange. You go to a renowned physician and ask “What’s wrong with my child? Why are his fingers so long?â€. The physician smiles and says “Your child has a condition called spindle fingers. He has a natural gift for playing musical instruments. Many dream of having this talentâ€. You’re absolutely thrilled and can’t wait to share the news. You rush home but on the way you stop to buy a toy xylophone, piano, drum set and flute. You set them out on the floor when you get home and you watch proudly as your toddler strums each one of them. You don’t care that everyone else thinks it just sounds like noise. You have a budding musician on your hands and he’s practicing! As the months go by you encourage your child to play instruments. He gets a little older and expresses his preference for the piano. You take him to piano lessons, listen to famous piano players and perhaps even go to concerts. You explain to your son that his fingers are long because he is talented at playing the piano. Your son plays the piano beautifully. He is proud of his fingers and his talent. You are proud of your son. You run into the physician a few years later. You tell him proudly about your child’s piano skills. He smiles broadly and says “I made it all up. There is no condition called spindle fingersâ€. “What?†you shriek “that’s impossible. My child is an excellent playerâ€. “Of course he is†says the physician “It’s called belief. You believed in your child’s fingers. You believed in his talent. You encouraged him. It didn’t matter how many mistakes he made. You hardly heard them because you knew he was on the path to greatness. Your son felt your belief. He saw it in your eyes. He felt it course through his being. It inspired him. Every time he looked at his long fingers he thought about his talent. He felt proud of himself. He knew he could do it. Your unwavering faith inspired him to be the best he can beâ€. My advice to you is this. Forget about the boxes and the labels. Ignore the judgments. Your child is fascinating. Your child is a unique and wonderful being who is incredibly special. Give him the tools. Encourage him on his journey. Never lose faith in him. Stand by his side. Teach him as much as you can. Watch in delight as he soars far beyond everyone’s expectations. Everyone’s except yours and all those who joined your belief along the way! Quote Link to comment Share on other sites More sharing options...
MamaSheep Posted September 20, 2011 Share Posted September 20, 2011 Breathing is definitely a good start. As a pp said, you'll go through a lot of different feelings in the next little while, and that's completely normal. Good recommendations will depend a lot on what your child's specific strengths and challenges are, and how severe his symptoms are. One of the challenges of autism is that every child is so different, even though they have certain characteristics in common. Would you feel comfortable sharing more about what you know? What did the doctors say? What were the concerns that led you to seek a diagnosis? Quote Link to comment Share on other sites More sharing options...
HSmomNY Posted September 21, 2011 Author Share Posted September 21, 2011 My DS is nonverbal. In the last 6 months he has lost the use of the few words He had. He is recieveing ST, OT and special Instruction from early intervention. In addition to language issuses, he has some sensory needs. He seems to be Hyposensitve, and needs lots of input. I am looking into a ADA program in our home. Quote Link to comment Share on other sites More sharing options...
mchel210 Posted September 21, 2011 Share Posted September 21, 2011 The best thing I did was join CARD center here. I wonder if you have one near you? It is a great resource for us. We also joined our local autism chapter and they have so many events. They have weekly meetings in different places all the time for parents, some with kids, outings to get to know others in your area...they have golf for older kids, playgroups and ice cream dates for kids...there is a lot going on. I purchased some books on Amazon and just started reading lots of info. :grouphug: Hugs to you!!! It will be ok! Quote Link to comment Share on other sites More sharing options...
ClassicMom Posted September 21, 2011 Share Posted September 21, 2011 The best thing I did was join CARD center here. I wonder if you have one near you? It is a great resource for us. We also joined our local autism chapter and they have so many events. They have weekly meetings in different places all the time for parents, some with kids, outings to get to know others in your area...they have golf for older kids, playgroups and ice cream dates for kids...there is a lot going on. I purchased some books on Amazon and just started reading lots of info. :grouphug: Hugs to you!!! It will be ok! Agreed!! :) I just read a book that would be great for a newly diagnosed family: Ten Things Every Child With Autism Wishes You Knew by Ellen Notbohm Quote Link to comment Share on other sites More sharing options...
melmichigan Posted September 21, 2011 Share Posted September 21, 2011 When I first realized my son is in ASD , I came across this and I thought it was very inspiring ------------------------------------------------------------- Autism! Pdd nos! Aspergers syndrome! ADHD! High functioning! Low functioning! Delayed! Hearing these words about your child can be crushing. They can devastate you to your very core. The good news is THEY DON’T HAVE TO! Let me tell you why…. It doesn’t matter. That’s right. It simply doesn’t matter. If you want to really help your child then read on. I’m serious. Don’t be like the thousands who wish they had “lived†this concept sooner. Pretend for a moment you have a newborn. He is simply perfect. By the time he is two years old, his fingers are so long, they look strange. You go to a renowned physician and ask “What’s wrong with my child? Why are his fingers so long?â€. The physician smiles and says “Your child has a condition called spindle fingers. He has a natural gift for playing musical instruments. Many dream of having this talentâ€. You’re absolutely thrilled and can’t wait to share the news. You rush home but on the way you stop to buy a toy xylophone, piano, drum set and flute. You set them out on the floor when you get home and you watch proudly as your toddler strums each one of them. You don’t care that everyone else thinks it just sounds like noise. You have a budding musician on your hands and he’s practicing! As the months go by you encourage your child to play instruments. He gets a little older and expresses his preference for the piano. You take him to piano lessons, listen to famous piano players and perhaps even go to concerts. You explain to your son that his fingers are long because he is talented at playing the piano. Your son plays the piano beautifully. He is proud of his fingers and his talent. You are proud of your son. You run into the physician a few years later. You tell him proudly about your child’s piano skills. He smiles broadly and says “I made it all up. There is no condition called spindle fingersâ€. “What?†you shriek “that’s impossible. My child is an excellent playerâ€. “Of course he is†says the physician “It’s called belief. You believed in your child’s fingers. You believed in his talent. You encouraged him. It didn’t matter how many mistakes he made. You hardly heard them because you knew he was on the path to greatness. Your son felt your belief. He saw it in your eyes. He felt it course through his being. It inspired him. Every time he looked at his long fingers he thought about his talent. He felt proud of himself. He knew he could do it. Your unwavering faith inspired him to be the best he can beâ€. My advice to you is this. Forget about the boxes and the labels. Ignore the judgments. Your child is fascinating. Your child is a unique and wonderful being who is incredibly special. Give him the tools. Encourage him on his journey. Never lose faith in him. Stand by his side. Teach him as much as you can. Watch in delight as he soars far beyond everyone’s expectations. Everyone’s except yours and all those who joined your belief along the way! This is beautiful. Quote Link to comment Share on other sites More sharing options...
MamaSheep Posted September 21, 2011 Share Posted September 21, 2011 My DS is nonverbal. In the last 6 months he has lost the use of the few words He had. He is recieveing ST, OT and special Instruction from early intervention. In addition to language issuses, he has some sensory needs. He seems to be Hyposensitve, and needs lots of input. I am looking into a ADA program in our home. I have to admit that I don't know as much about the nonverbal end of things, as we have a different set of challenges, but hopefully someone here will have some good recommendations for you. The only recommendations I have for sensory needs would be The Out of Sync Child and The Out of Sync Child has fun. It's been a while since I even looked at them, but it seems like maybe they were geared more toward older kids? I don't remember. I've been submerged in hyperverbal autistic teenagehood and that seems to be all my brain can process today. Hopefully someone here who is a little closer to your situation will chime in. I'm glad to hear that you've already got early intervention involved. Wish I had more to offer. :grouphug: Quote Link to comment Share on other sites More sharing options...
Jennifer-72 Posted September 21, 2011 Share Posted September 21, 2011 The one book that I would not have wanted to be without when ds was non verbal was http://www.hanen.org/Hanen-Resources/Resources-For-Parents/More-Than-Words-Parent-Resources.aspx. I think it is the best approach to language for children with ASD. Quote Link to comment Share on other sites More sharing options...
tylertaylin Posted September 23, 2011 Share Posted September 23, 2011 I believed my child would recover and he has. He started as completely gone and regressed at 15 months. He had no eye contact, lang, or communication of any kind. 7 yrs of intensity has brought him back. The top interventions: Diet (body ecology diet) Son-Rise biomedical (mitochondrial, hbot, supplements, chelation) Brain Balance Once you decide to believe that they can recover, many avenues will become open to you. If you believe that your child is special and will need special lifelong care or adjustments the end result will be different. Your child is young and his future potential is limitless! My son just turned 8 and he's thriving in every way! All the best while you find your way. Diet is key, but many do a junk food version of the standard american diet. For example when you hear of dietary changes such as removing gluten and casein, many let their kids have gluten free french toast sticks, gluten free chicken nuggets, and gluten free cereals. This is great if your kid recovers.....if not, you'll need to go deeper with dietary changes to help with recovery. Take care! Quote Link to comment Share on other sites More sharing options...
Misty Posted September 24, 2011 Share Posted September 24, 2011 Your son is still VERY young and can be fully recovered from Autism. I recovered my son starting at age 3. He is 5 now and completely neurotypical. His sisters were older when we started so they are not fully recovered, but very much improved. An Autism diagnosis is NOT the end. Especially at his age. Start with Healing the New Childhood Epidemics by Kenneth Bock. Quote Link to comment Share on other sites More sharing options...
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