Impish Posted February 15, 2011 Share Posted February 15, 2011 Hey all. I've been having some really nasty days recently. I'm wondering if others with chronic pain have found themselves thinking the same (or similar) thing, or if its a sign that I need to see my psychologist more frequently :lol: When its flared up, I find myself thinking, "Don't scream, don't scream" over and over. Its like the scream is trembling and building inside me, but if I let it out, I'd never stop. I'd keep screaming and screaming and screaming until I break apart. If anyone has a similar experience, first let me say how sorry I am that you do...but if you do, I'd appreciate knowing that I'm not completely losing my mind. :lol: Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted February 15, 2011 Share Posted February 15, 2011 Hey, Imp -- My dd30 has told me that she does the same thing.........I don't think you are losing your mind. She recently saw a Pain Specialist (at the insistence of her insurance company) and as it turns out (thank G-d) this man is a G-dsend! She sees him again in 5 weeks, and in the meantime she has to have an MRI and he wants her to try Neurotnin (spelling?) again -- she first tried it when she first became ill 7 years ago. He thinks that now may be the time for her to try it. She hasn't yet, though (he suggested it 4 weeks ago) -- she has to get herself psychologically ready for it in case it doesn't work. The Pain Specialist gave her an incredibly thorough examination and apparently she has some 'reflex' that is a symptom of only 4 possible diagnosis -- one of which is ALS (not happy about that) and one of the others is typically an indication that neuro-surgery is required. I don't even remember what the other two things were -- The MRI should shed light on the ALS thing. Hang in there -- :grouphug::grouphug::grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted February 15, 2011 Author Share Posted February 15, 2011 Pretty sure that the name of one of my drugs is neurotonin...or that I've tried it in the past. The name is very familiar to me, at any rate. My pain specialist is fantastic. Unfortunately, I have the dubious distinction of being the 'worst' patient he has, in terms of RSD reacting to meds. Just hasn't happened, at least to the degree he was hoping for. I hope it works wonders for your dd this time. Quote Link to comment Share on other sites More sharing options...
Jean in Newcastle Posted February 15, 2011 Share Posted February 15, 2011 :grouphug: I talk to myself all the time. Sometimes it is "hang on for just 1 more minute" (and then once that minute has gone by, "hang on for just 1 more minute" again. . . over and over again.) Sometimes it is "You can do it." (think "Little Engine that Could") but I tend to argue with myself sometimes on this one with a "I can't do it!" thrown in every few thoughts. Quote Link to comment Share on other sites More sharing options...
MariannNOVA Posted February 15, 2011 Share Posted February 15, 2011 Pretty sure that the name of one of my drugs is neurotonin...or that I've tried it in the past. The name is very familiar to me, at any rate. My pain specialist is fantastic. Unfortunately, I have the dubious distinction of being the 'worst' patient he has, in terms of RSD reacting to meds. Just hasn't happened, at least to the degree he was hoping for. I hope it works wonders for your dd this time. In red: THAT is unfortunately what C's doctor told her as well.:crying: I want her to try it and I am praying that it works, but I understand her hesitancy.:grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted February 15, 2011 Author Share Posted February 15, 2011 :grouphug: I talk to myself all the time. Sometimes it is "hang on for just 1 more minute" (and then once that minute has gone by, "hang on for just 1 more minute" again. . . over and over again.) Sometimes it is "You can do it." (think "Little Engine that Could") but I tend to argue with myself sometimes on this one with a "I can't do it!" thrown in every few thoughts. That's how I got through an MRI? CAT scan? The one that is an enclosed tube, with the inside being inches from your nose. I kept promising myself that one more minute, and I'd press the 'holy crud, get me outta here!' button they gave me. Never knew I was claustrophobic until that experience. In red: THAT is unfortunately what C's doctor told her as well.:crying: I want her to try it and I am praying that it works, but I understand her hesitancy.:grouphug: I'm sorry. Its not a distinction I'd wish on anyone. Being an 'overachiever' isn't what its cracked up to be sometimes. Quote Link to comment Share on other sites More sharing options...
CalicoKat Posted February 15, 2011 Share Posted February 15, 2011 :grouphug: You are a very brave lady. :grouphug: Quote Link to comment Share on other sites More sharing options...
Impish Posted February 15, 2011 Author Share Posted February 15, 2011 :grouphug: You are a very brave lady. :grouphug: Brave? For what? Risking someone telling me I'm nuts? :lol: Genuinely curious, not snarky. Quote Link to comment Share on other sites More sharing options...
CalicoKat Posted February 15, 2011 Share Posted February 15, 2011 Brave? For what? Risking someone telling me I'm nuts? :lol: Genuinely curious, not snarky. Brave for living life to it's fullest despite your pain. Quote Link to comment Share on other sites More sharing options...
Slartibartfast Posted February 15, 2011 Share Posted February 15, 2011 I was on Neurontin for a bit, it was terrible. There is no way I would take it ever again. Also when I was going off it the pain Dr didn't tell me to gradually reduce and I acted like a maniac. DO NOT stop neurontin cold turkey. :glare: There was just a major verdict over off label uses of Neurontin http://www.aboutlawsuits.com/verdictlawsuit-neurontin-upheld-15913/ http://www.star-telegram.com/2011/01/28/2805772/business-briefs-pfizer-ordered.html Quote Link to comment Share on other sites More sharing options...
Impish Posted February 15, 2011 Author Share Posted February 15, 2011 Brave for living life to it's fullest despite your pain. As much as I'm flattered, I have to be honest. Everything in my life revolves around pain levels. It dictates what I can and cannot do on a daily, hourly basis. I do what I do, often fighting just to get through, because I have no choice, rather than any wonderful character trait. I'm grateful that I started home schooling a cpl of years before my injury, because it gives me a daily goal or purpose. If the kids were in school, I'd probably be in bed all day, depressed as hack, with no reason to get out of bed, since theres little housework I can manage 1 handed, or that I can do (like washing walls) without my good arm tiring before the job is finished. Quote Link to comment Share on other sites More sharing options...
Impish Posted February 15, 2011 Author Share Posted February 15, 2011 Hmm. I'm on Lyrica, which is pregablin http://en.wikipedia.org/wiki/Pregabalin And Cymbalta, which is Duloxetine http://en.wikipedia.org/wiki/Duloxetine I'm certain that I've either been on it before, or its been mentioned. Probably something that's been tried. The Wiki entry for Gabapentin specifically mentions CRPS, so betting I've tried it at some point, probably early on. Quote Link to comment Share on other sites More sharing options...
prairiewindmomma Posted February 15, 2011 Share Posted February 15, 2011 (edited) -- Edited November 10, 2021 by prairiewindmomma Quote Link to comment Share on other sites More sharing options...
KidsHappen Posted February 15, 2011 Share Posted February 15, 2011 Well, I have a mental illness and chronic pain so I know that for me they are related and sometimes one problem prevents the best treatment of the other. It is an almost impossible balancing act. I have three different drs. and sometimes I just wish that I had one point person that could figure it all out for me. Quote Link to comment Share on other sites More sharing options...
kdeno Posted February 15, 2011 Share Posted February 15, 2011 is very similar to Neurontin. I am sorry so many people are suffering. Quote Link to comment Share on other sites More sharing options...
TheTwinsMom1 Posted February 15, 2011 Share Posted February 15, 2011 I do alot of breathing. I have to stop and do this almost labor like breathing to get through the grocery store some days. Other days I break down and drive the old lady buggys that are electric. Some days the stairs are daunting and I just keep telling myself just one more step, just one more. Quote Link to comment Share on other sites More sharing options...
Giraffe Posted February 15, 2011 Share Posted February 15, 2011 Everything in my life revolves around pain levels. It dictates what I can and cannot do on a daily, hourly basis. I do what I do, often fighting just to get through, because I have no choice, rather than any wonderful character trait. This is me. Every morning I wake up and evaluate what kind of day it's going to be. The past few weeks have been awful - all the winter storms have been driving me insane (I react to low pressure systems on top of everything else). I just tell myself I can do anything for a defined period of time (a minute, an hour, an afternoon). If I hit the end of my rope, I turn on Nick Jr. for DD and curl into a ball. If I feel like I have to take the pain pills that make me completely loopy, I call DH or MIL and ask them to take over tending to DD. They know if I call and ask, I'm in real pain, because either leaving work is a huge inconvenience. Hence the "one more hour" mantra I have. Once DH gets home, I cry. If I cry beforehand, I won't make it through. Quote Link to comment Share on other sites More sharing options...
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